It would be a good thing to have a mod who checks regularly... there
are still spammers and the like appearing now and again, I guess! I
know this group has been on the brink of deletion more than once,
but I for one don't ever want that... no matter how quiet it gets,
there's always the fantastic hilarious archives to look though! :)

--- In butterflychildren@yahoogroups.com, Ernie Lutter
<thelutters@s...> wrote:
> Hon,
>
> i just wanted to say, if no one else wants to be the moderator, I
would be happy to.
> Glad to hear from you Hon. You're one of my heros. We too
enjoyed meeting you. Are you coming back any time soon? Talk to
you later.
>
> Holly
>
> jadedgeneration <no_reply@yahoogroups.com> wrote:
> *eyes pop out*
>
> Hon, wow! I've checked this group for the first time since...
um... I
> dunno, I don't stick around Yahoo much at all anymore either. I've
> been hearing stories about you from Colin now and again. As for
> active members, well, I'm not so sure any exist when I look
about...
> but oh well... the group is ticking over on it's own (or someone
must
> be looking at it now and again, I know I'm not, really...)
>
> Anyway take care, good luck with the sky diving!
> Dee
>
> --- In butterflychildren@yahoogroups.com, hon_w.rm
> wrote:
> >
> > Hi everyone,
> >
> > Sorry it's litteraly been years since I last post anything on
this
> > group, there's no excuse really I just been a lazy sod!
> >
> > Anyway I would appreciate it if anyone of the active members who
> > would like to take control of this group to benefit other's and
> > themselves with advice and treatments for EB as I don't
regularly
> > check groups anymore. So if you would like to become a
moderator,
> > please email me and I can change the settings to allow you to
take
> > control of this group.
> >
> > My first aim when I started this group with my friend Colin, was
to
> > raise awareness and to give parents, sufferers and anyone else
> > insterested, a place where they can discuss their experiences,
> their
> > treatments methods what works for them and what doesn't, ways to
> > improve life and overcome it's burdens.
> >
> > I just seen the pictures posted by the Lutter's and it brought
back
> > memories when I visited Trevor back in 2000 with my friend
Connie.
> > The years has flown past, and when I look back I don't know
where
> it
> > has gone!
> >
> > I'm happy that Trevor is doing well, I knew his a fighther all
> along
> > since I first saw him blowing raspberries at me and Connie lol.
> >
> > I have been using new dressings lately which seems to improve
the
> > wound management to some degree, I don't know if you have tried
> these
> > but it's worth a try to see how your sons/daughters or yourself
> with
> > EB take to it:-
> >
> > Meplilex Transfer (its a thin dressing that has a soft sponge
feel
> > and lightleys sticks to the skin but not so that it hurts when u
> take
> > it off!) It comes it different sizes and its rather expensive
but
> > it's worth it as it can stay on for a number of days depending
on
> how
> > much the wounds exudes. If you have it on a number of days it's
> best
> > to soak it off when you want to replace it.
> >
> > Another dressings Im trying out now is one called:-
> >
> > ActiveformCool (the soothing hydrogel wound dressing) its part
made
> > of water and it's a gel type dressing, if you have wounds that
are
> > hot, because it's imflamed etc, you can leave this dressing in
the
> > fridge and then apply to the wound, and it will stay cool for a
> while
> > thus cooling the affected area.
> >
> > That's all for now.
> >
> > P.S Anyone like to sponsor me to do my skydiving challange in
order
> > to fundraise for DEBRA? yes.. I'm mad and it will hurt! lol
>
>
>
>
>
>
>
_____________________________________________________________________
_______________________
> Butterfly Children Yahoo Group Home Page -
http://groups.yahoo.com/group/butterflychildren
> Email the group - butterflychildren@yahoogroups.com
> Email the moderators - butterflychildren-owner@yahoogroups.com
> EB websites: http://www.debra.org.uk - http://www.debra.org
>
>
>
> Yahoo! Groups Links
>
>
>
>
>
>
>
>
>
> [Non-text portions of this message have been removed]