Group Information- Members: 101
- Category: Support
- Founded: Dec 19, 1999
- Language: English
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Description
Welcome to Butterfly Children - raising awareness of Epidermolysis Bullosa - EB
The Butterfly Children have skins as fragile as a butterfly wing - skin so delicate and fragile that even the slightest touch can hurt. Please join and show your support.
This is a gathering place for people of all walks of life, and whether or not you've even heard of EB, you're welcome. Drop by, make yourselves at home, we're here for all. Stick some music on, get a cuppa, and grab a chair, or if you're like me, loll on the floor. Let's put the world to rights :)
Great to have you on board :) - hon_w.rm and castlering (founders); rash_1999_uk and pinky_lefty_revolutionary.(moderators)
PLEASE NOTE - we have no affiliation with DEBRA or any other EB organisation. Any enquiries about EB, treatments and issues relating should be forwarded to DEBRA and your doctor.
This site is a member of the Epidermolysis Bullosa WebRing.
To browse visit Here
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Birthday Reminder
Reminder from: butterflychildren Yahoo! Group http://groups.yahoo.com/group/butterflychildren/cal Happy Birthday Anne~Marie Saturday May 26, 2012 All Day (This
Posted - Thu May 24, 2012 11:55 pm
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Posted - Wed Mar 28, 2012 5:50 am
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Brogans anniversary, 2/4/2012, 12:00 pm
Reminder from: butterflychildren Yahoo! Group http://groups.yahoo.com/group/butterflychildren/cal Brogans anniversary Saturday February 4, 2012 12:00 pm - 1:00
Posted - Sat Feb 4, 2012 11:41 am
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Birthday Reminder
Reminder from: butterflychildren Yahoo! Group http://groups.yahoo.com/group/butterflychildren/cal Happy Birthday Heather Raine Saturday October 22, 2011 12:00
Posted - Fri Oct 21, 2011 11:41 pm
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Birthday Reminder
Reminder from: butterflychildren Yahoo! Group http://groups.yahoo.com/group/butterflychildren/cal Colin's birthday Tuesday September 13, 2011 All Day (This
Posted - Mon Sep 12, 2011 11:41 pm
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Message History
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