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bluerollersppssupport · BlueRoller's PPS Support - Post Polio Syndrome (PPS) Support
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Re: [BlueRoller's PPS Support] new member   Message List  
Reply | Forward Message #100 of 522 |
Re: [BlueRoller's PPS Support] new member

HI~~~I was so thrilled to see something from PPS. I have it and am just amazed
at how our symptoms are identical. Please email me and tell me more about Dr.
Bruno's book and where I can get it. My symptoms were intensified during and
since chemo and radiation. The dr. said it was because my"Neurons" didn't
repair themselves as quickly as someone's who didn't have polio. Made sense!

I know we are fighters...and I now am forced to take life easier. I take care
of myself more than ever since learning our need to be like everyone else
doesn't matter anymore. Love you guys and want to share emails with you and
learn more. Marianne
mariannerichards@...<mailto:mariannerichards@...>
----- Original Message -----
From: Patti Gross<mailto:cobaltt72@...>
To:
bluerollersppssupport@yahoogroups.com<mailto:bluerollersppssupport@...\
om>
Sent: Thursday, September 16, 2004 11:06 AM
Subject: RE: [BlueRoller's PPS Support] new member


dear PG, wow - you are so young............ i thought polio was
erradicated (sp) by the 70's.
Dr Bruno is great. He and Dr Zimmerman are who i went to see. Please see
someone soon the pain in your leg could be anything - not nesscarily PPS.
My PPS is pain all over my body - kind of like bad case of the flu and
severe fatigue and joint and muscle pains. It pretty much makes me feel
crummy most of the time but us polios have learned how to fight thru the
pain and thats what has gotten our motor neurons all worn out. we need to "
preserve to conserve" what we have left.
get Dr brunos book - Polio Paradox and read it - it is very informative.
Do you have a appt yet? are you working? where did the polio affect you?
how did you get it in the 70s? from the vaccine?
have a apin free day,patti


>From: "pgmhpers" <pgmhpers@...<mailto:pgmhpers@...>>
>Reply-To:
bluerollersppssupport@yahoogroups.com<mailto:bluerollersppssupport@...\
om>
>To:
bluerollersppssupport@yahoogroups.com<mailto:bluerollersppssupport@...\
om>
>Subject: [BlueRoller's PPS Support] new member
>Date: Sun, 12 Sep 2004 00:21:19 -0000
>
>Hi, I am 28, had polio at 5, residing in CA. Of late, I am having
>unbearable pain in my left leg. I plan to visit Dr. Bruno and Dr.
>Julie Silver for PPS diagnosis/thearaphy. Please share any
>suggestions/thoughts, experiences you had dealing with PPS, and
>leading normal life.
>Thanks,
>-pg
>

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Tue Sep 21, 2004 1:01 am

mariannerichards@...
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Message #100 of 522 |
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Hi PG, I have gotten some relief by wrapping my legs witn something where you can wrap them tight and I have just started on Nuerotin. I have pain all over my...
Rae
rnoah7@...
Send Email
Sep 12, 2004
4:53 pm

dear PG, wow - you are so young............ i thought polio was erradicated (sp) by the 70's. Dr Bruno is great. He and Dr Zimmerman are who i went to...
Patti Gross
cobaltt72
Offline Send Email
Sep 16, 2004
3:06 pm

HI~~~I was so thrilled to see something from PPS. I have it and am just amazed at how our symptoms are identical. Please email me and tell me more about Dr....
marianne richards
mariannerichards@...
Send Email
Sep 21, 2004
1:05 am

Good morning marriane, hope you are feeling ok today. So you didnt tell me .... however did you get polio?? you are so young! most people in our groups are...
Patti Gross
cobaltt72
Offline Send Email
Sep 24, 2004
3:17 pm

Hi Patti I'm 66yrs. old, dear,,,not young. I had polio at 2 in 1940 and have 13 corrective surgeries. Did well for many years...kept up with the Jone's..you...
marianne richards
mariannerichards@...
Send Email
Sep 24, 2004
6:55 pm

sorry marriane - i guess the emails got mixed up! the first one i got they said they were 28 yrs old and had polio at age 5! I copied the other 2 groups on...
Patti Gross
cobaltt72
Offline Send Email
Sep 24, 2004
10:05 pm

i just figured is out the first email was from pgmhpers - so somehow i got mixed up! pg if you get this one youll need to read from the bottom up! have a pain...
Patti Gross
cobaltt72
Offline Send Email
Sep 24, 2004
10:08 pm
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