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Reply | Forward Message #44 of 67 |
Re: [braintumorawareness] New member

I am on Temodar June will be one year  , you have to takeit in combination with anti nausea medicine , with your initial radiation you take it then you begin a temodar only cycle, thats what you take if your tumor is to be malignant mine was a grade 3so i started immediatedly

Janine <janine9774@...> wrote:
what chemo are you taking? they talked to me today about tremodar

Brain Tumor <braintumorawareness@yahoo.com> wrote:
The thing about DIlantin is it changes the efficacy
and chemistry for any other medication taht you are
taking but I was seizure free on it then I went up to
about 10 pills a day so Keppra was the the only
option that will work well with other medication so
far i have had two grand mal while on keppra I am on
my final chemo treatment so I will look into changing
back to dilantin worked for me , you said you
werehaing surgery where is the tumor located?
--- Christine Hermes <knittinpal@gmail.com> wrote:

> I also was on Keppra , at first. Very "loopy"
> feeling. Then, I had 5 Grand
> Mal seizures on it and they have switched me to
> Dilantin and I have been
> fine. Ask if you can take it at night before bed.
> Christine Hermes
> AA3, Frontal Lobe
> Surgery, Radiation, Chemo
>
> On 5/23/07, Brain Tumor
> <braintumorawareness@yahoo.com> wrote:
> >
> > Hello janine my first anti seizure medication
> was dilantin which they
> > phased out then switched to keppra yes I wa
> sknocked out too the first tiem
> > i took it , what dose are you on ?
> > I started with 1 gram had a couple seizures after
> that and they upped the
> > dose to two grams I have days taht I am super
> tired just get plaenty of rest
> > and take it easy visist my site
> www.braintumorawarenessplate.com
> >
> >
> > *Janine <janine9774@yahoo.com>* wrote:
> >
> > I am 32 years old and live in the Tampa, Fl area.
> I too was just
> > diagnosed with a grade 3 malignant brain tumor 2
> weeks ago.
> > Anaplastic Astrocytoma. I have seen the
> NeuroOncologist and am waiting
> > on a surgery date. I was started on Keppra and
> took my first dose
> > today. Has anyone been on this medication? My
> first dose knocked me
> > out and I have felt drugged all day. I was
> wondering how anyone else
> > has had a similiar reaction.
> >
> >
> >
> >
> > *Please visit our website*
> > www.braintumorawarenessplate.com
> >
> >
> > Shape Yahoo! in your own image. Join our Network
> Research Panel today!
> > http://us.rd.yahoo.com/evt=48517/*http://surveyli
> > nk.yahoo.com/gmrs/yahoo_panel_invite.asp?a=7 hot
> CTA = Join our Network
> > Research Panel
> >
> >
> >
>

Please visit our website
www.braintumorawarenessplate.com


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Fri May 25, 2007 11:43 am

braintumoraw...
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Message #44 of 67 |
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Hello janine my first anti seizure medication was dilantin which they phased out then switched to keppra yes I wa sknocked out too the first tiem i took it ,...
Brain Tumor
braintumoraw...
Offline Send Email
May 23, 2007
6:54 pm

I also was on Keppra , at first. Very "loopy" feeling. Then, I had 5 Grand Mal seizures on it and they have switched me to Dilantin and I have been fine. Ask...
Christine Hermes
shteeni
Offline Send Email
May 24, 2007
10:58 am

The thing about DIlantin is it changes the efficacy and chemistry for any other medication taht you are taking but I was seizure free on it then I went up to ...
Brain Tumor
braintumoraw...
Offline Send Email
May 24, 2007
6:56 pm

yeap that where mine was located there are some pics on my site of the mri right occipital lobe. it seems to be a little better today. i am on my 3rd day. i...
Brain Tumor
braintumoraw...
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May 25, 2007
2:07 am

I am on Temodar June will be one year , you have to takeit in combination with anti nausea medicine , with your initial radiation you take it then you begin a...
Brain Tumor
braintumoraw...
Offline Send Email
May 25, 2007
11:43 am

im ona 5 day on 23 day off higher doage initally it was for 6 monts , now its a year the once a day dose you will take in conjunction with your...
Brain Tumor
braintumoraw...
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May 25, 2007
5:17 pm

IT will be alright my wife have been my caretaker through all this its hard tomanage all the pills and the appointments seems like everything goes by so fast ...
Brain Tumor
braintumoraw...
Offline Send Email
May 29, 2007
10:49 am
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