There is a lot of info on the internet now and are you can get infor
from the national foundation of rare diseases. There has not been a
lot of research done on Buergers/ does anyone know of any clinical
trials going on? My son who is 40, has had to have toes amputated and
there have been problems in the fingertips. It can take you down like
diabetes, don't get your fingers or toes cut or infected..Be very
careful. And if you smoke QUIT..Blessings



In beurgersdisease@yahoogroups.com, Courtney <wingluvr5@c...> wrote:
> I was diagnosed with beurgers about 2 months ago and am learning
alot myself..I am not on any medication for it right now..and dont
have any problems with my lips swelling..just the painful feet and
hands..and the only thing i was told to do about this was to quit
smoking and take anti inflammatories for now..I am really working on
this..today It doesnt feel so bad..I sure hope you get the answers
you need..I know how aggravating it is to not know!..take care
Courtney
> ----- Original Message -----
> From: mslaurahere
> To: beurgersdisease@yahoogroups.com
> Sent: Saturday, March 22, 2003 2:40 PM
> Subject: [Beurgers Disease] Anyone have this problem?
>
>
> Hi Everyone,
> My son was diagnosed with Beurgers several years ago,and I know
> everyone who has been afflicted with it this long knows how bad
it
> can be. I won't go into detail as to not scare everyone.
>
> I would like to know if any of you have had problems with
swelling in
> your lips? The top lip will swell and sometimes it moves around
to
> the bottom lip. Then he is miserable and can't go to work.
>
> Also what kind of medications are you on? The doctor once put him
on
> Plentil. Have any of you used that?
>
> This can be a wonderful way to accumulate information. Thank you
all.
>
>
>
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