Dear friends,

it is mine very sad duty to tell you that little Harrison (15 months,
EBS-DM variant) passed away unexpectedly yesterday very possible due
to EB complications (breathing difficulties). Many of you met him
and his mommy Linda at the current conference and will for sure
remember him as a very happy baby despite the severity of his EB.
Linda and family are understandably still in shock and I was asked to
post the message.

I am personally devastated by this development since me and Linda
become very good friends during the last year and I loved Harrison
dearly. He was the most handsome and smart baby boy I ever met. He
will be missed very much by everybody who met him.

The mass for him will be tomorrow at ten and he will be laid to rest
on Thursday.

Dear Harrison if you watch me let me tell you again - I love you very
much !!!!!

Draha in Texas, friend of Linda Wong