This information was taken off the Wrightslaw website at www.wrightslaw.com.
The links listed below will be operational on the site but not in this email.
Much of this infomation is also availabe on NBC's website:
http://www.msnbc.msn.com/id/6844737
********************************************************************************\
**********************
Frightening Fact: According to a recent report from Government Accountability
Office, the number of children diagnosed with autism skyrocketed more than 500
percent in the past ten years. (Special Education: Children with Autism
published by the Government Accountability Office at
http://www.wrightslaw.com/news/05/autism.sped.gao.htm)
As families struggle with this devastating disorder, news organizations are
taking a fresh look at issues related to autism, including theories behind its
dramatic increase and effective treatments. NBC will run two new series next
week: Autism: The Hidden Epidemic (February 21-25) & Autism: Paying the Price
(February 22-25).
The NBC “Today†show is running a special 10-part series on autism from
Monday, February 21 through Friday, February 25. Autism: The Hidden Epidemic
will include these segments:
Feb. 21: Early Signs and Causes
Feb. 22: Diagnosis: The Marino Family Story
Feb. 23: Education and Emotional Aspects
Feb. 24: Advocating and the Law
Feb. 25: 'Autism Speaks' Initiative
The February 24 segment, "How to be the Best Advocate For Your Child," will
include an interview with Gary Mayerson, the attorney who successfully
represented the family in Zachary Deal v. Hamilton County (6th Cir. 2004). Mr.
Mayerson is the author of How To Compromise With Your School District Without
Compromising Your Child.
Beginning Tuesday, February 22, CNBC will air a four-part series, Autism: Paying
the Price. This series focuses on the financial implications of autism and
includes segments on:
* the financial impact on families
* the roles of government and private funding for research
* opportunities in healthcare and pharmaceuticals
* autism in the workplace
More info about Autism: The Hidden Epidemic & Autism: Paying the Price.
Autism, PDD and Asperger's Syndrome - FAQs, articles, caselaw, books, resources,
research, information and support.
__________________________________________________
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[Non-text portions of this message have been removed]
Las características del autismo las encontrarás en el primer capítulo del
manual. Te recomiendo que lo leas completo.
Puedes bajarlo de http://redconfluir.org.ar/~javier_garza
lysyayma lysyayma <lysyayma_2@...> wrote:
Alma Rosa Luján <alma_rosa_99@...> wrote:
Me gustaria saber si mi hijo en verdad es autista o no eso dicen en la escuela
y pues algunas d elas personas que lo evaluaron
pero yo aun no lo creo quiero saber las carcteristicas que deven tener y
como yo saber si lo es o no con seguridad. gracias >Att
lysyayma
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Alma Rosa Luján <alma_rosa_99@...> wrote:
Me gustaria saber si mi hijo en verdad es autista o no eso dicen en la escuela
y pues algunas d elas personas que lo evaluaron
pero yo aun no lo creo quiero saber las carcteristicas que deven tener y
como yo saber si lo es o no con seguridad. gracias >Att
lysyayma
---------------------------------
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Mundo.
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[Non-text portions of this message have been removed]
Traductor
http://www.google.com.mx/language_tools?hl=es
Antibiótico comúnmente prescrito implicado en Autismo
http://press.arrivenet.com/hea/article.php/551918.html
En un estudio lanzado esta semana, el antibiótico Augmentin TM ha
estado implicado en la formación del autismo El estudio publicó en
hipótesis médicas sugiere fuertemente la posibilidad de
envenenamiento del amoníaco como resultado de los niños jóvenes que
tomaban Augmentin.
Fuente De la Distribución: PRWeb
Fecha: Miércoles - De Enero El 05 De 2005
Yonkers, NY (PRWEB) de enero el 5 de 2005 -- en un estudio lanzó esta
semana, el antibiótico Augmentin TM ha estado implicado en la
formación del autismo El estudio sugiere fuertemente la posibilidad
de envenenamiento del amoníaco como resultado de los niños jóvenes
que toman Augmentin. Augmentin se ha dado a los niños desde los
últimos años 80 para las infecciones bacterianas. Integrado por el
potasio del amoxicillin y del clavulanate, Augmentin ha probado un
anti-bacteriano potente, especialmente para las infecciones del oído
cuál llega a ser rápidamente resistente al amoxicillin solamente.
