Hey new member :) You're in! Sorry it may have taken some time to approve you... this place has been a bit dead (ok, very dead) lately. I'm guilty. Somehow I...
I posted a new pic.... check it out ;) It ain't the Dee you knew and loved! Kevin take a look so that I don't frighten you to death at the next board meeting...
Kevin I thought you might be intersted in this article I found on the net. Jonny's legacy One man's death from a rare skin disease has provided other sufferers...
Thanks kevin, sorry I'm a bit late I've just got back from holiday. How's
Alice doing. Hope she's well. Rachelle ... From: butterflychildren@yahoogroups.com ...
hello eveyone,i have just been informed that jonny kennedys programme is going to be repeated again on channel 4 in sept around his anniversary keep your eyes...
Hey, I noticed via email lately that the membership settings have been changed... personally I no longer have anything much to do with many groups and don't...
i have not been around lately gang adam is in hospial again he went in monday for blood and they discovered he has pneumonia anyway i will check in soon bye...
Kevin I have just been flicking through the tv channels and I came across a programme called Kids world, with you and Adam appearing in it. I imediately phoned...
hey hey, just thought id tell you guys about this free debt consolidation site that reduced my monthly payments by damn near half, no more worries about bills!...
hi everyone i have not been here for a while but i still get posts i have just got word for anyone who can receive channel 4 in the uk and ireland that the...
I decided to update you all with stuff from my life now, cause I actually have nothing to do! Ok, that is a direct reflection on my life, yes ;) I've moved...
rachelle is it just you and me here is this our own private little club dee i know you are lurking, colin leave that fiance of yours alone for a second and...
Dear friends, it is mine very sad duty to tell you that little Harrison (15 months, EBS-DM variant) passed away unexpectedly yesterday very possible due to EB...
Kevin Just finished watching the programme as I was at work last night. I
spoke to Diane before I watched just to get her opinion and she said for the
first...
Reminder from the Calendar of butterflychildren http://groups.yahoo.com/group/butterflychildren/cal Happy Birthday Brogan Sunday March 28, 2004 12:00 am - 1:00...
Just wanted to say I am thinking of and praying for you in your move…… ~Deejay Deejay 2 Timothy 1:7 2 Corinthians 12 Just wanted to say I am thinking of...
First of all Hi linnet. Well I would like to let you all know that we will be having a new addition to our family in october. Diane is finally pregnant again ...
What do you do in the medical field? Are you a doctor or a nurse of any sort? There is a camp - Camp Wonder - which I was a counselor for last June (thats...
Hi, I am a 37yo mom with two healthy kids...Luke is 18 months and my daughter Tommi is 12 weeks. I am in the medical field yet had not heard of EB until very...
Reminder from the Calendar of butterflychildren http://groups.yahoo.com/group/butterflychildren/cal Brogans anniversary Wednesday February 4, 2004 12:00 pm -...
Hello, My name is Vikki and I am part of a team setting up Post Pals, which securely features children aged between 2 and 18 in the UK with a serious illness,...
It is far to quiet here, and i must say i have considered leaving myself.
Just don't seem to have anything to contribute these days. I will always be
thankful...
Well, with all our regular peoples leaving this group, and with our dear returned founder getting set to leave again (hah, Colin :P) It remains doubtful as to...
Hello I am looking for a few families that are dealing with JEB to help Vani out. Mahi is now almost 2 years old, and has a trach tube, and she is basically ...
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