Hi Erin,

What type of EB does the baby have? I can't offer you much advice
personally, as I've never been around a baby with EB - just been one!
There are other mailing lists where there are parents who may be able
to advise you. I don't know if you're a member of any other lists, if
not I would recommend http://groups.yahoo.com/group/ebworld and if
the baby has EB Simplex, also
http://groups.yahoo.com/group/ebsimplex2 where the discussion is
primarily about this type. I don't know of the lsist (if any) that
are dealing only with other types.

I hope those URLs work, it's been a while since I visited any other
EB lists.

Sorry I can't be of assistance.
Dee

--- In butterflychildren@yahoogroups.com, "jaeriah03"
<jaeriah0325@h...> wrote:
>
> Is the a pacifier made for infants with EB?