sorry marriane - i guess the emails got mixed up! the first one i got they
said they were 28 yrs old and had polio at age 5! I copied the other 2
groups on the email I returned to you. ill copy again so the email adresses
are in the heading for you. Sounds like you have had it pretty rough
lately. i hope you have a better day tomorrow. I am here when you feel
good enough to chat.
have a pain free day,patti


>From: "marianne richards" <mariannerichards@...>
>Reply-To: bluerollersppssupport@yahoogroups.com
>To: <bluerollersppssupport@yahoogroups.com>
>Subject: Re: [BlueRoller's PPS Support] new member
>Date: Fri, 24 Sep 2004 14:51:44 -0400
>
>Hi Patti
>
>I'm 66yrs. old, dear,,,not young. I had polio at 2 in 1940 and have 13
>corrective surgeries. Did well for many years...kept up with the
>Jone's..you know what I mean.
>
>Can you send me links to the pps support groups?
>
>I am not yet in a wheelchair, but am fatigued and in pain. My neck is
>disentigrating !Spondylosis" as well as my lower back.
>
>Had lung cancer two years ago and am now in remission. All the
>chemo/radiation took the starch out of me as well. My husband had throat
>cancer the year before I was diagnosed and talkswith an electronic device.
>
>My neck is too bad to continue. Take care, and I hope to stay in
>touch...mariannerichards@...<mailto:touch...mariannerichards@...>
> ----- Original Message -----
> From: Patti Gross<mailto:cobaltt72@...>
> To:
>bluerollersppssupport@yahoogroups.com<mailto:bluerollersppssupport@yahoogroups.\
com>
> Cc: InfoPolio@yahoogroups.com<mailto:InfoPolio@yahoogroups.com> ;
>post-polio@yahoogroups.com<mailto:post-polio@yahoogroups.com>
> Sent: Friday, September 24, 2004 11:16 AM
> Subject: Re: [BlueRoller's PPS Support] new member
>
>
> Good morning marriane,
>
> hope you are feeling ok today. So you didnt tell me .... however did
>you
> get polio?? you are so young! most people in our groups are 45 and
>older!
> I belong to two yahoo groups that are much more active - infopolio and
> post-polio. you should try to sign up on those. i hardly ever get
>emails
> from blueroller. i got my the polio paradox book from amazon.com but
>i am
> sure you could order from any bookstore. what were you in chemo for?
>do
> you have an appt for dr.b yet? maybe you can have a stop over in
>buffalo
> and we can do lunch!! lol how bad did the poilo effect you? For me
>i
> thought it was just my right leg. led a fairly normal life - just
>slower
> and gimpy. but i still tried to do everything. ballet was definetly
>out!
> lol the past 10yrs since i was diagnosed with pps has been a very slow
> pregression down hill. the last three years being a much more rapid
> decline. to the point i am not working now and try to keep my butt in
>my
> power chair instead of walking. i still have a very tough time saying
>NO to
> people when they want to go do stuff. i have been doing STUFF for
>50yrs!!
> why stop now! lol but i really have to cause it causes me so much more
> pain/discomfort/fatigue when i do to much. just this typing is hurting
>my
> arms and back right now casue i am sitting up instead of laying down.
>(its
> much harder to type laying down) so i guess that means i should take a
> break from this!!
>
> have a pain free day,patti
>
>
>
>
> >From: "marianne richards"
><mariannerichards@...<mailto:mariannerichards@...>> Reply-To:
> >bluerollersppssupport@yahoogroups.com To:
>
>
><bluerollersppssupport@yahoogroups.com<mailto:bluerollersppssupport@yahoogroups\
.com>>
>Subject: Re: [BlueRoller's PPS
> >Support] new member Date: Mon, 20 Sep 2004 21:01:09 -0400
> >
> >HI~~~I was so thrilled to see something from PPS. I have it and am
>just
> >amazed at how our symptoms are identical. Please email me and tell me
>more
> >about Dr. Bruno's book and where I can get it. My symptoms were
> >intensified during and since chemo and radiation. The dr. said it was
> >because my"Neurons" didn't repair themselves as quickly as someone's
>who
> >didn't have polio. Made sense!
> >
> >I know we are fighters...and I now am forced to take life easier. I
>take
> >care of myself more than ever since learning our need to be like
>everyone
> >else doesn't matter anymore. Love you guys and want to share emails
>with
> >you and learn more. Marianne
>
>
>mariannerichards@...<mailto:mariannerichards@...<mailto:mariannerichard\
s@...>>
> ----- Original
> >Message ----- From: Patti
>Gross<mailto:cobaltt72@...<mailto:cobaltt72@...>> To:
>
>
>bluerollersppssupport@yahoogroups.com<mailto:bluerollersppssupport@yahoogroups.\
com<mailto:bluerollersppssupport@yahoogroups.com>>
> > Sent: Thursday, September 16, 2004 11:06 AM Subject: RE:
>[BlueRoller's
> >PPS Support] new member
> >
> >
> > dear PG, wow - you are so young............ i thought polio was
> >erradicated (sp) by the 70's. Dr Bruno is great. He and Dr Zimmerman
>are
> >who i went to see. Please see someone soon the pain in your leg
>could
> >be anything - not nesscarily PPS. My PPS is pain all over my body -
>kind
> >of like bad case of the flu and severe fatigue and joint and muscle
> >pains. It pretty much makes me feel crummy most of the time but us
> >polios have learned how to fight thru the pain and thats what has
>gotten
> >our motor neurons all worn out. we need to " preserve to conserve"
>what
> >we have left. get Dr brunos book - Polio Paradox and read it - it is
>very
> >informative. Do you have a appt yet? are you working? where did the
> >polio affect you? how did you get it in the 70s? from the vaccine?
> >have a apin free day,patti
> >
> >
> > >From: "pgmhpers"
><pgmhpers@...<mailto:pgmhpers@...<mailto:pgmhpers@...<mailto:\
pgmhpers@...>>>
> > >Reply-To:
>
>
>bluerollersppssupport@yahoogroups.com<mailto:bluerollersppssupport@yahoogroups.\
com<mailto:bluerollersppssupport@yahoogroups.com>>
> > >To:
>
>
>bluerollersppssupport@yahoogroups.com<mailto:bluerollersppssupport@yahoogroups.\
com<mailto:bluerollersppssupport@yahoogroups.com>>
> > >Subject: [BlueRoller's PPS Support] new member >Date: Sun, 12 Sep
> >2004 00:21:19 -0000 > >Hi, I am 28, had polio at 5, residing in CA.
>Of
> >late, I am having >unbearable pain in my left leg. I plan to visit
>Dr.
> >Bruno and Dr. >Julie Silver for PPS diagnosis/thearaphy. Please share
>any
> > >suggestions/thoughts, experiences you had dealing with PPS, and
> > >leading normal life. >Thanks, >-pg >
> >
> > _________________________________________________________________
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> >
> >
> >
> >
> >
> > Yahoo! Groups Links
> >
> >
> >
> >
> >
> >
> >
> >[Non-text portions of this message have been removed]
> >
>
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