Dear all -  Please see the following new EB article, featuring our lovely
friend, Novelette Munroe.  http://www.thestar.com/living/article/636886
 
Also please check out this test website
http://www.tomorrowthinkofme.roundtablelive.org/  which will be moving over to
www.tomorrowthinkofme.org shortly.  DEBRA Canada is honored to host one of three
simultaneous international EB events, at the CN Tower in Toronto on October
29th.
 
The new "Walk a Mile in My Shoes" campaign website will be "live" by the end of
May, at www.mywalkamile.org.  The WAM campaign goes global this year, in
recognition of our first-ever International EB Awareness Week.
 
Can you spare even one hour a week to write to policy-makers?  If so, please
email me at gena@... to let me know you can donate some energy to
the most important awareness week ever!  Organizers are setting up in
primary countries already, and they are very enthusiastic and ready to help you!
 
There will never be a FIRST International EB Awareness Week again.  EB
families all over the world are counting on us, and greatly motivated by our
humanitarianism.  We are embattled, especially with the recent loss of beloved
children, Gabriel and Grace, but we are not beaten.  NOW is the time for us to
put our compassion in action! 
 
Best regards,
Gena Brumitt Gruschovnik






We must be the change we wish to see in the world.  ~ Mahatma Gandhi

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