Thanx Kevin - and happy new year to you and everyone.<br><br>I wonder what's going to happen around here with all of the clubs transferring over to groups?...
Hi all - well it's taken me this long, what with one thing, another thing, and a bottle of wine and plenty of smokes - to finally detox and make it online ...
Hello there,<br>My name is Misty, and my daughter is Anne~Marie. I am 24 and she is 2 and a half... We both have DDEB, as does the majority of my mom's ...
Yea, I am replying to my own post!<br><br>Just a side note... I put some pics of me and my daughter in the club album... In case anyone wants to meet...
Hi everyone, I hope you have all had a lovely holiday, and not drunk to much, (apart from you dedrie lol). Well this was our first christmas without Brogan so...
Hiya Misty - <br>And thanks!<br>Seeing you in here brings back something of a certain Sunday night not long ago. Um, I did in fact need reminding. I'm sorry...
HIya Misty - thanx for dropping by and joining us lot here at Butterflys :) Great to have you here :) <br><br>You know Kevin and Deirdre do you.....oooh...
Hi everyone hope you had a nice xmas, sorry I not been around much, i've been off ill, anyway I hope this year is going to be a better one. Though with EB it's...
I watching a television programme with my mum called Ready Steady Cook last week and I thought I would let you all know about it..It was a celebrity special ...
HEY! It's me mate Hon - very long time no see, especially around here :) WONDERFUL to see you bro!<br><br>Sorry to hear that you've not been too well again -...
Hi Claire, <br><br>That's wonderful that a high profile celebrity like Ian Wright is drawing attention to DEBRA and EB - especially on a prime time show like ...
Today I was pulling on my jeans when my toenail caught them and got pulled right off, in a mes of blood, skin, nail and AGONY! <br>It's the first time in a...
Well Mark, the baby budgie, seems to think, when he wants to get to a higher perch, that climbing is better than flying. This is fair enough.<br>But if JJ (the...
Hi Deidre,<br>my limited knowledge of simplex (I just know what I had to type up for the website) nails grow from the epidermis, and since the epidermis in ...
Thanks Silvia - I was simply whining... it didn't hurt that bad! Only as bad as toenails do when they come out... we've all felt that one. It is pretty ...
Ow that sounds painful still nonetheless - I remember some time ago when I chopped a toenail off with a shovel (someone called my name just as I was on the ...
Of course I've lost toenails before - two words for you: EB, and HORSES.<br><br>A horse standing on your toe is one of the best ways to break toes and lose...
Actually, Silvia, this was interesting information again yesterday - when I decided to cut all my toenails. I found (have always known but just thought about ...
*LOL* I am sorry... I remember this with myself when i was younger, and am seeing it now with my daughter! <br><br>your toenails are only attatched at the ...
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