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Janine <janine9774@...> wrote:
I wish you luck. THank you for helping me. It is nice to talk to people that have been thru it already. I really do appreciate it. Janine
Brain Tumor <braintumorawareness@yahoo.com> wrote:im ona 5 day on 23 day off higher doage initally it was for 6 monts , now its a year the once a day dose you will take in conjunction with your radiation
Janine <janine9774@yahoo.com> wrote:yeah, mine is too. so, you are taking it once a week now?
Brain Tumor <braintumorawareness@yahoo.com> wrote:I am on Temodar June will be one year , you have to takeit in combination with anti nausea medicine , with your initial radiation you take it then you begin a temodar only cycle, thats what you take if your tumor is to be malignant mine was a grade 3so i started immediatedly
Janine <janine9774@yahoo.com> wrote:what chemo are you taking? they talked to me today about tremodar
Brain Tumor <braintumorawareness@yahoo.com> wrote:The thing about DIlantin is it changes the efficacy
and chemistry for any other medication taht you are
taking but I was seizure free on it then I went up to
about 10 pills a day so Keppra was the the only
option that will work well with other medication so
far i have had two grand mal while on keppra I am on
my final chemo treatment so I will look into changing
back to dilantin worked for me , you said you
werehaing surgery where is the tumor located?
--- Christine Hermes <knittinpal@gmail.com > wrote:
> I also was on Keppra , at first. Very "loopy"
> feeling. Then, I had 5 Grand
> Mal seizures on it and they have switched me to
> Dilantin and I have been
> fine. Ask if you can take it at night before bed.
> Christine Hermes
> AA3, Frontal Lobe
> Surgery, Radiation, Chemo
>
> On 5/23/07, Brain Tumor
> <braintumorawareness@yahoo.com > wrote:
> >
> > Hello janine my first anti seizure medication
> was dilantin which they
> > phased out then switched to keppra yes I wa
> sknocked out too the first tiem
> > i took it , what dose are you on ?
> > I started with 1 gram had a couple seizures after
> that and they upped the
> > dose to two grams I have days taht I am super
> tired just get plaenty of rest
> > and take it easy visist my site
> www.braintumorawarenessplate. com
> >
> >
> > *Janine <janine9774@yahoo.com >* wrote:
> >
> > I am 32 years old and live in the Tampa, Fl area.
> I too was just
> > diagnosed with a grade 3 malignant brain tumor 2
> weeks ago.
> > Anaplastic Astrocytoma. I have seen the
> NeuroOncologist and am waiting
> > on a surgery date. I was started on Keppra and
> took my first dose
> > today. Has anyone been on this medication? My
> first dose knocked me
> > out and I have felt drugged all day. I was
> wondering how anyone else
> > has had a similiar reaction.
> >
> >
> >
> >
> > *Please visit our website*
> > www.braintumorawarenessplate. com
> >
> >
> > Shape Yahoo! in your own image. Join our Network
> Research Panel today!
> > http://us.rd.yahoo.com/ evt=48517/ *http://surveyli
> > nk.yahoo.com/gmrs/yahoo_ panel_invite. asp?a=7 hot
> CTA = Join our Network
> > Research Panel
> >
> >
> >
>
Please visit our website
www.braintumorawarenessplate. com
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