Welcome everyone to the Broken Hearts of the Big Bend Message Board. We hope this will be a place to ask questions, pass on information, share happy news,...
We now have three places to visit and participate in Broken Hearts of the Big Bend -- this Yahoo group, Myspace.com, and Blogger.com. I am looking forward to...
You're welcome! I think people will find this format very easy to use. Additionally, since there is a search function, our posts will eventually become a good...
... Hello Karen and Heather, I too thank you for this group. I am a 43 year old woman with Turners Syndrome. I had my coarctation of the aorta valve repaired...
Welcome Robin. I know your experience and insight as an adult with CHD will be a benefit to all of us! BTW- I have put a picture of my daughter and Dr....
Hello group! This is a great way to communicate and thank you Heather for getting this set up. I hope no one minds but I set up a photo album of Taylor just...
If you would like a picture of your loved one to appear on the homepage, please add it to the A-Homepage Photo album under Photos on the left. Adding a...
Taylor is such a beauty! How old is she now? What is her CHD? Sydney is 22 months and she had ToF with pulmonary atresia. Luckily for us, she had well...
I have more pictures I could add to the CHD Forum photo album, but I need to know it's OK with everyone that I post them (photos include shots of Kim M.,...
Thank you! Taylor is 4 and we found out before she was born that Taylor had heart problems. Taylor was born at Shands because we knew TMH or even the...
Karen, It is okay to use pictures of me. Take care. Robin Brock ... From: ktchavez@... To: bigbendbrokenhearts@yahoogroups.com Sent: Tue, 14 Nov 2006...
Karen: You can also load any pictures of me. Heather robinrobin40@... wrote: Karen, It is okay to use pictures of me. Take care. Robin Brock ... From:...
Sounds like Taylor is a real fighter. Heather Kim <kimrooks1@...> wrote: Thank you! Taylor is 4 and we found out before she was born that Taylor had...
I've just added a photo album of my son Cody. Today is his 12th birthday! I called the album "My Miracle" because that is exactly what he is to me as I'm...
I have read a couple posts on here about multiple pacemakers in children. I am wondering how often a pacemaker needs to be replaced and why (aside from...
Happy Birthday, Cody Hope it is a great one. Robin Brock ... From: hmelom@... To: bigbendbrokenhearts@yahoogroups.com Sent: Wed, 15 Nov 2006 1:56 PM ...
Taylor has had 5 pacemakers. Her first one was when she was 3 days old. The 2nd one was when she had her next surgery; I guess since they opened her up they...
Hi Heather, It really all depends on what the pacer is being used for. Cody has 1st degree block which means he cannot live without one. His resting heart...
... All kids' birthdays are always special, but when they're birthdays of a heart child, it goes beyond special. We celebrate not just the day they were born,...
Thanks for all the information on pacemakers everyone. Sydney has 3rd degree heartblock from the surgery. Dr. Bleiweis still thinks she is going to come out...
Hello all, I tell you something, I sure am learning a great deal from this group. When I read Heather and Kim's stories and what their children went ...
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bigbendbrokenhearts@y...
Nov 20, 2006 5:02 am
Reminder from the Calendar of bigbendbrokenhearts http://groups.yahoo.com/group/bigbendbrokenhearts/cal Kyle's Surgery Monday November 20, 2006 12:00 am - 1:00...
Stem Cell Experiment Yields Heart Valves By THE ASSOCIATED PRESS Published: November 18, 2006 CHICAGO, Nov. 17 (AP) — Scientists for the first time have...
Wow! Amazing science. I still wish researchers could determine what the risk factors are for defects. Wouldn't it be incredible if one day we learned there ...
