-this is brilliant rachelle i am sure he knows he has helped a lot.i
am thinking of him constantly since the programme i am even
playing "don't stop me now" in the car.the programme got great
reviews here i don't know about money raised from it because there is
a post strike here and a smoking ban started today so people may be
focused on this also
kevin


-- In butterflychildren@yahoogroups.com, "RACHELLE" <c.lively@b...>
wrote:
> Hi freddie Just thought I'd share this article with you that
> appeared in the daily mirror.
>
>
>
> £170K IN MEMORY OF JONNY Mar 29 2004
>
> By Stephen White
>
> VIEWERS donated £100,000 in 12 hours after watching a TV show about
> a man whose skin fell off.
>
> In total, £170,000 was raised for charity Debra which terminally
ill
> Jonny Kennedy had devoted his life to.
>
> His brother Simon, 39, said: "This is a phenomenal amount of money.
> My only regret is that Jonny wasn't here to see it because raising
> this cash was his ambition in life."
>
> Jonny, 36, from Alnwick, Northumberland, died from skin condition
> epidermolysis bullosa last September.
>
> More than 4.6million viewers watched his life story - The Boy Whose
> Skin Fell Off - on Channel 4 on Thursday.
>
> Debra will use the cash to fund research into the condition.
>
> Model Nell McAndrew, who befriended Jonny, is running next month's
> London marathon to raise money for Debra.
>
> She said: "He was an incredible man, with more courage, spirit and
> sense of adventure than anyone I know."
>
>
> He'll be sitting up there clapping his hands don't you think.
> Best wishes Rachelle xxx