Hi, Colin - I still subscribe to Butterfly Children and quickly read the digests
I receive, but there are quite a few whose activity is down, including one I
started, EB Force for Action.  I just don't have the time to do much about it
because of other EB-related commitments, and also people seem like they are not
using the forums as much these days. 
 
I see much more activity relating to the EB community through my Facebook page. 
Add me as a friend if you like, and you'll see lots of people on there.
 
Wishing you a Happy New Year!
Gena Brumitt Gruschovnik


Vice Treasurer, Executive Committee, DEBRA International -
www.debra-international.org  

Director of Awareness & Education, DEBRA Canada - www.debracanada.org  
Founder, Walk a Mile in My Shoes campaign for National EB Awareness Week -
www.ebrelay.org
Co-Chair, Democrats Abroad Canada, London Chapter -
www.democratsabroad.org/group/canada
Vice President, Nokee Kwe Occupational Skills Development Inc. -
www.nokeekwe.caWe must be the change we wish to see in the world.  ~ Mahatma
Gandhi

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