Everyone - I heard from Madeline today and I want to pass on her
news. She has posted the following message at the DebRA website:

Dear Friends,

After over a decade of working with EB on more than a full time
basis, I have decided to take a bit of a break. I am thankful to
DebRA of America for providing me with the means and opportunity to
do the work I love so much. It has been an honor to represent our
organization and you, our patients, families and members.

My intention is to remain a helpful force to the EB population and to
continue to support DebRA of America. I am hoping my personal and
family commitments will be more manageable with a part-time schedule.

I will be consulting on a couple of exciting EB projects. National
Rehab, Inc., DebRA's long time sponsor and friend, wishes to enhance
the services and support it offers its EB clients, as well as others
in the EB community. They have asked me to work with them to build an
educational (EB) website and to help educate insurance companies
about the special needs of people with EB. RegeneRx
Biopharmaceuticals, Inc. has contracted with me to provide consulting
services as they take their new EB wound healing drug, Thymosin Beta
4, through clinical trials. I'll be balancing my 3-4 days a week work
schedule between these two projects, and spending time with my family.

I wish to extend my gratitude and warm wishes to each of you. Please
welcome the new DebRA Nurse Educator to our family. I ask you to
offer the support and assistance you've always given me. This will
afford her the same opportunity I've had for a successful, rewarding
work and life experience.

With kind regards and much love,

Madeline Weiner