Hi everyone, Sorry it's litteraly been years since I last post anything on this group, there's no excuse really I just been a lazy sod! Anyway I would...
Wow, that's really *gulp* thrilling, the idea of skydiving to raise funds and awareness for EB! As for me, I have always been scared of heights, so I wouldn't...
Gena
otm@...
Apr 29, 2005 11:26 am
3702
*eyes pop out* Hon, wow! I've checked this group for the first time since... um... I dunno, I don't stick around Yahoo much at all anymore either. I've been...
Hon, i just wanted to say, if no one else wants to be the moderator, I would be happy to. Glad to hear from you Hon. You're one of my heros. We too enjoyed...
It would be a good thing to have a mod who checks regularly... there are still spammers and the like appearing now and again, I guess! I know this group has...
Hi Holly and everyone else who reads this post, I made you a moderator Holly, I don't know when I will be back in Oklahoma it's been five years since I last...
For those of you who have used the Meplilex dressing range, you will know that it's one of the best dressing's currently available to cope with the type of...
BlankI just received a phone call from a very upset Marybeth Sheridan. She asked me to communicate this sad news to you. I'm so sorry to tell you all that,...
Gena
otm@...
May 18, 2005 4:24 pm
3708
To all... if this is a duplicate, I beg your pardon... I have been asked to pass this on, and I "blind-cc'd" any personal emails... Gena ... From:...
Gena
otm@...
May 19, 2005 2:06 am
3709
BlankI'm passing this along from Marybeth Sheridan, for any of you who can attend: The Funeral for Jennifer Deprisio will be Saturday May 28th in Melbourne...
Gena
otm@...
May 20, 2005 12:05 pm
3710
Birthday Reminder from the Calendar of butterflychildren http://groups.yahoo.com/group/butterflychildren/cal Happy Birthday Anne~Marie Thursday May 26, 2005 ...
Yahoo! Reminder
reminders@...
May 24, 2005 10:57 pm
3711
Hi Holly, How are you? I'm doing alright except blistering on the eyes again which is a pain, anyway I was wondering can I use one of the pictures of Trevor...
Hi Hon, We are doing okay. Still having problems with our windpipe closing up below the trach but other than that we seem to be a happy little man. Sorry...
Hello All, Just wanted to let everyone know that there is a precious eb baby in need of adoption. She is just 8 weeks old and cute as can be. She has...
Hi Everyone, Just to let you all know I be sky diving for DebRA this Saturday! If you want to read more, you can goto to the www.debra.org.uk web site or if...
Birthday Reminder from the Calendar of butterflychildren http://groups.yahoo.com/group/butterflychildren/cal Happy Birthday Misty Tuesday July 5, 2005 12:00 pm...
butterflychildren@yah...
Jul 5, 2005 10:40 am
3716
Hello All, I was wondering what other people have done regarding lifting their children. Trevor has JEB-H and is wheelchair bound. He does not walk at all....
Reminder from the Calendar of butterflychildren http://groups.yahoo.com/group/butterflychildren/cal Kallista Birthday Saturday August 27, 2005 All Day (This...
Yahoo! Reminder
reminders@...
Aug 26, 2005 10:41 pm
3718
Hi to everyone here, hope you're keeping well, thought I log on whilst I was on the computer. I was wondering how much people know about EB in terms of...
"hon_w.rm" <no_reply@yahoogroups.com> wrote:Hi to everyone here, hope you're keeping well, thought I log on whilst I was on the computer. I was wondering how...
Hi Mae Welcome to the group, like you said the doctors thought EB sufferers would grow out of it as we reached our adulthood but obviously that was wrong, but...
Hi Hon, was good to hear back from you, where do you live? and why havent you had blisters in 15 yrs? that is wonderful!! my son who is 27 has problems with...
Reminder from the Calendar of butterflychildren http://groups.yahoo.com/group/butterflychildren/cal Rachelle's Birthday! Wednesday August 31, 2005 All Day ...
Yahoo! Reminder
reminders@...
Aug 30, 2005 10:50 pm
3723
Happy Bithday Rachelle !! Thank you again for taking the time to share Brogan's story with me! Erin ... From: Yahoo! Reminder Date: 08/30/05 18:50:37 To:...
Hi all! As many of you know, I was filmed last June for a show called Medical Incredible on the Discovery Health Channel. It was a very fun experience and I...
Reminder from the Calendar of butterflychildren http://groups.yahoo.com/group/butterflychildren/cal Colin's birthday Tuesday September 13, 2005 All Day (This...
Yahoo! Reminder
reminders@...
Sep 12, 2005 10:41 pm
3727
Reminder from the Calendar of butterflychildren http://groups.yahoo.com/group/butterflychildren/cal Neal's birthday! Tuesday September 13, 2005 All Day (This...
Yahoo! Reminder
reminders@...
Sep 12, 2005 10:41 pm
3728
Hey Cristina, Glad you had a great time helping to spread awareness of EB, it's about time that the general public aknowledge how dreadful this condition can...
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