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bluerollersppssupport · BlueRoller's PPS Support - Post Polio Syndrome (PPS) Support
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Reply | Forward Message #183 of 522 |
Re: [BlueRoller's PPS Support] (no subject)

Dear Becky, How did your appointments go? Any news?

The post polio clinic around here is 2 hours away, so I haven't been
there yet either. Glad you found something about Feldenkrais though. I
hope you will get some help and improvement soon. It is much better with
private lessons...

Outlets are fun, but it is exhausting to go see them. They do tend to
have benches to rest on. We have a place called the Great Mall, in
Milpitas, about 30 minutes away. It is huge because it used an old auto
assembly plant. They have massage chairs where you put in $1 for a one
minute massage! It feels good, but then I have to un-relax to get myself
moving again. I don't get there often.

My mom hurt her back, but she is getting better. She is getting really
good at using her walker (finally after years of working with her!) She
still decides where she wants to go with it. After you find out which
stores you like, it will be easier.

There is an outlet mall here in Gilroy, about an hour away. It was one
of the earlier ones. It has 4 sections now with drive up parking and many
handicap spots. I would rather go there than to the closer Great Mall
that is so much walking with parking far away from the stores.
Fortunately I can still fit some my old clothes (which are wearing out!)
so I don't HAVE to go shopping yet.

I used to sew my own clothes, but then Wal*Mart had comfortable ones at
good prices. They also don't make the materials I used to use any more
either. I had black vertically quilted cotton pants for winter for many
years. Now too many people want fleece or polyester or colorful pastel
quilted patterns that are not so good for pants. I have been colder this
year... Take Care,
Sharis

[Non-text portions of this message have been removed]




Sun Apr 2, 2006 11:44 pm

swoods568@...
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Message #183 of 522 |
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bluerollersppssupport@yahoogroups.com [Non-text portions of this message have been removed]...
Ekenney1@...
Send Email
Mar 22, 2006
3:41 pm

Hello, Does anyone have any info on pain management meds? My DR. has me on a pain med but is not really informed about the chronic pain associated with PPS....
michael brandon
msbpacific
Offline Send Email
Mar 22, 2006
3:47 pm

Try talking to the people at IPPSO chat. They have a lot of people who have been on pain meds for a long time. ... ...
jack wesley
jackay_boy
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Mar 23, 2006
5:21 am

HI JACK, PATTY W HERE, I WAS A POLIO VICTIM , WAS ON CELEBRIX (MISPELLED) LONG TIME, WENT HOME TO MICHIGAN ON VACATION, ABOUT HEMORAGED TO DEATH FROM IT.NOW I...
BILL AND PATTY WHITTA...
STUB@...
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Mar 23, 2006
3:53 pm

Hi Patty I am not to be seen as a Medical Expert on PPS in anyway, and any information I pass along is from my experience only as a polio survivor, information...
jack wesley
jackay_boy
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Mar 23, 2006
7:24 pm

I think this mail was directed. Jack? [Non-text portions of this message have been removed]...
Ekenney1@...
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Mar 23, 2006
4:19 pm

Hi Patty, Have you tried Feldenkrais Therapy? It can help you move more efficiently and effectively. It takes less energy and reduces my pain. 'Polios'...
Sharis J Woodard
swoods568@...
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Mar 23, 2006
11:31 pm

... worth the ... It is ... before. Becky...
Rebecca
garfieldmamma56
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Mar 24, 2006
10:57 pm

Hi Patty, Can you help. I am getting so many e-mails re: Post Polio and Polio. When I signed up for BlueRoller I thought the messages would go to a bulletin...
Ekenney1@...
Send Email
Mar 25, 2006
1:25 am

Dear Becky, Feldenkrais Therapy is like the ultimate physical therapy. It is a little like massage and also trains you to move slowly and carefully and...
Sharis J Woodard
swoods568@...
Send Email
Mar 25, 2006
12:38 pm

Hi Sharis I will look into this. I will do anything to help my post polio. I'm still able to walk on my on, but I do have a knee brace on my left knee and a...
Becky Lovell
garfieldmamma56
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Mar 25, 2006
1:10 pm

Dear Becky, Glad you can still walk on your own. I have 2 canes, an AFO, a shoe lift, 3 pillows, and a backpack to carry them all in; but I am still doing...
Sharis J Woodard
swoods568@...
Send Email
Mar 25, 2006
1:59 pm

Dear Sharis, I have a cane and a walker that I'm suppose to use but I keep fighting at giving into them. I also have a shoe lift that sometime I think I need...
Becky Lovell
garfieldmamma56
Offline Send Email
Mar 25, 2006
4:45 pm

Dear Becky, I know what you mean about doctors who won't listen! They judge by 'average' and have no idea how hard we work at looking normal. Is there a...
Sharis J Woodard
swoods568@...
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Mar 26, 2006
5:15 am

Dear Sharis, I live in the northeast corner of Akansas and I haven't heard of any post polio clinics, but it sure would be nice. My neruo says medicare wwants...
Becky Lovell
garfieldmamma56
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Mar 26, 2006
2:36 pm

Dear Becky, I saw the post polio clinics on a link from the original post polio site on the web. I am sorry that your doctors don't understand your case....
Sharis J Woodard
swoods568@...
Send Email
Mar 27, 2006
12:13 am

Hi Sharis, I looked on google for post poilio clinics in AR and cant you believe that there is none the closes dactor is in Salem AR about an hour drive from...
Becky Lovell
garfieldmamma56
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Mar 27, 2006
3:07 pm

Dear Becky, How did your appointments go? Any news? The post polio clinic around here is 2 hours away, so I haven't been there yet either. Glad you found...
Sharis J Woodard
swoods568@...
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Apr 2, 2006
11:46 pm

I haven't had my appointment with m ortho till the 14th of this month . I'm suppose to see my family doctor th 27 , but I had to go to er for my headache and...
Becky Lovell
garfieldmamma56
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Apr 3, 2006
8:17 pm

Dear Becky, Thanks for the information. I thought you had already been to the family doctor. Glad to have a firmer schedule. Sorry you had to go to the ER...
Sharis J Woodard
swoods568@...
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Apr 4, 2006
5:32 am

Dear Sharis, No I spent tweo weeks going to my neruo and rhem doctors. My neruo dr. says medicre will only give me a maneul wheelchair because they want you...
Becky Lovell
garfieldmamma56
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Apr 4, 2006
4:07 pm

Dear Becky, What is a rhem doctor? Sorry to hear that you have a problem with your rotator cuff. My best friend had operations to undo both her frozen...
Sharis J Woodard
swoods568@...
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Apr 5, 2006
7:37 am

Hi Sharis, Sorry it has talen so long to write back. We have had two to three days of bad weather . Then on Thrusday I had to go to my family doctor and she...
Becky Lovell
garfieldmamma56
Offline Send Email
Apr 8, 2006
4:56 pm

Dear Becky, Sorry about your bad weather. The Weather Channel shows that you were it pretty hard. Glad you got to your doctor and found you do not have...
Sharis J Woodard
swoods568@...
Send Email
Apr 8, 2006
9:41 pm
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