Hi Hon,

We are doing okay. Still having problems with our windpipe closing up below the
trach but other than that we seem to be a happy little man. Sorry about your
eye. Man those really stink. I have heard they are one of the most painful
things you can have. Trev has had plenty.

I would be honored for you to use Trev's pictures. No problem at all. Let me
know if you need anymore.

Well better get my kiddos to bed. You take care.

Holly

"hon_w.rm" <no_reply@yahoogroups.com> wrote:
Hi Holly,

How are you? I'm doing alright except blistering on the eyes again
which is a pain, anyway I was wondering can I use one of the pictures
of Trevor for the DEBRA local intranet as I am working on the DEBRA UK
office intranet and I would like to remind the staff there why DEBRA is
here for, to help fund research and support for those affected with EB.

Please let me know as soon as possible as I would like to put it on
there as a visual reminder to all the staff.

With best wishes
Hon


--- In butterflychildren@yahoogroups.com, Holly <thelutters@s...> wrote:
> Pictures
> Just thought I would put some pictures out there. These are of
Trevor on Easter and on his birtday and one of Tyler. Hope you like.
>
http://pg.photos.yahoo.com/ph/ernielutter/album?.dir=/1b83&.src=ph&.tok=
phszc3CB.rf4zaTc
>
>
> [Non-text portions of this message have been removed]




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