La fabricación de AugmentinTM implica la fermentación del ácido
clavulanic. El proceso de fermentación implica cantidades grandes de
urea/ammonia. El amoníaco injerido puede potencialmente dañar los
intestinos de niños pequeños así como cerebro y tejido fino nervioso.
Incluso un residuo pequeño de urea/ammonia puede potencialmente
inducir una inflamación o una anormalidad substancial del cerebro.
El estudio, publicado en hipótesis médicas, (2005 64, 312315)
examina a 206 niños bajo edad de 3 diagnosticados con autismo
Encontraron a estos niños para tener un número perceptiblemente más
alto de las infecciones del oído que la población pediátrica general.
Estos mismos niños recibieron, en promedio, 12 cursos de los
antibióticos que representaban un número de la suma total de 2480. De
los 2480, 893 de estos cursos eran Augmentin con 362 de ésos dados
bajo edad de 1 año.
El Dr. Joan Fallon, científico, investigador del autismoy autor del
estudio, indica eso, "Augmentin es una de las drogas lo más
extensamente posible prescritas para los niños. Su introducción en el
mercado para el uso en el tratamiento de las enfermedades de niñez
corresponde con el aumento significativo en la incidencia del autismo
Es posible que algunos niños, especialmente ésos con inmadurez, u
otros en el riesgo para los desórdenes de desarrollo pueden ser
dañados tomando esta droga. Es imprescindible que la investigación
adicional esté emprendida para determinarse si un subconjunto de
niños está en el riesgo para el neurotoxicity debido al uso del
clavulanate o del ácido clavulanic en preparaciones farmacéuticas -
especialmente Augmentin."
###
El Dr. Joan Fallon
914-779-9300
Información Del E-mail
*-*-*-*-*-*-*-*-*-*-
Commonly Prescribed Antibiotic Implicated in Autism
In a study released this week, the antibiotic Augmentin TM has been
implicated in the formation of autism. The study published in Medical
Hypotheses strongly suggests the possibility of ammonia poisoning as
a result of young children taking Augmentin.
Distribution Source : PRWeb
Date : Wednesday - January 05, 2005
Yonkers, NY (PRWEB) January 5, 2005 -- In a study released this week,
the antibiotic Augmentin TM has been implicated in the formation of
autism. The study strongly suggests the possibility of ammonia
poisoning as a result of young children taking Augmentin. Augmentin
has been given to children since the late 1980's for bacterial
infections. Composed of amoxicillin and clavulanate potassium,
Augmentin has proven a potent antibacterial, especially for ear
infections which quickly become resistant to amoxicillin alone.
The manufacture of AugmentinTM involves the fermentation of
clavulanic acid. The fermentation process involves large amounts of
urea/ammonia. Ingested ammonia can potentially injure the intestines
of small children as well as brain and nervous tissue. Even a small
residue of urea/ammonia can potentially induce a substantial brain
inflammation or abnormality.
The study, published in Medical Hypotheses, (2005 64, 312–315)
examines 206 children under the age of 3 diagnosed with autism. These
children were found to have a significantly higher number of ear
infections than the general pediatric population. These same children
received, on average, 12 courses of antibiotics representing a sum
total number of 2480. Of the 2480, 893 of these courses were
Augmentin with 362 of those given under the age of 1 year.
Dr. Joan Fallon, scientist, autism researcher and author of the
study, states that, "Augmentin is one of the most widely prescribed
drugs for children. Its introduction into the marketplace for use in
the treatment of childhood illnesses corresponds with the significant
increase in the incidence of autism. It is possible that some
children, especially those with immaturity, or others at risk for
developmental disorders can be injured by taking this drug. It is
imperative that further research be undertaken to determine if a
subset of children are at risk for neurotoxicity due to the use of
clavulanate or clavulanic acid in pharmaceutical preparations -
especially Augmentin."
###
Dr. Joan Fallon
914-779-9300
E-mail Information
http://press.arrivenet.com/hea/article.php/551918.html
*-*-*-*-*-*-*-*-
http://mx.geocities.com/la_casita_del_autismo/alma.htmlhttp://groups.msn.com/Betin/_whatsnew.msnw
Recibi este mensaje de otro sitio de la red. Un padre que habla espanol quiere
mas informacion sobre el mercurio y el autismo. No tienen accesso al internet.
