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bluerollersppssupport · BlueRoller's PPS Support - Post Polio Syndrome (PPS) Support
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Re: [BlueRoller's PPS Support] pain   Message List  
Reply | Forward Message #107 of 522 |
HI ROGER, SOUND LIKE ALOT OF US, I'AM NOT QUITE 55 BUT LIKE YOU, WORKED
RETAIL ALL MY LIFE 30-35, WORE BRACES UNTIL ABOUT 12 , HAD SURGERY ON BOTH
LEGS, NOW MY ARMS, LEGS, NECK BACK ALL ACHE ALL THE TIME, YOUR FEET GET SO
COLD BECAUSE OF BAD CIRULATION, HANG IN THERE, GO TO DOCS, TAKE ONE DAY AT A
TIME AND DRESS WARM..YOU WILL HURT, I'VE LEARNED THAT SWIMMING HELPS ME,IS
MOST OF MY EXERCISE..BEST WISHES PATTY

-------Original Message-------

From: bluerollersppssupport@yahoogroups.com
Date: 11/11/04 10:39:47
To: bluerollersppssupport@yahoogroups.com
Subject: [BlueRoller's PPS Support] pain


I need somebody to describe how they feel with post-polio.Describe
the pain and where it usually is and all other syptoms.For some
reason I can't except the fact that I've had polio.They say,I had
polio around 18months old.I had it very bad.Now I'm dianogised with
post polio,fibromyalgia,wore out jionts,wore out knees,o/a,40 degree
scoliosis in the thorcsic area,mild scoliosis in the lumbar,ddd,I
also lossed alot of muscle in my left leg.I have server pain down
right leg and grion area for seven years.I've got weakness and
fatiqued.I have swollen ankles and a pain in my lt. hip so bad when
I walk up or down hills that I can't hardly stand it.I'm 45yrs. old
and wore out.I worked almost 30yrs.in a factory on production jobs
8,10,12hrs. now i can't hardly mow my grass.I need someone to
explain how they feel.I have to wear socks to bed at night to keep
my feet from freezing off.





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Thu Nov 11, 2004 4:04 pm

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Message #107 of 522 |
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HI ROGER, SOUND LIKE ALOT OF US, I'AM NOT QUITE 55 BUT LIKE YOU, WORKED RETAIL ALL MY LIFE 30-35, WORE BRACES UNTIL ABOUT 12 , HAD SURGERY ON BOTH LEGS, NOW MY...
BILL/PATTYWHITTAKER
STUB@...
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Nov 11, 2004
4:06 pm

Hi Roger, I am 58 years old. I had bulbar polio from ages 4-7. Over the last 10 years, I had severe pain in my neck, shoulders, knees and the lower back. ...
John M Kibalo
jmkibalo@...
Send Email
Nov 12, 2004
12:36 pm

Hi Roger, Denial was one of my biggest problems - still is. with all of your diagnosis it sounds like you must have a good Dr. Are you near a PPS ...
Patti Gross
cobaltt72
Offline Send Email
Nov 12, 2004
3:21 pm
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