I had polio in 52 at age 13 months. Wore a leg
brace all my life, but walked swam, rode a bike,did a
35 mile walkathon at age 15, water-skied, Carried
music equipment as a mobile DJ, went to the gym etc.
Worked to jobs, 6- 7 days per week and up to 16 or more
hours in a day mostly on my feet. I was diagnosed with
PPS in 1990,and as was my style fought back with a
vengence ( no wheelchair for me!) <br>I went back to the
Gym, pool and took electrical stimulation with physio,
kept up all my activities, increased my walking, 2
miles/day and continued working 12- 16 hours a day 6 days a
week. DON'T DO IT. Each year I got weaker, gradually
and un-noticebly for the most part. A few more
stumbles and falls here and there, occasional overwhelming
tiredness which I did not relate to the PPS. <br>Last year
I went to VEGAS, walked everywhere and came home to
unbelievable fatigue. For a month I could barely get up many
days. I could't think straight and could not do my job
which by now only involved sitting. I couldn't
concentrate to study at night and could not do the lightest
yard work. <br>As I was sitting at home unable to go
to work I used the internet and found a lot of info
on PPS and the pieces started to fall into place. I
wasn't crazy and what the Dr. had warned 10 years
earlier was only the tip of the iceberg. Fortunately I
found groups like PRYS and this one where info is
shared and I could start to understand the changes that
were taking place in my body over the years of
overuse. <br>If you are more active than the average
polio, I believe you will fall harder. As Dr. Bruno
says, every muscle in your body was affected but the
ones with 60% fibres remaining, seem normal, FOR A
TIME. <br>Don't kid yourself, I use an electric scooter
today and can barely walk around the house. My arms
ache ,my back aches etc.I am tired most of the time
and my doctor says I won't work much longer. CUT BACK
NOW. Once the nerves die, they are gone FOREVER,
OVERUSE MAKES IT WORSE. <br>Cheers keep well and pace
yourself, please <br>Your friend in pain (peacefully at
last b/c I understand the source) <br>WES