Si usteded tienen esta informacion por favor manden por correo al Sr. Juan
Gamboa, 3816 Stinson Blvd, Apt 101, Columbia Heights, Minnesota 55421
Gracias!
Sara Caldera
To all listmates. Today I met a Spanish speaking father of a severely
autistic ten-eleven year old boy named Danny. I gave him some
introductory mercury-vaccine information from my car. He requested more
information regarding thimerosal-induced autism.
I would appreciate it very much if anybody having access to Spanish
Language mercury-autism inofrmation would please mail it to the following
address. Mr Juan Gamboa, 3816 Stinson Blvd, Apt 101, Columbia
Heights, Minnesota, 55421. They do not have internet access. If you have no
Spanish material english language material would still be helpful.
Thanks very much for any help you can provide. Please share this message
with everybody you know. Tim Ziegeweid.
---------------------------------
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[Non-text portions of this message have been removed]
http://www.texasautismadvocacy.org/espanol.htm
Texas Autism Advocacy, un sitio de la red muy interesante y informativo sobre el
autismo. Hay recursos en espanol e ingles.
---------------------------------
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Job opening: The PATH Project is taking applications for a Regional Coordinator
for the Region 9 & 11/Fort Worth area. Bilingual definitely a plus. Contact
the PATH office for more information at 800-866-4726 or email
arobertsonpath@...
Job opening: The Team Project is taking applications for Regional Coordinator:
To provide training, information, referral, and technical assistance to parents
and professionals in Region 2 (Corpus Christi Area). The project has an
established training curriculum and numerous publications for dissemination.
The position requires significant data collection and reporting. Travel
required. Contact the TEAM for more information 877-832-8945
www.partnerstx.org
---------------------------------
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Saludos a todos ,
Me añado a este comentario tal ves de una manera de menos alcance como ,o lo
fue la television, pero del mismo modo preocupante , soy de Puerto Rico .Mi
experiencia alrededor de la isla y la modalidad de hoy es que si existe una
persona a tu alrededor quees lento , o que no comprende rapidamente lo
adiestrado o que no habla casi , le dicen el autista .
Esta situacion es algo alarmante, ya que imaginese con lo dificil que resulta
ser la adaptacion de un autista en nuestra sociedad tengamos que enfrentarnos
con una burla a este grupo constante y sin medida a diario . Deberemos tambien
prepararnos y luchar tambien con aquellos que dentro de su ignorancia pueden
cometer la falta de prudencia y respeto por un grupo de personas discapacitadas
. Solo por que esta condicion es una que en la mayoria de los casos no se puede
ver a simple vista no significa que andemos por el mundo. menospreciando a los
seres humanos sin conocerlos en realidad.
Madre de un niño Autista de 3 años
alma_rosa_99 <no_reply@yahoogroups.com> wrote:
Este fin de semana en el canal de Televisa el de las estrellas saldrá
un programa que esta causando mucho revuelo entre los padres de
chicos con autismo de habla hispana en los estados unidos.
El programa se llama Lo veremos todo con Niurka y Bobby y este es su
foro dentro de univison
http://foro.univision.com/univision/board?board.id=loveremostodo
Un programa desde mi punto de vista carente de valores que es cosa
ahora común del gusto del publico y no importa los bueno de un
artista lo que importa es el escándalo y que jale Gente para tener
cosas estelares.. bueno el caso es que salió una Señora Grande muy
conocida por mi México llamada Carmen Salinas y muy querida por las
clases popupales del Pais y dijo un comentario para insultar al Sr.
Larios y le dijo que era el hijo autista de Niurka..
Mi opinión es:
Yo la verdad no creo que la intención de la Sra Carmen Salinas fue
directamente con la intención de insultar a nuestros hijos, fue un
comentario innecesario con la intención de opinar sobre un tema y sin
medir la dimensión de sus palabras... mezclo sin querer queriendo un
termino que esta ahora saliendo de moda, miro tantas notas
periodísticas y es para mi común que estén como que descubriendo
apenas la palabra * se la dicen a pintores, músicos, políticos...etc.
y es por esto que salto cuando veo la que quieren poner de moda para
insultar a personas el decir que tienen autismo y que por esto
personas sanas están presentando esas conductas para ellos
inadecuadas..
