Hi Holly, How are you? I'm doing alright except blistering on the eyes again which is a pain, anyway I was wondering can I use one of the pictures of Trevor...
Hi Hon, We are doing okay. Still having problems with our windpipe closing up below the trach but other than that we seem to be a happy little man. Sorry...
Hello All, Just wanted to let everyone know that there is a precious eb baby in need of adoption. She is just 8 weeks old and cute as can be. She has...
Hi Everyone, Just to let you all know I be sky diving for DebRA this Saturday! If you want to read more, you can goto to the www.debra.org.uk web site or if...
Birthday Reminder from the Calendar of butterflychildren http://groups.yahoo.com/group/butterflychildren/cal Happy Birthday Misty Tuesday July 5, 2005 12:00 pm...
butterflychildren@yah...
Jul 5, 2005 10:40 am
3716
Hello All, I was wondering what other people have done regarding lifting their children. Trevor has JEB-H and is wheelchair bound. He does not walk at all....
Reminder from the Calendar of butterflychildren http://groups.yahoo.com/group/butterflychildren/cal Kallista Birthday Saturday August 27, 2005 All Day (This...
Yahoo! Reminder
reminders@...
Aug 26, 2005 10:41 pm
3718
Hi to everyone here, hope you're keeping well, thought I log on whilst I was on the computer. I was wondering how much people know about EB in terms of...
"hon_w.rm" <no_reply@yahoogroups.com> wrote:Hi to everyone here, hope you're keeping well, thought I log on whilst I was on the computer. I was wondering how...
Hi Mae Welcome to the group, like you said the doctors thought EB sufferers would grow out of it as we reached our adulthood but obviously that was wrong, but...
Hi Hon, was good to hear back from you, where do you live? and why havent you had blisters in 15 yrs? that is wonderful!! my son who is 27 has problems with...
Reminder from the Calendar of butterflychildren http://groups.yahoo.com/group/butterflychildren/cal Rachelle's Birthday! Wednesday August 31, 2005 All Day ...
Yahoo! Reminder
reminders@...
Aug 30, 2005 10:50 pm
3723
Happy Bithday Rachelle !! Thank you again for taking the time to share Brogan's story with me! Erin ... From: Yahoo! Reminder Date: 08/30/05 18:50:37 To:...
Hi all! As many of you know, I was filmed last June for a show called Medical Incredible on the Discovery Health Channel. It was a very fun experience and I...
Reminder from the Calendar of butterflychildren http://groups.yahoo.com/group/butterflychildren/cal Colin's birthday Tuesday September 13, 2005 All Day (This...
Yahoo! Reminder
reminders@...
Sep 12, 2005 10:41 pm
3727
Reminder from the Calendar of butterflychildren http://groups.yahoo.com/group/butterflychildren/cal Neal's birthday! Tuesday September 13, 2005 All Day (This...
Yahoo! Reminder
reminders@...
Sep 12, 2005 10:41 pm
3728
Hey Cristina, Glad you had a great time helping to spread awareness of EB, it's about time that the general public aknowledge how dreadful this condition can...
Thanks Hon So much is happening in my life right now I am getting quite overwhelmed but it's been good and I'm so happy to see EB getting all this awareness....
Hey Colin, It was great to see yer and Lyn on saturday when is the next DVD night in lol, this time I shall pop round to yours as my dvd player don't work...
Yo Hon! It was indeed wonderful to spend the day with you - was lots of fun :) Monty Python evening - our place - we're looking at the 29th of October...you up...
Reminder from the Calendar of butterflychildren http://groups.yahoo.com/group/butterflychildren/cal Happy Birthday Heather Raine Saturday October 22, 2005 ...
Yahoo! Reminder
reminders@...
Oct 21, 2005 10:40 pm
3734
Hi to all members, For those of you who recieve help and support from the charity DebRA in your country what sort of help do you currently recieve? What other...
Hiya Hon. I'm here? Wow. Colin's here too? Double wow. Things are odd on Yahoo now. Groups seem to be dying a long, drawn out death. You know this is an...
I thought I would send a few out there. Trevor is the dump truck and Tyler
is the clown. Holly Lutter (mom to Tyler EBfree 10 years old and Trevor JEB-H 6...
Hi Holly, I think yahoo is playin up again, as I can't see any of the pictures in this message? or is it just my computer again! Hope all is well in OK. best...
Hi Hon, I did notice that the pictures didn't come through on Butterfly Children. They came through on all my other webrings. Not sure what is up with that....
Hi all Sorry for the mass e-mail. I'm just writing to let you know that the discovery health website shows that the episode of Medical Incredible that I was...
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