hi,
u can try putting aquaphor on the wounds rabout a minute or two before he gos
in the water. It helps the pain that is caused by the water stinging the
wounds. let me know if it helps.

Laily

thelutters <ernielutter@...> wrote:


thelutters <ernielutter@...> wrote: Date: Thu, 3 Aug 2006 08:57:25 -0700
(PDT)
From: thelutters <ernielutter@...>
Subject: Pain Control
To: TheNEBS@yahoogroups.com, EBcaregivers@yahoogroups.com,
ebfamilies@yahoogroups.com, EBLife@yahoogroups.com,
ebzone@yahoogroups.com, junctionaleb@yahoogroups.com,
butterflychildren@yahoogroups.com, Venus and Brad <bvandx@...>,
Madeline Weiner <debra.nurse@...>, ebpep@yahoogroups.com,
epidermolysisbullosa@yahoogroups.com, pac-web@yahoogroups.com,
Madeline Weiner <madeline.weiner@...>

I know I don't post much but our physician has been trying to work on this. We
are having pain issues anytime we move Trevor and during bath and dressing
changes. We have chronic wounds that have not healed for years. Some since
birth. Feet and hands are the worse. Any thoughts or feelings on this? We
haven't adjusted his morphine in several years. Anyone know a good pain
management consultant that would talk to our doctor? It is so hard seeing him
cry and hurt.

Also, does anyone that was at the conference, have any research or experience
with the gel morphine that is applied to the skin? Could an apothecary shoppe do
this? Once pain management doctors that talk to our physician, hear pediatric
and open wounds they don't want to do it? Please help. Thank you so much.

Holly Lutter (mom to Tyler EBfree 11 years old and Trevor JEB-H 7 years old)

Holly Lutter (mom to Trevor JEB-H 6 years old and Tyler EBfree 10 years old)

Holly Lutter (mom to Trevor JEB-H 6 years old and Tyler EBfree 10 years old)

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