Birthday Reminder from the Calendar of butterflychildren http://groups.yahoo.com/group/butterflychildren/cal Happy Birthday Misty Monday July 5, 2004 12:00 pm...
For your information... please note the attached article from Italy, about quality of life for EB patients. Best regards, Gena Brumitt Gruschovnik E.D.,...
For your information... sharing a press release from NORD about their new program to develop effective treatments for rare diseases.  Best regards, Gena...
Dear all - Please see the following new EB article, featuring our lovely friend, Novelette Munroe. http://www.thestar.com/living/article/636886 Also...
Dear all - I am incredibly saddened to share with you the message I received from Maureen Peshkur last night - their granddaughter, Grace, passed away. ...
Hi, everyone - please have a look at this: http://www.tomorrowthinkofme.roundtablelive.org/ This site will transfer soon to www.tomorrowthinkofme.org, it is...
Hi, just forwarding this, in the event someone wants to take advantage of this Crocs sale. Hope the information is viewable on yahoogroups. Â Gena From: Crocs...
Greetings! I am happy to share some "official" good news with you. Please feel free to pass it along to our other EB forums where I am not a member. ...
Hello, all - Please see the update on the DEBRA International website, providing a preliminary program for the 2009 international conference that will...
Hello, EB friends - One of our EB clinics has asked me to share this information with the EB community, and I'm glad to do so. If you can, please post...
Dear All - It is with tremendous sadness that I inform you... Alejandra Stuparich, EB clinic nurse and coordinator at The Hospital for Sick Children...
Hello, all - If you are a member of EBZone or EBFriends, please pass this on as I am not a member of those groups... I haven't been on the yahoogroups or...
Hi, all - I am writing to ask for a big favor (for some of you, ANOTHER big favor) for someone with EB. Her name is Eugenia, and she has RDEB. If you are...
Hope everyone had a Happy New Year...We celebrated with friends and stayed up way tooo late and are feeling quite tired ...we had a great time playing...
Hi all. Yes, this group is quiet, but it's helped change the perception and awareness of EB-which is what we're all about. Have a wonderful Christmas, and may...
Hello, all - Please see updates for events, tools and resources for ways that you can promote EB awareness during our special week, at www.ebrelay.org. Funds...
survival, police, FBI, DOD, State Dept, f, MILITARY MANUALS U.S. military manuals, government manuals, and civil defense manuals. There are 1,600 manuals on...
Hello, everyone - This was posted on the EBCareNetwork from DebRA International Coordinators' Forum to the doctors, so I figured I should pass it on to the...
Hello, all - Please find the Walk a Mile in My Shoes Outcomes Report attached. For those who receive daily digests (instead of individual emails) who may not...
Happy New Year! I'm just wondering, as this group is so quiet.....is anyone going to respond to this posting? I wait with baited breath! Blessings Colin :)...
Apparently, there's this crazy contest where some amateur blogger is going to get paid to "go pro" for a year at a salary of $80,000, issued bi-weekly. You can...
Are you a Ralphs Club card holder, or can you become one? Because if you do, you can help find a cure for EB at no cost to you..... For those of you who shop...
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