Junctional Epidermolysis Bullosa with Pyloric Atresia she was 3 months old on the 14th, she is very uncomfortable. Thans again, Erin ... one! ... able ... if...
Hi Erin, What type of EB does the baby have? I can't offer you much advice personally, as I've never been around a baby with EB - just been one! There are...
Hey new member :) You're in! Sorry it may have taken some time to approve you... this place has been a bit dead (ok, very dead) lately. I'm guilty. Somehow I...
Birthday Reminder from the Calendar of butterflychildren http://groups.yahoo.com/group/butterflychildren/cal Colin's birthday Monday September 13, 2004 All Day...
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Sep 12, 2004 10:40 pm
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Birthday Reminder from the Calendar of butterflychildren http://groups.yahoo.com/group/butterflychildren/cal Neal's birthday! Monday September 13, 2004 All Day...
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Sep 12, 2004 10:40 pm
3677
I often go to watch the buskers. Some of them are very enjoyable. ... <no_reply@y...> ... you ... pins ... you ... at...
-- emma hangs around there on saturdays she goes to something called blast bands play there every week kevin - In butterflychildren@yahoogroups.com,...
Well I'm not sure it would work on Grafton Street but I found my new home yesterday, definitely Templebar - no one stares when I walk around there. Even though...
Kevin, I read the article on it. It really sounded good and I wish I could see it. Oh well! What a completely unbelievable thing to do, to make a doc. about...
-have you given anymore thought to my suggestion about going to grafton street and posing for the tourists for a fee i,d say you would clean up lol kevin -- In...
-lori this is a programme which aired on a station called channel 4 in the uk and ireland.if a station in the us buys it then it will be on there.it is not...
hi rachelle,i had heard from the debra ireland office that the programme was going to be shown again in september around the time of jonnys anniversary it is...
Kevin I thought you might be intersted in this article I found on the net. Jonny's legacy One man's death from a rare skin disease has provided other sufferers...
I'm two steps ahead of you Kevin - I've got a massive collection of safety pins, most of them are in my clothes but two of them were in my ear since June. I...
-so far so good rachelle she is on thyroid replacement hormone and is not getting so tired now.we have a wedding to go to on saturday week so she is looking...
Thanks kevin, sorry I'm a bit late I've just got back from holiday. How's
Alice doing. Hope she's well. Rachelle ... From: butterflychildren@yahoogroups.com ...
I posted a new pic.... check it out ;) It ain't the Dee you knew and loved! Kevin take a look so that I don't frighten you to death at the next board meeting...
Birthday Reminder from the Calendar of butterflychildren http://groups.yahoo.com/group/butterflychildren/cal Rachelle's Birthday! Tuesday August 31, 2004 All...
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Aug 30, 2004 10:50 pm
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Birthday Reminder from the Calendar of butterflychildren http://groups.yahoo.com/group/butterflychildren/cal Kallista Birthday Friday August 27, 2004 All Day ...
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Aug 26, 2004 10:42 pm
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hello eveyone,i have just been informed that jonny kennedys programme is going to be repeated again on channel 4 in sept around his anniversary keep your eyes...
Hey Rash, I noticed the spam, and yeah unless we changed the membership settings, it'll get to the stage all we get is spam ;) This group isn't taking a lot of...
Hi Dee, there has been a few members joining then sending junk mail, thats why I changed it. I know what you mean about not having much to do with groups any...
Changing my moderatorship status proved to be more tedious than I'm interested in looking at (ADD Central..) so I just turned off the email notifications! So,...
Hey, I noticed via email lately that the membership settings have been changed... personally I no longer have anything much to do with many groups and don't...
Birthday Reminder from the Calendar of butterflychildren http://groups.yahoo.com/group/butterflychildren/cal Happy Birthday Misty Monday July 5, 2004 12:00 pm...
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