Hi Patti

I'm 66yrs. old, dear,,,not young. I had polio at 2 in 1940 and have 13
corrective surgeries. Did well for many years...kept up with the Jone's..you
know what I mean.

Can you send me links to the pps support groups?

I am not yet in a wheelchair, but am fatigued and in pain. My neck is
disentigrating !Spondylosis" as well as my lower back.

Had lung cancer two years ago and am now in remission. All the chemo/radiation
took the starch out of me as well. My husband had throat cancer the year before
I was diagnosed and talkswith an electronic device.

My neck is too bad to continue. Take care, and I hope to stay in
touch...mariannerichards@...<mailto:touch...mariannerichards@...>
----- Original Message -----
From: Patti Gross<mailto:cobaltt72@...>
To:
bluerollersppssupport@yahoogroups.com<mailto:bluerollersppssupport@...\
om>
Cc: InfoPolio@yahoogroups.com<mailto:InfoPolio@yahoogroups.com> ;
post-polio@yahoogroups.com<mailto:post-polio@yahoogroups.com>
Sent: Friday, September 24, 2004 11:16 AM
Subject: Re: [BlueRoller's PPS Support] new member


Good morning marriane,

hope you are feeling ok today. So you didnt tell me .... however did you
get polio?? you are so young! most people in our groups are 45 and older!
I belong to two yahoo groups that are much more active - infopolio and
post-polio. you should try to sign up on those. i hardly ever get emails
from blueroller. i got my the polio paradox book from amazon.com but i am
sure you could order from any bookstore. what were you in chemo for? do
you have an appt for dr.b yet? maybe you can have a stop over in buffalo
and we can do lunch!! lol how bad did the poilo effect you? For me i
thought it was just my right leg. led a fairly normal life - just slower
and gimpy. but i still tried to do everything. ballet was definetly out!
lol the past 10yrs since i was diagnosed with pps has been a very slow
pregression down hill. the last three years being a much more rapid
decline. to the point i am not working now and try to keep my butt in my
power chair instead of walking. i still have a very tough time saying NO to
people when they want to go do stuff. i have been doing STUFF for 50yrs!!
why stop now! lol but i really have to cause it causes me so much more
pain/discomfort/fatigue when i do to much. just this typing is hurting my
arms and back right now casue i am sitting up instead of laying down. (its
much harder to type laying down) so i guess that means i should take a
break from this!!

have a pain free day,patti




>From: "marianne richards"
<mariannerichards@...<mailto:mariannerichards@...>> Reply-To:
>bluerollersppssupport@yahoogroups.com To:

><bluerollersppssupport@yahoogroups.com<mailto:bluerollersppssupport@yahoogroups\
.com>> Subject: Re: [BlueRoller's PPS
>Support] new member Date: Mon, 20 Sep 2004 21:01:09 -0400
>
>HI~~~I was so thrilled to see something from PPS. I have it and am just
>amazed at how our symptoms are identical. Please email me and tell me more
>about Dr. Bruno's book and where I can get it. My symptoms were
>intensified during and since chemo and radiation. The dr. said it was
>because my"Neurons" didn't repair themselves as quickly as someone's who
>didn't have polio. Made sense!
>
>I know we are fighters...and I now am forced to take life easier. I take
>care of myself more than ever since learning our need to be like everyone
>else doesn't matter anymore. Love you guys and want to share emails with
>you and learn more. Marianne

>mariannerichards@...<mailto:mariannerichards@...<mailto:mariannerichard\
s@...>> ----- Original
>Message ----- From: Patti
Gross<mailto:cobaltt72@...<mailto:cobaltt72@...>> To:

>bluerollersppssupport@yahoogroups.com<mailto:bluerollersppssupport@yahoogroups.\
com<mailto:bluerollersppssupport@yahoogroups.com>>
> Sent: Thursday, September 16, 2004 11:06 AM Subject: RE: [BlueRoller's
>PPS Support] new member
>
>
> dear PG, wow - you are so young............ i thought polio was
>erradicated (sp) by the 70's. Dr Bruno is great. He and Dr Zimmerman are
>who i went to see. Please see someone soon the pain in your leg could
>be anything - not nesscarily PPS. My PPS is pain all over my body - kind
>of like bad case of the flu and severe fatigue and joint and muscle
>pains. It pretty much makes me feel crummy most of the time but us
>polios have learned how to fight thru the pain and thats what has gotten
>our motor neurons all worn out. we need to " preserve to conserve" what
>we have left. get Dr brunos book - Polio Paradox and read it - it is very
>informative. Do you have a appt yet? are you working? where did the
>polio affect you? how did you get it in the 70s? from the vaccine?
>have a apin free day,patti
>
>
> >From: "pgmhpers"
<pgmhpers@...<mailto:pgmhpers@...<mailto:pgmhpers@...<mailto:p\
gmhpers@...>>>
> >Reply-To:

>bluerollersppssupport@yahoogroups.com<mailto:bluerollersppssupport@yahoogroups.\
com<mailto:bluerollersppssupport@yahoogroups.com>>
> >To:

>bluerollersppssupport@yahoogroups.com<mailto:bluerollersppssupport@yahoogroups.\
com<mailto:bluerollersppssupport@yahoogroups.com>>
> >Subject: [BlueRoller's PPS Support] new member >Date: Sun, 12 Sep
>2004 00:21:19 -0000 > >Hi, I am 28, had polio at 5, residing in CA. Of
>late, I am having >unbearable pain in my left leg. I plan to visit Dr.
>Bruno and Dr. >Julie Silver for PPS diagnosis/thearaphy. Please share any
> >suggestions/thoughts, experiences you had dealing with PPS, and
> >leading normal life. >Thanks, >-pg >
>
> _________________________________________________________________
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>
>
>
>
>
> Yahoo! Groups Links
>
>
>
>
>
>
>
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