Conducta social muy preocupante y que con justa razón saltamos y
reclamamos las personas allegadas al autismo.. tanto que luchamos por
que se le de respeto a las personas con discapacidad.. como permitir
que impongan la moda de dar insultos aplicando este termino..
Es por eso que les informo lo de una de cada 166 caen dentro del
autismo y es amuchas personas a quienes están haciendo sentir mal,
eso hice cuando le escribí a Brozo ( Víctor Trujillo ) cuando le
digo no insulte a las personas con autismo ni a quienes estamos
directamente cerca de ellos... Les informas esto y ellos
automáticamente lo traducen en espectadores.
Estoy esperando que salga este fin la repetición en los canales de
televisa para decirles lo contradictorio de su proceder, ya que como
es posible que hagan tantas horas de teleton y que estén dando salida
a programas de tan poco valor, la televisión esta cada día peor tan
escasa de valores humanos, llena de violencia, malas palabras y
faltos de respeto entre unos y otros seres humanos.. programas de
chistes donde insultan por ejemplo a los invidentes, personas
tartamudas, enfermos de sus facultades mentales.. etc y para rematar
ahora se meten con el Autismo y aquí si salto yo!!!
Madre de un joven de 14 que tiene este síndrome!!!
No dejemos que la moda de dar insultos sea empleada la palabra
autismo ya que ellos son lideres de opinión y si nosotros lo
permitimos y no hacemos algo al respecto mañana serán todos quienes
usen de burla la condición de nuestros hijos.
Estamos a tiempo de quitar las malas hierbitas que están creciendo
entorno al autismo hagamos y digamos algo que aun es tiempo antes de
que impongan mas la moda los lideres de opinión
Alma~
Discapacidad: El 10 por ciento de la población actual la tiene y
Todos somos vulnerables!!!
Bonito día
http://mx.geocities.com/la_casita_del_autismo/alma.htmlhttp://groups.msn.com/Betin/_whatsnew.msnw
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[Non-text portions of this message have been removed]
Este fin de semana en el canal de Televisa el de las estrellas saldrá
un programa que esta causando mucho revuelo entre los padres de
chicos con autismo de habla hispana en los estados unidos.
El programa se llama Lo veremos todo con Niurka y Bobby y este es su
foro dentro de univison
http://foro.univision.com/univision/board?board.id=loveremostodo
Un programa desde mi punto de vista carente de valores que es cosa
ahora común del gusto del publico y no importa los bueno de un
artista lo que importa es el escándalo y que jale Gente para tener
cosas estelares.. bueno el caso es que salió una Señora Grande muy
conocida por mi México llamada Carmen Salinas y muy querida por las
clases popupales del Pais y dijo un comentario para insultar al Sr.
Larios y le dijo que era el hijo autista de Niurka..
Mi opinión es:
Yo la verdad no creo que la intención de la Sra Carmen Salinas fue
directamente con la intención de insultar a nuestros hijos, fue un
comentario innecesario con la intención de opinar sobre un tema y sin
medir la dimensión de sus palabras... mezclo sin querer queriendo un
termino que esta ahora saliendo de moda, miro tantas notas
periodísticas y es para mi común que estén como que descubriendo
apenas la palabra * se la dicen a pintores, músicos, políticos...etc.
y es por esto que salto cuando veo la que quieren poner de moda para
insultar a personas el decir que tienen autismo y que por esto
personas sanas están presentando esas conductas para ellos
inadecuadas..
Conducta social muy preocupante y que con justa razón saltamos y
reclamamos las personas allegadas al autismo.. tanto que luchamos por
que se le de respeto a las personas con discapacidad.. como permitir
que impongan la moda de dar insultos aplicando este termino..
Es por eso que les informo lo de una de cada 166 caen dentro del
autismo y es amuchas personas a quienes están haciendo sentir mal,
eso hice cuando le escribí a Brozo ( Víctor Trujillo ) cuando le
digo no insulte a las personas con autismo ni a quienes estamos
directamente cerca de ellos... Les informas esto y ellos
automáticamente lo traducen en espectadores.
