For your information... please note the attached article from Italy, about
quality of life for EB patients.
 
Best regards,
Gena Brumitt Gruschovnik






E.D., Walk a Mile in My Shoes campaign for International EB Awareness Week -
(note new website after May 31 - www.mywalkamile.org

Co-Host, Tomorrow Think of Me event - www.tomorrowthinkofme.org

Vice Treasurer, Executive Committee, DEBRA International -
www.debra-international.org






Director of Awareness & Education, DEBRA Canada - www.debracanada.orgWe must be
the change we wish to see in the world.  ~ Mahatma Gandhi

--- On Mon, 5/25/09, paola.zotti@...
<paola.zotti@...> wrote:


From: paola.zotti@... <paola.zotti@...>
Subject: QoL in EB patients on British Journal...
To: coordinators@...
Received: Monday, May 25, 2009, 12:02 PM


Dear all

I'm glad to inform you that the British Journal of
Dermatology has accepted to publish the article you'll find
attached. At the moment the article is only online.

Kindest regards
Paola


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