Hi Holly and everyone else who reads this post,

I made you a moderator Holly, I don't know when I will be back in
Oklahoma it's been five years since I last went there lol, but I know
one day I will be back to see my friends.

Dee! I;m sorry I haven't talked to u in ages too! Yes there been
crazy moments lol but I think thats the best way to live life, is to
have some fun now and then, I saw Colin yesterday at home with his
wife, they both doing fine, tho busy with work n stuff still as nutty
lol as ever.

I got a DEBRA AGM meeting tomorrow, so I got to get going as I got a
3 hour drive down to Middlesex! Though have to wait for the paint to
dry first on the car! lol

I let you know if I see/use anymore different types of creams
dressings etc as they going to put some on display the the DEBRA AGM.

Speak to you all soon, take care

God Bless
Hon



--- In butterflychildren@yahoogroups.com, jadedgeneration
<no_reply@y...> wrote:
> It would be a good thing to have a mod who checks regularly...
there
> are still spammers and the like appearing now and again, I guess! I
> know this group has been on the brink of deletion more than once,
> but I for one don't ever want that... no matter how quiet it gets,
> there's always the fantastic hilarious archives to look though! :)
>
> --- In butterflychildren@yahoogroups.com, Ernie Lutter
> <thelutters@s...> wrote:
> > Hon,
> >
> > i just wanted to say, if no one else wants to be the moderator, I
> would be happy to.
> > Glad to hear from you Hon. You're one of my heros. We too
> enjoyed meeting you. Are you coming back any time soon? Talk to
> you later.
> >
> > Holly
> >
> > jadedgeneration <no_reply@yahoogroups.com> wrote:
> > *eyes pop out*
> >
> > Hon, wow! I've checked this group for the first time since...
> um... I
> > dunno, I don't stick around Yahoo much at all anymore either.
I've
> > been hearing stories about you from Colin now and again. As for
> > active members, well, I'm not so sure any exist when I look
> about...
> > but oh well... the group is ticking over on it's own (or someone
> must
> > be looking at it now and again, I know I'm not, really...)
> >
> > Anyway take care, good luck with the sky diving!
> > Dee
> >
> > --- In butterflychildren@yahoogroups.com, hon_w.rm
> > wrote:
> > >
> > > Hi everyone,
> > >
> > > Sorry it's litteraly been years since I last post anything on
> this
> > > group, there's no excuse really I just been a lazy sod!
> > >
> > > Anyway I would appreciate it if anyone of the active members
who
> > > would like to take control of this group to benefit other's and
> > > themselves with advice and treatments for EB as I don't
> regularly
> > > check groups anymore. So if you would like to become a
> moderator,
> > > please email me and I can change the settings to allow you to
> take
> > > control of this group.
> > >
> > > My first aim when I started this group with my friend Colin,
was
> to
> > > raise awareness and to give parents, sufferers and anyone else
> > > insterested, a place where they can discuss their experiences,
> > their
> > > treatments methods what works for them and what doesn't, ways
to
> > > improve life and overcome it's burdens.
> > >
> > > I just seen the pictures posted by the Lutter's and it brought
> back
> > > memories when I visited Trevor back in 2000 with my friend
> Connie.
> > > The years has flown past, and when I look back I don't know
> where
> > it
> > > has gone!
> > >
> > > I'm happy that Trevor is doing well, I knew his a fighther all
> > along
> > > since I first saw him blowing raspberries at me and Connie lol.
> > >
> > > I have been using new dressings lately which seems to improve
> the
> > > wound management to some degree, I don't know if you have tried
> > these
> > > but it's worth a try to see how your sons/daughters or yourself
> > with
> > > EB take to it:-
> > >
> > > Meplilex Transfer (its a thin dressing that has a soft sponge
> feel
> > > and lightleys sticks to the skin but not so that it hurts when
u
> > take
> > > it off!) It comes it different sizes and its rather expensive
> but
> > > it's worth it as it can stay on for a number of days depending
> on
> > how
> > > much the wounds exudes. If you have it on a number of days it's
> > best
> > > to soak it off when you want to replace it.
> > >
> > > Another dressings Im trying out now is one called:-
> > >
> > > ActiveformCool (the soothing hydrogel wound dressing) its part
> made
> > > of water and it's a gel type dressing, if you have wounds that
> are
> > > hot, because it's imflamed etc, you can leave this dressing in
> the
> > > fridge and then apply to the wound, and it will stay cool for a
> > while
> > > thus cooling the affected area.
> > >
> > > That's all for now.
> > >
> > > P.S Anyone like to sponsor me to do my skydiving challange in
> order
> > > to fundraise for DEBRA? yes.. I'm mad and it will hurt! lol
> >
> >
> >
> >
> >
> >
> >
>
_____________________________________________________________________
> _______________________
> > Butterfly Children Yahoo Group Home Page -
> http://groups.yahoo.com/group/butterflychildren
> > Email the group - butterflychildren@yahoogroups.com
> > Email the moderators - butterflychildren-owner@yahoogroups.com
> > EB websites: http://www.debra.org.uk - http://www.debra.org
> >
> >
> >
> > Yahoo! Groups Links
> >
> >
> >
> >
> >
> >
> >
> >
> >
> > [Non-text portions of this message have been removed]