Estoy esperando que salga este fin la repetición en los canales de
televisa para decirles lo contradictorio de su proceder, ya que como
es posible que hagan tantas horas de teleton y que estén dando salida
a programas de tan poco valor, la televisión esta cada día peor tan
escasa de valores humanos, llena de violencia, malas palabras y
faltos de respeto entre unos y otros seres humanos.. programas de
chistes donde insultan por ejemplo a los invidentes, personas
tartamudas, enfermos de sus facultades mentales.. etc y para rematar
ahora se meten con el Autismo y aquí si salto yo!!!
Madre de un joven de 14 que tiene este síndrome!!!
No dejemos que la moda de dar insultos sea empleada la palabra
autismo ya que ellos son lideres de opinión y si nosotros lo
permitimos y no hacemos algo al respecto mañana serán todos quienes
usen de burla la condición de nuestros hijos.
Estamos a tiempo de quitar las malas hierbitas que están creciendo
entorno al autismo hagamos y digamos algo que aun es tiempo antes de
que impongan mas la moda los lideres de opinión
Alma~
Discapacidad: El 10 por ciento de la población actual la tiene y
Todos somos vulnerables!!!
Bonito día
http://mx.geocities.com/la_casita_del_autismo/alma.htmlhttp://groups.msn.com/Betin/_whatsnew.msnw
Ayer eras mi hijo, mi gran alegría.
Juntos corríamos y reíamos por tantas ocurrencias que armabas del
detalle mas simple.
Preferías estar conmigo que con tus compañeritos y tu emoción te
hacía mover tus manos como queriendo emprender el vuelo y alcanzarme
para darme un beso.
Ayer, yo era tu padre, tu gran amigo y guía. Eras motivo de mi
orgullo y no desaprovechaba la oportunidad de presumir tu foto antes
mi amigos. Te soñaba cuando crecieras como un gran hombre, el
mejor profesionista, el centro de atención.
Pero hoy todo es diferente....
Hoy me he enterado que tienes autismo y las cosas ya no pueden ser
iguales porque haz cambiado.
Todo eso que adoraba en tí se ha convertido en conductas
estereotipadas que te caracterizan. Dejaste de ser mi hijo y eres
ahora el autista.
Yo también he cambiado, pues he dejado de ser tu padre para
convertirme en tu guardián protector. Lo que antes fueron
esperanzas hoy son mi calvario. Evito salir contigo a la calle y
cambio la plática cuando mis amigos hablan de sus hijos.
¿Qué fué lo que produjo ese cambio en nosotros dos?
Obviamente, tu sigues siendo igual, tú no has cambiado.
He permitido que una etiqueta te aleje de mí y en tu silencio
desaprovecho la oportunidad de vivir intensamente mi paternidad.
No, hijo... tu estás bien, pues tus ojos aún brillan al mirarme.
Mis ojos fueron los que ahora te miran diferente, tan solo porque
neciamente pretendí hacer de tí aquello que mi egoísmo guiaba.
Pero al igual que pude decidir llorar, también puedo decidir reir.
Ese momento en que recibí la noticia de tu condición marcó una pauta
en nuestras vidas, pero hoy puedo revertir eso y tratar de recuperar
ese tiempo valioso que hemos perdido.
La diferencia no está en la etiqueta, está en mi mente y sobre ella,
mis sentimientos gobiernan y puedo cambiar mis apreciaciones. Hoy
te prometo que seré feliz contigo y todo será igual que antes.
¡Juega, gira, aletea, grita, revolotea... y que la gente te vea!
¡Porque tú eres mi hijo... y hoy he decidido volver a ser tu padre!
Yahoo! Groups Notification <autismo2-accept-2ttanzXIH46xsJZ5_SWRiVM@yahoogroups.com> wrote:
Fecha: 19 Nov 2004 17:34:16 -0000 De: Yahoo! Groups Notification Para: autismo2-owner@yahoogroups.com Asunto: MODERATE -- sjcaldera@... posted to autismo2
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> ATTACHMENT part 2 message/rfc822 Fecha: Fri, 19 Nov 2004 09:34:14 -0800 (PST) Para: discapacidades@..., autismo2@yahoogroups.com, autismo1@yahoogroups.com De: sjcaldera Asunto: Fwd: [Lista ACA] Miles en marcha alerta autismo
esteban wrote:To: LISTA ACA
From: esteban Date: Fri, 19 Nov 2004 13:59:53 +0100 Subject: [Lista ACA] Miles en marcha alerta
autismo
Para crear conciencia en el gobierno sobre el problema de la falta de servicios de educación especial, fueron más de 3,500 personas las que formaron parte de la "1ra Marcha de Alerta: Un paso Amigo por el Autismo".
