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Re: [Beurgers Disease] Just diagnosed   Message List  
Reply | Forward Message #482 of 868 |
Re: [Beurgers Disease] Just diagnosed

Hello Lynn,

I was diagnosed with BD December of 2003. By that time I had endured the most
unspeakable pain there is. The pain, which began Nov. 21, 2002, lingered on
until 2004 even though I quit smoking June 3, 2003. Pain killers didn't help
dull the pain. I was on morphin and couldn't sleep well for several months
because of the constant throbbing on my right big foot.

I cried and I screamed and I cursed.

Smoking interrupted my life. Trust me, my muffled rage sent many thoughts of
suicide running through my head. And I did, unsuccessfully. But let's not get
into that. I think I speak for everyone here when I say I know exactly what you
mean when you wrote you wanted to God to call you home.

Lynn, the only way to reclaim what's left of your life is to QUIT smoking now.
If you have such a hard time quitting, and understandably so, why not try to
read this book: "The Easy Way to Stop Smoking" by Allen Carr. I haven't
personally read it, but this actor Ashton Kutcher said he has been smoke-free
for over a year now since he read that book. I think the method used in the book
is the power of suggestion. The reviews are pretty encouraging, too. Give it a
shot. What have you got to lose?

Here's a link:
http://www.amazon.com/Easy-Way-Stop-Smoking-Nonsmokers/dp/1402718616/sr=8-1/qid=\
1160752431/ref=pd_bbs_1/104-8943630-9955920?ie=UTF8&s=books


I quit cold turkey. I didn't plan it, I didn't think about it until the last
minute. When I was done with my last cigarette, I felt I've had enough. I
couldn't get up from bed at that time so there was zero chance of me going down
three flights of stairs to buy myself a new pack.

Good luck Lynn. I hope you'll win your battle against nicotine.

--Anne


----- Original Message ----
From: Lynn Ryan <lynn.ryan@...>
To: beurgersdisease@yahoogroups.com
Sent: Friday, October 13, 2006 8:25:01 PM
Subject: Re: [Beurgers Disease] Just diagnosed













Thank you. It really does help to hear from people with the same
disease. It really makes me feel like I am not alone and that people do
understand the pain. Its hard for my family right now because they have no idea
how horrible the pain is. All they know is that the wife and mother is so
consumed with pain that she has changed and doesnt have the patience or
understanding that she once did. Sometimes it hurts so bad that I had rather
God call me home as to live any longer. I have always been active (softball
coach, player, work two jobs, run a farm, raise all kinds of animals, and go to
all the events that my athlectic children have) now I find myself lying around
in my pajamas on the weekends. Thank God my kids are teenagers and I dont have
any small ones. Thanks so much, just the encouragement from others helps
tremendously.



Lynn Ryan

Lynn.Ryan@state. tn.us

Middle TN Regional Office

275 Stewarts Ferry Pike

Van Buren Building

Operations Department

Nashville, TN 37214

884-1923

Lynn.Ryan@state. tn.us



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>>> "james dunn" <james.dunn187@ ntlworld. com> 10/13/06 3:34 AM >>>

Hi Lynn,



There are many research papers on Beurgers, but as somebody who has lived with
the disease for fifty years I feel that I am somewhat of a specialist on the
subject. I was diagnosed with the disease when I was 23 and had been smoking
since I was 16. Little was known about the relationship between tobacco and
Beurgers until research started in earnest in the sixties and by the time I had
reached my late thirties the damage had been done. In fact there is no turning
back the clock and hope that the damage caused by tobacco can be reversed; it
can't.



I hope that I do not frighten you with the following, but if you have been
diagnosed with Beurgers disease you must never, repeat never smoke again. Due to
tobacco and the faulty genes that made me susceptible to Beurgers I have had
both legs amputated below the knee and suffered damage to both hands.



I haven't smoked for some 25 years and despite the false legs live life to the
full. The point is Lynn that you will recover, but if you do not want a life
that is filled with continuous pain, NEVER SMOKE AGAIN.



If you want any further advice please ask.



James



To: beurgersdisease@ yahoogroups. com

Sent: Thursday, October 12, 2006 7:46 PM

Subject: [Beurgers Disease] Just diagnosed



I have tried to do research on this disease. My doctor is still in

the process of testing to rule out any other diseases, but is sure

that this is Beurger's. I have been on pain medication for one month

and it just dulls the pain. I have so many questions... . I am

terrified and can just cry all the time. My children have had to tie

my shoes, help me wash my hair.....Is there anyone in this group in

the Nashville TN area, or anyone that uses Sprint that I could talk

to, or even anyone that knows where I can go look for questions and

answers about this disease.

I am a 35 year old female who has smoked for almost 20 years. I have

just started taking Chantix to help me quit...

Thanks so much from someone who is scared to death....



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Fri Oct 13, 2006 3:44 pm

ilike4u2bestill
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Forward
Message #482 of 868 |
Expand Messages Author Sort by Date

Hi Lynn, There are many research papers on Beurgers, but as somebody who has lived with the disease for fifty years I feel that I am somewhat of a specialist...
james dunn
clifford1872004
Offline Send Email
Oct 13, 2006
8:32 am

Thank you. It really does help to hear from people with the same disease. It really makes me feel like I am not alone and that people do understand the pain....
Lynn Ryan
lynnie6371
Offline Send Email
Oct 13, 2006
12:32 pm

... Hi Lynn, What finger do they want to amputate? all? just one? which? is it really necessary or do they just want to show you that buerger ist really a ...
th.b.schaefer
littleraindr...
Offline Send Email
Oct 14, 2006
10:55 am

Well they are wanting to take my left pointer finger. It is the most affected right now. The pain has now moved to both legs and it is really hard to walk....
Lynn
lynnie6371
Offline Send Email
Oct 17, 2006
2:42 pm

Hello Lynn, I was diagnosed with BD December of 2003. By that time I had endured the most unspeakable pain there is. The pain, which began Nov. 21, 2002,...
Anne A. Jambora
ilike4u2bestill
Offline Send Email
Oct 13, 2006
3:45 pm

Hi Lynn, Can really understand what you are going through. I had years of pain, had to try to sleep with both legs out of the bed and despite being given many...
james dunn
clifford1872004
Offline Send Email
Oct 19, 2006
8:53 am

Thank you so much for your story. The pain is in both legs and my left hand and arm now. I have a finger that is in the first stage of necrosis, but I refuse...
Lynn Ryan
lynnie6371
Offline Send Email
Oct 19, 2006
1:05 pm

You'll be fine Lynn. Glad to know you're emotionally and mentally stronger now. With a lot of patience and the right mindset, you'll pull through this. When I...
ilike4u2bestill
Offline Send Email
Oct 19, 2006
1:35 pm
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