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beurgersdisease · Beurgers Disease - buerger's disease; amputations; disability
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Reply | Forward Message #168 of 874 |
Re: Buergers disease- Sissybaby

I have had Buergers disease since 1967. I returned home from in-
country and developed gangrene in both hands and feet. I've had total
of 8 toes and tip of the right index finger amputated.

The USAF retired me @ age 21 and I was unable to work for 5 years.
Returned to work and worked 28 years. In 1999, developed problems
with my left foot and placed on short term/lond term disability.
Applied for SSDI and after 3 tries and the assistance of insurance
appointed lawyer, received disability November 2002.

You must have the support of your doctors to state the disease as it
effects you. This process is sometimes long but you must appeal,
appeal and appeal. Never give up or give in. Be totally honest but
firm in your request for disability insurance. After all, you have
already paid fot it! No one is giving you anything.

Good luck, Health, Happiness and hope.




Mon Oct 6, 2003 6:35 pm

gts31522
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Message #168 of 874 |
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I am a 46 yr old female with buergers disease. I just recently had stents placed in my heart. This is such a painful and frustrating disease. A motorized ...
sissybaby77777
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May 26, 2001
3:08 am

I have had Buergers disease since 1967. I returned home from in- country and developed gangrene in both hands and feet. I've had total of 8 toes and tip of the...
gts31522
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Oct 6, 2003
6:35 pm

I wish I could help. My husband was just told he has buerger's disease but we are not so sure of that. We have been reading about raynaud's and not so sure...
connietx2001
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May 28, 2001
3:00 am

Does your husband smoke? That is the main factor of Buergers disease. As you read more you will better understand this horrible illiness. If you smoke with...
gts31522
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Oct 6, 2003
6:45 pm

Thank you for replying. Buergers disease is a very frustrating disease. Very painful and makes you're life style change drastically as the disease progresses....
sissybaby77777
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May 28, 2001
11:16 pm

Thanks so much for answering me.<br>It seems like you have been through so much. I didn't want my husband to see this, he is such a worry wart. I try to find...
connietx2001
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May 29, 2001
1:24 am

It sure sounds to me that it is reynaulds disease. I have researched for months now. Angiogram will show buergers disease. So I would bet it is Reynaulds. That...
sissybaby77777
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May 29, 2001
3:52 am

I am from the Shenandoah Valley of Virginia (harrisonburg) and also have lived in Wilmington. I have a friend that works at John Hopkins hospital and also have...
connietx2001
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May 29, 2001
12:27 pm

Hi, I;am 41 years old and have just been told i have beurgers disease. Mine is mainly in my fingers right now,but i have had an angiagram and they say it:s ...
gwmjlm2
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May 29, 2001
12:47 pm

email address<br>debbie@......
sissybaby77777
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May 29, 2001
3:15 pm

... she was the first name on the beurgers group i seen and i would like to talk with her. are you the one your husband thought had the disease?i hope he does...
vcollette4040 <vcolle...
vcollette4040
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Feb 28, 2003
7:58 pm

I am also a buergers disease patient. I am truly sorry to hear this. It is a very frustrating ordeal. I am a 46 yr old female which this disease normally ...
sissybaby77777
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May 29, 2001
3:21 pm

Hi Jim,<br>I just found this club myself. My husband was told a few weeks ago he has beurgers also but we are not convinced. It may be Raynauds as well. His...
connietx2001
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May 29, 2001
11:09 pm

This site was set up to help those of us that ave buergers disease. Not sick puppys like the members anderson...
sissybaby77777
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May 30, 2001
1:38 am

Hi all,<br>I need help for a friend from Russia. She is very sick and I would like to help her. her English is very bad so I need informations from you how I ...
merlin59er
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Jun 29, 2001
11:59 pm

I wish I could help you but I don't know much about the disease either....
connietx2001
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Jun 30, 2001
2:59 pm

Sorry I am a little angry, this channel seems to be dead or why I can't find help. ---Where is the founder? One of this silly males?? I need realy help for my...
merlin59er
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Jul 8, 2001
10:45 am

Hello Everyone, I have beurgers disease, have had it now for over 11 years, first my left leg was amputated just below the knee and I was able to get around ...
Chuck_Marine
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Jul 10, 2001
4:30 am

There really isn't much help out there. Stop smoking does help. There are not enough of us that have this disease to fund finding a cure. Basically there is no...
sissybaby77777
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Jul 13, 2001
1:16 am

Hi Chuck<br>I wish you the best but as we both know there isn't much help out there. Have you quit smoking? I'm sure you are tired of hearing that. I quit then...
sissybaby77777
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Jul 13, 2001
1:19 am

Hello Sissy, well hate to say it but "No" I have not quit smoking, mostly by choice as I truly believe I can quit but I enjoy so I have not attempted to give...
Chuck_Marine
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Jul 13, 2001
7:07 am

Hi Chuck<br>Good luck on Monday at the vascular doctors. I saw one of them they told me to come back when i was ready to lose that arm or leg, nothing could be...
sissybaby77777
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Jul 13, 2001
2:43 pm

hi there im 34 and this is my third time down with buergers. I agree with all the letters, buersgers is very painfull and more than that i know that it is...
buergerboy
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Feb 24, 2002
12:01 pm

I didnt think Beurgers was Cureable, now you say if you quit smoking you are cured.....Hmmm doesnt make sense, may be less painful but cured? Recheck your...
myssm2000
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Feb 25, 2002
8:00 pm

I just found out that my mother has Beurgers Disese - That's how I found this group. She's been a smoker for 50 years and just quit that nasty and deadly habit...
jeperry1957
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Apr 4, 2003
7:03 am

It is a dreaded disease...I hope she quits smoking, as it can be very ddevastating...Good luck ... that ... diseases ... pain...
mslaurahere
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Apr 9, 2003
1:52 pm

Well Sissy, I have had this disease since about 1984, at first I lost half of my left foot in 1985 and everything seemed fine until 1989 and the foot split...
Chuck_Marine
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Jul 16, 2001
6:32 am

Hi Chuck<br>I just got back from spending ten days with my two children and three grand babies. We went to Disney, I also used a motorized scooter and what a...
sissybaby77777
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Jul 18, 2001
3:22 am

Well Sissy I will be going in the hospital on Monday, 23July, Doctor has indicated that he wants a arterialgram (sp ?) said I would be in there for 3 days,...
Chuck_Marine
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Jul 18, 2001
7:41 am

Hi Chuck<br>So sorry to hear about Monday but my best wishes are there for you! I know with me it helps when you have support no matter who it is. I will keep ...
sissybaby77777
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Jul 18, 2001
10:38 pm
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