Hi Jen, welcome to the group. I'm afraid its really quiet hear with
next to no posters. I joined this group 4 years ago when my neice
was born with junctionel eb, but sadly she died after a long 10
month battle. The best place you can get advice on fundraising is on
the DEBRA UK web site.

http://www.debra.org.uk/

Good luck and do let me know how you get on. You can contact me on

c.lively@...

Love Rachelle.
--- In butterflychildren@yahoogroups.com, Jen Peters
<lovingmom372003@y...> wrote:
> Hi,
> I am a 37yo mom with two healthy kids...Luke is 18 months and my
daughter Tommi is 12 weeks. I am in the medical field yet had not
heard of EB until very recently. I would like to get involved in
ways additional to donating money.
> Any ideas? I have never been so touched as I am to see these
beautiful children go on to live the special life that they do.
> Please write back!
> Thanks, Jen Peters
>
>
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