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International EB Awareness Week   Message List  
Reply | Forward Message #3807 of 3818 |
Hi, everyone - please have a look at this:
http://www.tomorrowthinkofme.roundtablelive.org/ 
This site will transfer soon to www.tomorrowthinkofme.org, it is currently a
"test" site.  This will be a very exciting signature event (actually, three
simultaneously) for our week.

AND!  A new "Walk a Mile in My Shoes" website will be "live" by May 15, at
www.mywalkamile.org, and the tools for awareness events/fundraisers will be
available to EB advocates EVERYWHERE.

If you are keen to VOLUNTEER a bit of time soon, I am looking for people to send
emails or letters to the public servants in their state or province (or country,
if it's small), asking for a public proclamation for International EB Awareness
Week. You are welcome to do just your state, or job-share - whatever you can
do!  I will provide letter examples, proclamation examples, etc.  If you are in
the U.S., we already have someone "manning" (in her case, "womanning") the
spreadsheet and ready to check them off!  :)  I hope that we are able to
accomplish this in every country where there are known EB families.  This will
help us get the media coverage, and thus boost the EB awareness.

All the best,
Gena







Vice Treasurer, Executive Committee, DEBRA International -
www.debra-international.org
Director of Awareness & Education, DEBRA Canada - www.debracanada.org
CEO, Walk a Mile in My Shoes campaign for International EB Awareness Week -
www.ebrelay.org
Co-Chair, Democrats Abroad Canada, London Chapter -
www.democratsabroad.org/group/canada

Past President, Nokee Kwe Occupational Skill Development Inc. - www.nokeekwe.ca
We must be the change we wish to see in the world.  ~ Mahatma Gandhi

[Non-text portions of this message have been removed]




Thu May 7, 2009 8:32 pm

ggruschovnik
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Message #3807 of 3818 |
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Hi, everyone - please have a look at this: http://www.tomorrowthinkofme.roundtablelive.org/  This site will transfer soon to www.tomorrowthinkofme.org, it is...
Gena
ggruschovnik
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May 7, 2009
8:33 pm
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