Hi all. Yes, this group is quiet, but it's helped change the perception and awareness of EB-which is what we're all about. Have a wonderful Christmas, and may...
Hello, all - Please see updates for events, tools and resources for ways that you can promote EB awareness during our special week, at www.ebrelay.org. Funds...
survival, police, FBI, DOD, State Dept, f, MILITARY MANUALS U.S. military manuals, government manuals, and civil defense manuals. There are 1,600 manuals on...
Hello, everyone - This was posted on the EBCareNetwork from DebRA International Coordinators' Forum to the doctors, so I figured I should pass it on to the...
Hello, all - Please find the Walk a Mile in My Shoes Outcomes Report attached. For those who receive daily digests (instead of individual emails) who may not...
Happy New Year! I'm just wondering, as this group is so quiet.....is anyone going to respond to this posting? I wait with baited breath! Blessings Colin :)...
Apparently, there's this crazy contest where some amateur blogger is going to get paid to "go pro" for a year at a salary of $80,000, issued bi-weekly. You can...
Are you a Ralphs Club card holder, or can you become one? Because if you do, you can help find a cure for EB at no cost to you..... For those of you who shop...
Sara Norman was born 1/30/91 and she went to be with our Lord and Savior Jesus Christ 1/9/99 @ 8:20pm .She had RDEB .Her birthday is coming up and it is so...
Hi, Everyone - Oh, my GOD!!!! We DID IT!!!! Remember this day - December 9, 2006. I woke up late this morning but the first thing I did, even before coffee,...
Birthday Reminder from the Calendar of butterflychildren http://groups.yahoo.com/group/butterflychildren/cal Rachelle's Birthday! Saturday August 31, 2002 All...
Hello, my Friends! I have WONDERFUL news to share with you today! On Thursday, September 21, in the Senate of the United States of America, S.RES.180, the...
Greetings - I hope I am not treading on ANYONE's toes here by offering, but I've noticed that the Butterfly Children forum does not have many posts lately,...
Hi, I don't have EB, but I do have Cerebral Palsy, a neurological impairment that renders me unable to walk at all and requires me to use an electric...
Hello, Everyone - I apologize - I have not been on the boards much lately due to the new job (instead of provincial property, I am now managing a golf...
Reminder from the Calendar of butterflychildren http://groups.yahoo.com/group/butterflychildren/cal Happy Birthday Brogan Tuesday March 28, 2006 12:00 am -...
Everyone - I heard from Madeline today and I want to pass on her news. She has posted the following message at the DebRA website: Dear Friends, After over a...
Heya everyone! Since this is an EB group (and we've had complaints about the lack of EB related stuff here in the past) I think I'll start with skin related...
Greetings! Largely due to your efforts, 31 co-sponsors are in support of Congressman Tim Bishop's House Bill (HRES335) to support the ideals and goals of...
Reminder from the Calendar of butterflychildren http://groups.yahoo.com/group/butterflychildren/cal Brogans anniversary Saturday February 4, 2006 12:00 pm -...
Hi all Sorry for the mass e-mail. I'm just writing to let you know that the discovery health website shows that the episode of Medical Incredible that I was...
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