Reminder from: butterflychildren Yahoo! Group http://groups.yahoo.com/group/butterflychildren/cal Colin's birthday Saturday September 13, 2008 All Day (This...
butterflychildren@yah...
Sep 12, 2008 11:48 pm
3790
Reminder from: butterflychildren Yahoo! Group http://groups.yahoo.com/group/butterflychildren/cal Happy Birthday Heather Raine Wednesday October 22, 2008 12:00...
butterflychildren@yah...
Oct 21, 2008 11:49 pm
3791
Hello, all - Please see updates for events, tools and resources for ways that you can promote EB awareness during our special week, at www.ebrelay.org. Funds...
Hi all. Yes, this group is quiet, but it's helped change the perception and awareness of EB-which is what we're all about. Have a wonderful Christmas, and may...
Hi, Colin - I still subscribe to Butterfly Children and quickly read the digests I receive, but there are quite a few whose activity is down, including one I...
Hi, all - I am writing to ask for a big favor (for some of you, ANOTHER big favor) for someone with EB. Her name is Eugenia, and she has RDEB. If you are...
Hello, all - If you are a member of EBZone or EBFriends, please pass this on as I am not a member of those groups... I haven't been on the yahoogroups or...
Dear All - It is with tremendous sadness that I inform you... Alejandra Stuparich, EB clinic nurse and coordinator at The Hospital for Sick Children...
Hello, EB friends - One of our EB clinics has asked me to share this information with the EB community, and I'm glad to do so. If you can, please post...
Hello, all - Please see the update on the DEBRA International website, providing a preliminary program for the 2009 international conference that will...
Reminder from: butterflychildren Yahoo! Group http://groups.yahoo.com/group/butterflychildren/cal Happy Birthday Brogan Saturday March 28, 2009 12:00 am - 1:00...
butterflychildren@yah...
Mar 28, 2009 12:01 am
3805
Greetings! I am happy to share some "official" good news with you. Please feel free to pass it along to our other EB forums where I am not a member. ...
Hi, just forwarding this, in the event someone wants to take advantage of this Crocs sale. Hope the information is viewable on yahoogroups. Â Gena From: Crocs...
Hi, everyone - please have a look at this: http://www.tomorrowthinkofme.roundtablelive.org/ This site will transfer soon to www.tomorrowthinkofme.org, it is...
Dear all - I am incredibly saddened to share with you the message I received from Maureen Peshkur last night - their granddaughter, Grace, passed away. ...
Dear all - Please see the following new EB article, featuring our lovely friend, Novelette Munroe. http://www.thestar.com/living/article/636886 Also...
For your information... sharing a press release from NORD about their new program to develop effective treatments for rare diseases.  Best regards, Gena...
Reminder from: butterflychildren Yahoo! Group http://groups.yahoo.com/group/butterflychildren/cal Happy Birthday Anne~Marie Tuesday May 26, 2009 All Day (This...
butterflychildren@yah...
May 25, 2009 12:03 am
3812
For your information... please note the attached article from Italy, about quality of life for EB patients. Best regards, Gena Brumitt Gruschovnik E.D.,...
Reminder from: butterflychildren Yahoo! Group http://groups.yahoo.com/group/butterflychildren/cal Happy Birthday Misty Sunday July 5, 2009 12:00 pm - 1:00 pm ...
butterflychildren@yah...
Jul 5, 2009 11:44 am
3814
Reminder from: butterflychildren Yahoo! Group http://groups.yahoo.com/group/butterflychildren/cal Kallista Birthday Thursday August 27, 2009 All Day (This...
butterflychildren@yah...
Aug 26, 2009 11:48 pm
3815
Reminder from: butterflychildren Yahoo! Group http://groups.yahoo.com/group/butterflychildren/cal Rachelle's Birthday! Monday August 31, 2009 All Day (This...
butterflychildren@yah...
Aug 30, 2009 11:50 pm
3816
Reminder from: butterflychildren Yahoo! Group http://groups.yahoo.com/group/butterflychildren/cal Colin's birthday Sunday September 13, 2009 All Day (This...
butterflychildren@yah...
Sep 12, 2009 11:47 pm
3817
Reminder from: butterflychildren Yahoo! Group http://groups.yahoo.com/group/butterflychildren/cal Neal's birthday! Sunday September 13, 2009 All Day (This...
butterflychildren@yah...
Sep 12, 2009 11:48 pm
3818
Reminder from: butterflychildren Yahoo! Group http://groups.yahoo.com/group/butterflychildren/cal Happy Birthday Heather Raine Thursday October 22, 2009 12:00...
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