Well this is the second posting of 2004, though if you club at the message tally you'd not believe it! I thought Internet time was GMT?! BAH! Laters :) Colin...
Hope everyone had a Happy New Year...We celebrated with friends and stayed up way tooo late and are feeling quite tired ...we had a great time playing...
Hiya Lainie, Happy New Year to you too :) I did much the same on New Year myself - stayed up til around 5, and was a touch wrecked by the time I fell asleep,...
Hello I am looking for a few families that are dealing with JEB to help Vani out. Mahi is now almost 2 years old, and has a trach tube, and she is basically ...
Well, with all our regular peoples leaving this group, and with our dear returned founder getting set to leave again (hah, Colin :P) It remains doubtful as to...
It is far to quiet here, and i must say i have considered leaving myself.
Just don't seem to have anything to contribute these days. I will always be
thankful...
Regulars... um... I don't know who they are any more since I'm not really a regular myself. The archives were closed a few months ago but reopened recently. I...
Hello, My name is Vikki and I am part of a team setting up Post Pals, which securely features children aged between 2 and 18 in the UK with a serious illness,...
Reminder from the Calendar of butterflychildren http://groups.yahoo.com/group/butterflychildren/cal Brogans anniversary Wednesday February 4, 2004 12:00 pm -...
Yahoo! Reminder
reminders@...
Feb 4, 2004 10:40 am
3607
Hi, I am a 37yo mom with two healthy kids...Luke is 18 months and my daughter Tommi is 12 weeks. I am in the medical field yet had not heard of EB until very...
Hi Jen, welcome to the group. I'm afraid its really quiet hear with next to no posters. I joined this group 4 years ago when my neice was born with junctionel...
What do you do in the medical field? Are you a doctor or a nurse of any sort? There is a camp - Camp Wonder - which I was a counselor for last June (thats...
First of all Hi linnet. Well I would like to let you all know that we will be having a new addition to our family in october. Diane is finally pregnant again ...
hi everyone i have not been here for a while but i still get posts i have just got word for anyone who can receive channel 4 in the uk and ireland that the...
Hi Kevin, Last Sunday there was a center page spread about this guy in our local paper. I have kept it if you would like me to send it to you. It also says...
--rachelle i got an e-mail forwarded to me from debra uk and it said thursday the 25th at 9 maybe there are different regions over there and yes i would like...
Kevin if you let me have your adress I will get it posted asap. Love Rachelle. ... said ... there ... guy ... it ... if ... <no_reply@y...> ... uk ... at...
Kevin it doesn't look like the link is working. If you go to http://icnewcastle.icnetwork.co.uk/ and search for EB. it should find the article for you. ...
-thanks rachelle,i have read it i am looking forward to seeing him as he seemed such a character just like adam.everytime i see or read articles like this it...
Glad you got to read it Kevin. I have kept the article so I don't mind sending it on. Rachelle ... as ... close ... you ... <c.lively@b...> ... asap. ... it ...
Hey all, Just a quick note to announce to the world at large (probably more than I should be) that our Col has popped the question to his girlfriend Lyn and...
OH my god Oh my god, Colin congratulations on your wonderufl news. I'm really pleased for you both. Come on give us some more details chuck. Love Rash....
--just finished watching jonny kennedy we laughed and we cried what a character it was like watching our own family some of his expressions where exactly like...
Kevin Just finished watching the programme as I was at work last night. I
spoke to Diane before I watched just to get her opinion and she said for the
first...
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