Thanks Hon

So much is happening in my life right now I am getting quite overwhelmed but
it's been good and I'm so happy to see EB getting all this awareness. I am
happy to do whatever I can to help.




In a message dated 9/19/2005 2:13:29 P.M. Pacific Standard Time,
no_reply@yahoogroups.com writes:

Hey Cristina,

Glad you had a great time helping to spread awareness of EB, it's
about time that the general public aknowledge how dreadful this
condition can be. It still amazes how many people still don't know
or haven't even heard of Epidermolysis Bullosa. But I believe that
would change, as we sufferer's continue to make our voices herd.

I hope your keeping well, it's been awhile since I last spoke to you!
Keep in touch.

Take care for now,
God Bless
Hon







~Lots of Love~Gentle Hugs~Butterfly Kisses~And Special Wishes~

})i({ Cristina })i({

With skin as fragile as butterfly wings
Big brown eyes and a heart that sings
I'm small in size but not in hope
I continue to survive and cope
I use my wings to fly and soar
Isn't that what butterfly wings are for?

Visit my site: _www.ebinfo.homestead.com_ (http://www.ebinfo.homestead.com/)



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