Hi Erin, I have just re read your email and realised your daughter has
Junctional with Pyloric atresia. My Neice Brogan also had the exact same
type. I have only ever met 2 familys on the internet who's child had the
exact same type. I know Junctional is quite rare but Junctional with pyloric
atresia is even rarer. Brogan lost her fught for life at 10 month old but I
do know of a girl who is approaching her teens with the same type.and is
doing extremely well. If you would like to talk at any time at all my email
is c.lively@... Brogan had lots of complications and if the
truth beknown she should have give up her fight many months before she did.
You can read her story at
http://ebworld.faithweb.com/ebkbrogan.htm
Please feel free to get in touch anytime.

Love Rachelle

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