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Welcome to the group Bruce - we're glad you've joined us. You are definitely right, we need to raise awareness and funds for research. We hear so much about breast cancer and colon cancer - we need people to talk about this to find the cure that all of us impacted by a brain tumor hope for. The possibility of reocurrance is always in the back of our mind, but it's good that we are a community that focuses on us as a whole and we are trying to do something positive.
We will chat soon.
Dale
ependymoma_bruce <brub58@...> wrote:
ependymoma_bruce <brub58@...> wrote:
Hello everyone;
A short introduction...
I was diagnosed and treated for a 4th ventricle ependymoma in
January, 1995. I spent 3 months in the hospital where I "enjoyed"
the craniotomy, radiation, pneumonia, DVT, urinary tract infection,
and other things (I don't have much of a memory anymore).
I am left with pretty poor gait (I keep a cane in my car),
double vision (corrected by prism glasses), poor memory,a scar in
the back of my head that is perfect for halloween, multi-colored
hair (thanks to the radiation),reduced hearing and the constant
worry of that ever-possible recurrance.
In the years since my ordeal, I have done many things to
heighten the awareness issue. Just the other day I found out about
this group, and - here I am!
My ultimate desire is to see a cure for this beast in my
lifetime. I believe the best pathway to this goal is through
awareness. Simply put, the greater the general public is, the
greater the public outcry, hence the more research dollars spent,
resulting (hopefully) in a cure.
That pretty much sums up where I am now.
Bruce
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