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NATIONAL EB AWARENESS WEEK - please pass this on!   Message List  
Reply | Forward Message #3791 of 3818 |
Hello, all -

Please see updates for events, tools and resources for ways that you
can promote EB awareness during our special week, at
www.ebrelay.org. Funds will be raised for DebRA of America, EBMRF,
DebRA Canada and DebRA Mexico. Here are updates, ways that you can
participate!

EVENT LIST / TOOLS / RESOURCES

PLEASE PARTICIPATE!
(Our Oct. 18 Utah event reports great success!)
Oct. 25-31 Real-time Event location list for USA/Canada/Mexico

CREATE EB AWARENESS BY...
signing up for FREE at SECOND LIFE and participating
in our online GLOBAL WAM2008 benefit.
SATURDAY, OCTOBER 25TH!
From 4 p.m. SLT until midnight
(SLT = Second Life Time/Pacific Time)
Music Alchemy Concert and Event Pavilion
on Persenickety Isle (253, 45, 22) or use this location-based link
Second Life 2008 EB Benefit
Music by Jaycatt Nico, Frogg Marlowe, Lyndon Heart,
Tone Uriza, Kyle Beltran and Trinala!
Contact in-world member/event host "Caeleigh Lamington."
See you there!

HELP EBMRF FUND EB RESEARCH BY...
Supporting McKay Daines' Bike-A-Thon Oct. 18 - Nov. 8
McKay is a youth who has worked with EB patients.
To earn his Eagle Scout rank, McKay has chosen
a Walk a Mile in My Shoes bike-a-thon event as his
service project, to benefit EBMRF.
To learn more or make a pledge, send an email to EAGLE SCOUT PROJECT.

CREATE EB AWARENESS BY...
downloading the press release and sending
it to your local media outlets - newspaper, TV, radio.
Also, send it to your mayor, your congressperson, etc.,
asking them to issue a public proclamation!
Press Release for Walk a Mile in My Shoes 2008

CREATE EB AWARENESS BY...
printing out this brochure.
Each file is one side of the tri-fold brochure.
Print out a stack, fold, and distribute them throughout our week!
Brochure outside
Brochure inside

CREATE EB AWARENESS BY...
having a public showing of this PowerPoint presentation.
At your Walk a Mile in My Shoes event, at the library,
at a hospital or university, this creates greater awareness!
National EB Awareness Week Presentation

BUY A T-SHIRT - PROFITS SPLIT DEBRA/EBMRF
WAM2008 T-shirt

OR SIMPLY COLLECT DONATIONS FOR ONE OF OUR COMMUNITY PARTNERS TO FUND
EB RESEARCH AND FAMILY PROGRAMS!
Be sure to put "Walk a Mile in My Shoes" on the check memo line and
envelope so our nonprofit charities can tally up our awareness week's
efforts!

FOR ALL OF THE LINKS, please go to the www.ebrelay.org website, and
thank you!

All the best,
Gena
gena@...




Wed Oct 22, 2008 4:06 am

ggruschovnik
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Message #3791 of 3818 |
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Hello, all - Please see updates for events, tools and resources for ways that you can promote EB awareness during our special week, at www.ebrelay.org. Funds...
Gena
ggruschovnik
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Oct 22, 2008
4:06 am
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