Thanks for the reply James. Im sorry to hear what you have gone
thru. My veins are in very bad shape. It is sometimes impossible for
them to draw any blood or if they do that the vein either collapses
or rolls. I was sent to a vascular surgeon who initially did a
angiogram/angioplasty. that work for a little, then I was back where
I started. As far as the bypasses, they were done when everyone and
myself thought I had Lupus. It is only in the last 2 weeks that I
found out about Beurgers.
I still have problems with my hands, my fingers turning purple and
being very cold, this happens even when Im inside. As for the recent
surgery, thank you for your well wishes.
Nancy
--- In
beurgersdisease@yahoogroups.com, "james dunn"
<james.dunn187@n...> wrote:
> Hi Kallie,
>
> You are right in your statement that Buergers Disease is more
likely to be found in men and that it normally presents itself at an
early age. I was 23 when I had my first symptoms, cramp in the calf
muscles of the left leg. This was in the sixties and despite all the
early research little was known about the apparent cause.
> I am surprised to read that you were able to have by-pass
operations as Buergers Disease or Thromboangiterrans obliterans means
that the smaller more distal arteries are obliterated.
> Because I continued to smoke my health got steadily worse and in
1984 I had a below knee bilateral amputation and suffered severe
damage to the ends of the fingers of both hands. Because of the
strong possibility that I could possibly lose both hands and the
strong message from a knowledgeable consultant vascular surgeon I
stopped smoking. That was more than 20 years ago.
> In stopping smoking I saved my hands and have not had a moments
pain since then.
> I do hope that the present by-pass works and I do understand the
pain that you must be going through. I had my fair share of all that.
>
> James
>
>
>
>
> ----- Original Message -----
> From: kallie_2
> To:
beurgersdisease@yahoogroups.com
> Sent: Tuesday, January 18, 2005 8:25 AM
> Subject: [Beurgers Disease] Hi everyone
>
>
>
> Im just new to the group. My name is Nancy, Im a 54yr female,
living
> in Canada. I have lived with Lupus all my life or so I thought. I
was
> having problems with my hands being dusky, so I checked with a
> specialist. He did some blood tests, they confirmed Buergers
Disease.
> I smoked all my life,its been 4 yrs since I quit. I had Raynauds
back
> in 91, all my fingers turned black in a two week span. I was
> hospitalized for 3 weeks on what they called pulse therapy, a
> combination of steriods and chemo. It worked, I did tho lose a
tip of
> one finger.
> About 98 or slightly before I started having pains in my legs and
> severe cramps, when I was walking. Have you ever had cramps in
the
> back of your leg, top of your foot and bottom all at the same
time?
> It seems impossible to have but I did, the pain was unbearable.
In
> Jan 01 I had a bypass done on my right leg, in Feb 01 I had
another
> one done because the first one didnt work. I ended up having to
have
> my right leg amputated in Jan 02. This past summer I went in the
> hospital for another bypass, this time it was on my left leg. So
far
> so good.
> The one thing I did read was that Beurgers Disease is normally
> found in men 20-40. Is it a womens disease as well? I look
forward
> to being part of the group. Bye for now.
>
>
>
>
>
>
>
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