Well they are wanting to take my left pointer finger. It is the
most affected right now. The pain has now moved to both legs and it
is really hard to walk. I dont know how to describe it except to
say that I feel like my brain has to tell my legs to move sometimes
because they are so weak. I went for more x rays yesterday. They
are ruling out all other possible problems. My hand and feet really
itch alot too. Is that another symptom. The itching is always
followed by burning and then just pain. I am still working
everyday. I am a secretary so I have lots of typing and computer
work. The doctor said that I needed to work while I could that this
would only get worse before it gets better. In doing the medical
history we have discovered that I have had these symptoms for around
3-4 years, they just werent bad enough to diagnose me with. I have
been in constant pain now for a little over three weeks....I just
wish it would end now.








--- In beurgersdisease@yahoogroups.com, "th.b.schaefer"
<th.b.schaefer@...> wrote:
>
> Lynn Ryan schrieb:
>
> >Thank you. It really does help to hear from people with the same
disease. It really makes me feel like I am not alone and that
people do understand the pain. Its hard for my family right now
because they have no idea how horrible the pain is. All they know
is that the wife and mother is so consumed with pain that she has
changed and doesnt have the patience or understanding that she once
did. Sometimes it hurts so bad that I had rather God call me home
as to live any longer. I have always been active (softball coach,
player, work two jobs, run a farm, raise all kinds of animals, and
go to all the events that my athlectic children have) now I find
myself lying around in my pajamas on the weekends. Thank God my
kids are teenagers and I dont have any small ones. Thanks so much,
just the encouragement from others helps tremendously.
> >
> >Lynn Ryan
> >Lynn.Ryan@...
> >Middle TN Regional Office
> >275 Stewarts Ferry Pike
> >Van Buren Building
> >Operations Department
> >Nashville, TN 37214
> >884-1923
> >Lynn.Ryan@...
> >
> >
> >(NOTE: This e-mail may contain PRIVILEGED and CONFIDENTIAL
information and is intended only for the use of the specific
individual(s) to which it is addressed. If you are not an intended
recipient of this e-mail, you are hereby notified that any
unauthorized use, dissemination or copying of this e-mail or the
information contained in it or attached to it is strictly
prohibited. If you have received this e-mail in error, please
delete it and immediately notify the person named above by reply e-
mail. Thank you.
> >
> >
> >
> >
> >>>>"james dunn" <james.dunn187@...> 10/13/06 3:34 AM >>>
> >>>>
> >>>>
> >Hi Lynn,
> >
> >There are many research papers on Beurgers, but as somebody who
has lived with the disease for fifty years I feel that I am somewhat
of a specialist on the subject. I was diagnosed with the disease
when I was 23 and had been smoking since I was 16. Little was known
about the relationship between tobacco and Beurgers until research
started in earnest in the sixties and by the time I had reached my
late thirties the damage had been done. In fact there is no turning
back the clock and hope that the damage caused by tobacco can be
reversed; it can't.
> >
> >I hope that I do not frighten you with the following, but if you
have been diagnosed with Beurgers disease you must never, repeat
never smoke again. Due to tobacco and the faulty genes that made me
susceptible to Beurgers I have had both legs amputated below the
knee and suffered damage to both hands.
> >
> >I haven't smoked for some 25 years and despite the false legs
live life to the full. The point is Lynn that you will recover, but
if you do not want a life that is filled with continuous pain, NEVER
SMOKE AGAIN.
> >
> >If you want any further advice please ask.
> >
> >James
> >
> >
> >To: beurgersdisease@yahoogroups.com
> > Sent: Thursday, October 12, 2006 7:46 PM
> > Subject: [Beurgers Disease] Just diagnosed
> >
> >
> > I have tried to do research on this disease. My doctor is still
in
> > the process of testing to rule out any other diseases, but is
sure
> > that this is Beurger's. I have been on pain medication for one
month
> > and it just dulls the pain. I have so many questions.... I am
> > terrified and can just cry all the time. My children have had
to tie
> > my shoes, help me wash my hair.....Is there anyone in this
group in
> > the Nashville TN area, or anyone that uses Sprint that I could
talk
> > to, or even anyone that knows where I can go look for questions
and
> > answers about this disease.
> > I am a 35 year old female who has smoked for almost 20 years. I
have
> > just started taking Chantix to help me quit...
> > Thanks so much from someone who is scared to death....
> >
> >
> >
> >
> >
> >[Non-text portions of this message have been removed]
> >
> >
> >
> >
> >
> >Yahoo! Groups Links
> >
> >
> >
> >
> >
> >
> >
> Hi Lynn,
>
> What finger do they want to amputate? all? just one? which? is it
really
> necessary or do they just want to show you that buerger ist really
a
> serious thing?
> as most people wrote you allready, to keep on smoking will make it
only
> worse...and honey, i know how hard it is to quite.
> I started smoking at age 15, so i smoked half of my life when i
was
> diagnosed, and i was used to smoke about 20 cigarettes the day and
even
> more, when i had stess.
> Believe me it is not only the pain. It destoys your vessels when
you
> dont stop smoking and it will lead to amputations - not only of
one
> single finger. I know what i am talking about. Sure they are some
> medikations that can help you to deal with the symptoms, but they
are
> all worthless as long as you keep on smoking.
> A long time I believed, that there must be anything to help me
while
> keep on smoking - i want both, my cigarettes and to be cured. I
had to
> learn it the hard way, that this is not possible with buergers.
> I hope my terrible english is understandable enough - so write me
again.
>
> Yours
>
> Theresia
>
>
> [Non-text portions of this message have been removed]
>