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beurgersdisease · Beurgers Disease - buerger's disease; amputations; disability
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Re: [Beurgers Disease] (unknown)   Message List  
Reply | Forward Message #185 of 875 |
Re: [Beurgers Disease] (unknown)

Mark,
I can only say that Judy has said it better then I could have,
although I am going to have to become more accustomed to doing this
sort of thing if the lawsuit goes in our favor. Coumadin is the only
thing that is keeping my circulation going at this point and Benacar
to lower the blood pressure(sort of like decreasing the pressure in a
hose to stop the turbulance)and Neurontin to stop the twitching I get
at night (sometimes during the day) from the intermittent
claudication.
Again, if anyone in the US is interested in class action lawsuit
against Rj Reynolds, Phillip Morris and US TObacco (more may be named
later) go to my Buergers Disease Support Group at:
http://groups.msn.com/BuergersDiseaseSupportGroup

There is a copy of one of the motions filed in Federal court
concerning this case.
This is not a case to get anyone tons of money, this is a case to get
those of us who suffer from this disease some help, medical or
otherwise.
Thanks,
Nelson



- In beurgersdisease@yahoogroups.com, "monthony" <monthony@f...>
wrote:
> Mark;
> I can answer a few, I am 38 also recently diagnosed with Buergers.
I am on
> coumadin daily. I also Know for a fact that yes there is no cure,
but you
> can stop the progression of this disease by cessation of smoking..
> Also The doctors are clueless sometimes. Because this disease is so
rare. I
> live in a small town, an we go to health center here.
> My doctor couldn't even help me when i went for my fallow up after
getting
> out of the hospital. At my appointment he said he would first have
to do
> some research. I knew more about the disease than he did.
> But of luck to your friend.
> Judy
>





Wed Nov 5, 2003 3:04 am

butch_8073
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Forward
Message #185 of 875 |
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HI, I am only just recently diagnosed with this disease and am a Caucasian male, 44 years of age. I was a heavy smoker (1.5 packs per day). I havent taken any...
butch8073@...
butch_8073
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Jul 19, 2003
9:14 pm

Mark; I can answer a few, I am 38 also recently diagnosed with Buergers. I am on coumadin daily. I also Know for a fact that yes there is no cure, but you can...
monthony
scottnjude2001
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Nov 4, 2003
5:16 am

Mark, I can only say that Judy has said it better then I could have, although I am going to have to become more accustomed to doing this sort of thing if the...
butch_8073
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Nov 5, 2003
3:04 am

Dear Beurgers Anne: I too am female and was diagnosed with Buerger's disease in 1989, when I was 27. At that time, I immediatley quit smoking and had a bypass...
Julie Webster
julielouisew...
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Dec 12, 2003
10:05 pm

Julie: That's quite a story you have. I can only hope I'll be strong enough to resist the lure of cigarette smoking for life. Honestly, I knew before I picked...
Anne A. Jambora
ilike4u2bestill
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Dec 13, 2003
10:36 am

Anne and Julie; I was dx's with Buergers Disease in 1967. I developed gangrene in my left index finger while in RSVN in 1966. I came home in 67 and developed...
George Stanley
gts31522
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Dec 15, 2003
8:28 pm

George: I know what you mean. We make our choices. I'm slowly picking up the pieces of my life now-- medication, physical therapy, the works--and hopefully ...
Anne A. Jambora
ilike4u2bestill
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Dec 16, 2003
9:58 am

Anne, Your choice will let you get on with your life. This is a very personal illness, life and death sorta stuff! I was in the VA as an impatient off and on...
George Stanley
gts31522
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Dec 16, 2003
10:02 pm

I WOULD LIKE TO KNOW HOW TO GET THE PICTURES YOU HAVE POSTED . MAYBE THIS WOULD HELP MY HUSBAND TO QUIT. I AM SO SORRY FOR YOU AND I WILL PRAY FOR YOU . ...
vcollette40@...
vcollette4040
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Jan 30, 2004
7:17 pm

Let me no if you received these ok and thanks for your prayers BobB vcollette40@... wrote: I WOULD LIKE TO KNOW HOW TO GET THE PICTURES YOU HAVE POSTED ....
Bob Bergen
bobgbergen
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Jan 30, 2004
7:29 pm

hi bob i'm sean i kinda understand mate ...this f@@@ing disease! its got me beat ' i cant quit either ! i lost my r leg oct 2002 now they want my left 1...
sean beaden
malone65652000
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Feb 1, 2004
10:34 pm
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