Hi Roger, Denial was one of my biggest problems - still is. with all of
your diagnosis it sounds like you must have a good Dr. Are you near a PPS
specialist? I went to PPS institute in NJ. I would still be doubting
everything if I had not gone there. I also worked for 30yrs and did
wonderful things - now I am not working and trying to hold back, slow down,
stop over doing to try and save whay I have left. Ican still walk but I use
my power chair for distance. I have a brace on my right leg now. As much as
I hate the brace it DOES help me walk better - shoes last me months........
I do not wear thme over on side. And as much as I said I WOULD NEVER use a
chair - I cant imagine not having it now! I still try to mentally hide the
pain and fatigue( ignore that it is there) I still will try to do things
that I know I shouldnt and then pay for it later, but not as bad as before.
I still have days when I think the Drs must be wrong but belonging to
several online PPS groups hearing others relay all there problems and
sounding like I had said what they were saying I know it
is really real and something I am going to have to deal with. I was
diagnosed at 40ish and am 50 now. I did really ignore it for the first 6 or
7 yrs then I got to really feelin bad enough to in my head know something
was wrong ( still wouldnt admit PPS) over a course of the last 3 or 6 yrs I
went to numerous Drs looking for an answer that I wanted to hear. ( "take
this 1x a day and u will be cured") didnt happen. When I went to PPS
clinic in NJ. Dr.B and Dr Z. kind of made me sit down and
LISTEN............. since then I got my leg brace, got my power chair, and
now am not working.
Do I feel better??????? somedays I can actually say yes I feel good today.
But I still have to listen to my body more - If it causes me pain/fatigue -
DONT DO IT. " Conserve to preserve " It is not an easy thing to do for a
type A personality which most of us polios are but if I want to be able to
hold a grandbaby in my aarms someday and rock her to sleep I need to save
what I still got. My neices and nephews think I am a real cool aunt now
with my power wheels cause i can do a wheelie! lol well I have talked to
much and typed too much arms are hurting
have a pain free day,patti





>From: rogerreed4 <no_reply@yahoogroups.com>
>Reply-To: bluerollersppssupport@yahoogroups.com
>To: bluerollersppssupport@yahoogroups.com
>Subject: [BlueRoller's PPS Support] pain
>Date: Thu, 11 Nov 2004 15:39:43 -0000
>
>
>I need somebody to describe how they feel with post-polio.Describe
>the pain and where it usually is and all other syptoms.For some
>reason I can't except the fact that I've had polio.They say,I had
>polio around 18months old.I had it very bad.Now I'm dianogised with
>post polio,fibromyalgia,wore out jionts,wore out knees,o/a,40 degree
>scoliosis in the thorcsic area,mild scoliosis in the lumbar,ddd,I
>also lossed alot of muscle in my left leg.I have server pain down
>right leg and grion area for seven years.I've got weakness and
>fatiqued.I have swollen ankles and a pain in my lt. hip so bad when
>I walk up or down hills that I can't hardly stand it.I'm 45yrs. old
>and wore out.I worked almost 30yrs.in a factory on production jobs
>8,10,12hrs. now i can't hardly mow my grass.I need someone to
>explain how they feel.I have to wear socks to bed at night to keep
>my feet from freezing off.
>
>
>