THANK YOU, YES, LEARNING SLOW , BUT SURELY, I'AM FROM THE CLASS OF 69, I
MISS WORKING, MOSTLY BEING AROUND PEOPLE, GOT A GOOD HUSBAND, HELPS ALOT!
THANK GOD, LUCKY THERE..I SWIM TO TRY AND KEEP IN SHAPE, IF I DO TO MUCH,
LIKE YOU DRAGS ME DOWN, SO THEN I NAP.. I COULD SLEEP ALL DAY, TRY AND GET
UP AND DO STUFF, THATS ALL WE CAN DO IQUESS, THANKS FOR ANSWERING, HOLLER MY
WAY WHEN YOU GET THE CHANCE, I SELL STUFF ON EBAY TOO! GONNA GO SELL
SOMETHING, KEEPS ME BUSY LATER PATTY..

-------Original Message-------

From: jack wesley
Date: 01/21/06 16:54:37
To: bluerollersppssupport@yahoogroups.com
Subject: Re: [BlueRoller's PPS Support] pps hey jack,

Hi Patty
I am sorry I have taken so long to get back to you,
but today is one of my "bad" days, which I am sure you
will understand.
First, let me say that Post Polio Syndrome is becoming
known throughout the world as a chronic Illness. For
years people did not know what caused all their
problems, and Drs knew even less.
Until about 5 years ago I was working in the oil and
gas Industry in Alberta, supplying parts and service
for large Natural Gas Compressors.
I did very well at my job, but I started having
problems with my legs suddenly giving out from under
me. I wasnt sure what to make of this, but the
furthest thing in my mind was that it was related to
the Polio I had as a child. My case was severe, as I
was totally paralyzed from my neck to my toes. I spent
almost 2 years in an Iron Lung.
However with lots of exercising and physio therapy, I
managed to come back to lead a semi normal life.
Well as time went on, i started to have even more
problems than just my legs giving out on me, as it
affected my back and shoulders as time went on because
I was pushing myself so hard.
My Drs,( and I had lots of them,) had no idea what was
happening to me, and one even suggested this could be
the beginning stages of M.S.
Well I finally found a Dr in Edmonton that knew all
about this PPS, and he dropped the bombshell on me
that I was receding back to my young age when I had
polio.
As it turns out, the nerves in your spine that control
all of the movements in all of your body, are getting
tired out and dying off from doing double duty making
up for the nerves or nuerons that were killed off from
the original attack of the polio virus.
I was told that the harder I pushed my body to do
anything stressful to my muscles, the faster the
remaining Nerves would die off.
Well today I am now in a wheelchair, or use my scooter
to get around, as I was in denial about having this
Post Polio Syndrome.
I continued to work until I could barely get in or out
of my truck, and did serious damage to the remaining
nerves in my spine.
If I had listened to my Dr when he told me to quit
work, I might still be walking today. However as you
probably know all of the people that had Polio are of
a Type A personality. We worked harder, and longer
than others would,as we needed to prove we did not
have a handicap.
There are many theories going around about PPS,
including one that claims we still have the polio
virus in our spines, but it has been laying dormant
for many years, and is now starting to raise its ugly
head again.
Personally I think we are pushing our bodies way too
hard and are further inflicting damage to our already
damaged spinal nerves.
So, my advice to all the people I talk with about
this, is to conserve to preserve. Do NOT under any
circumstances push yourself to do something that makes
you hurt. Get lots of rest, and see a Dr that knows
about PPS to get onto an exercise regime, get the meds
you need, and by all means listen to what he has to
say. I wish I had 5 years ago, but now I am paying the
price.
How bad will this get? No-one knows. Will you end up
in a wheelchair? To this I give a resounding yes as an
answer.
Can you put this off for a few years? By all means
yes, just dont push yourself so hard you are hurting
what nerves you have left. Most importantly, get lots
of rest and take naps when you are tired. You will be
amazed at what a difference this will make.
This is just a very short explanation of PPS, but if
you need to ask any further questions, please do not
hesitate to send me an e-mail, and I will get back to
you asap.
Until then I send my Regards as a fellow PPSer ( Class
of 49 )
Jack


--- BILL AND PATTY WHITTAKER <STUB@...>
wrote:

> HI, PATTY HERE CAN I GET SOME INFO ON THE PPS, I'VE
> POLIO, WORKED ALL MY LIFE BUT NOW I HURT.. RETIRED
> OUT ON DISABILITY TOO., MY SISTER HAD POLIO TOO, WE
> LOST HER THREE YEARS AGO, DOCTORS I GO TO CAN'T
> HELP..
>
> [Non-text portions of this message have been
> removed]
>
>


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