Junctional Epidermolysis Bullosa with Pyloric Atresia she was 3
months old on the 14th, she is very uncomfortable.
Thans again, Erin
--- In butterflychildren@yahoogroups.com, jadedgeneration
<no_reply@y...> wrote:
>
> Hi Erin,
>
> What type of EB does the baby have? I can't offer you much advice
> personally, as I've never been around a baby with EB - just been
one!
> There are other mailing lists where there are parents who may be
able
> to advise you. I don't know if you're a member of any other lists,
if
> not I would recommend http://groups.yahoo.com/group/ebworld and if
> the baby has EB Simplex, also
> http://groups.yahoo.com/group/ebsimplex2 where the discussion is
> primarily about this type. I don't know of the lsist (if any) that
> are dealing only with other types.
>
> I hope those URLs work, it's been a while since I visited any other
> EB lists.
>
> Sorry I can't be of assistance.
> Dee
>
> --- In butterflychildren@yahoogroups.com, "jaeriah03"
> <jaeriah0325@h...> wrote:
> >
> > Is the a pacifier made for infants with EB?