La lluvia no fue obstáculo para que tanto padres como profesionales de la salud, así como niños especiales, fueran los que caminaran en la marcha que se llevó a cabo en la mañana de ayer. La actividad dio comienzo a eso de las 9:20 a.m. en el Departamento de Educación y culminó a las 10:00 a.m. cuando las personas llegaron hasta las instalaciones del estadio Hiram Bithorn en Hato Rey .
"A pesar de que llovió, la gente respondió al llamado que le hicimos para que participaran de esta marcha. En
principio le dijimos a los papás que fueron ellos los que tomaran la decisión de si deseaban llevar a los niños a la marcha y muchos los trajeron a sus niños para que participaran de esta actividad que nos compete a todos los puertorriqueños", manifestó la portavoz de la Alianza de Autismo de Puerto Rico, Aimée Cora, quien junto a un grupo de padres fueron los responsables de la creación de este evento.
Una vez en el lugar las personas pudieron participar de clínicas de salud, así como de grupos de apoyo y charlas de orientación todas en torno al autismo. Asimismo, un grupo de artistas tales como Samuel Hernández , el Grupo Amanecer con Julio César Sanabría, al igual que el grupo de bomba Guateque, llevaron a cabo un espectáculo lleno de alegría a las personas que asistieron a la actividad.
Por su parte, el alcalde de San Juan, Jorge Santini, entregó la proclama de la actividad a Mylene Vázquez, quien pertenece a la organización de
autismo y además fue la persona que propuso la creación de esta actividad.
"Propuse esta actividad porque en Puerto Rico hay una gran necesidad de servicios para los niños autistas. Teníamos que hacer algo para crear conciencia de que somos muchas las personas que tenemos niños autistas y necesitamos que el gobierno ofrezca los servicios que por ley tiene que darnos", declaró Vázquez, que tiene un niño autista de cinco años.
----------------------------
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Su Familia: The National Hispanic Family Health Helpline 1-866-Su-Familia (1-866-783-2645) Su Familia offers free reliable and confidential health information in Spanish and English. Call toll free Monday through Friday 9 am to 6 pm Eastern Standard Time.
Our bilingual health information specialists will provide you with basic health information on a wide range of health topics and can refer you to a health care provider in your community.
Su Familia is a program of the National Alliance for Hispanic Health and is made possible by support from the U.S. Department of Health and Human Services, Health Resources and Services Administration (HRSA), Office of Minority
Health.
www.hispanichealth.org
-------------------------------------------
Familias de niños con discapacidades en Texas es un grupo de apoyo por los padres, abuelos, y otra familia de niños con discapacidades. Padres, educadores, y otros profesionales están bienvenidos a participar en discusión de temas que están relacionados con las discapacidades en Texas como la educación, la terapia, la medicación, las leyes educacionales, etc.
Educación Especial Zona 08
Lo invitan a participar en:
CURSO TALLER DE AUTISMO Y ABA
dirigido a padres y maestros
Temario:
· Definición y características
· Comprensión y su manejo
· Paternidad: Calidad de Vida
· Modificación de Conducta (ABA, Lovaas)
· Terapias y Programación
Lugar:
Navajoa, Sonora
Fecha: Jueves 2 y viernes 3 de diciembre del 2004
Horario: 8:30 a.m. a 6:00 p.m.
ENTRADA GRATUITA
Expositor:
Fco. Javier Garza Fernández
Autor del Manual para Padres de Niños Autistas
papá de Javiercito, autista severo de 9 años
Coordinador:
Profr. Arnoldo Ramírez de los Reyes
Tel. 01-642-422-1658
esteban <esteban@...> wrote:To: LISTA ACA
From: esteban
Date: Fri, 19 Nov 2004 13:59:53 +0100
Subject: [Lista ACA] Miles en marcha alerta autismo
http://www.vocero.com/noticia.asp?n=49205&d=11/15/2004
Miles en marcha alerta autismo
EL VOCERO / Angel L. Vázquez
Por: Viviana Colón Colón
Especial para ESCENARIO
Para crear conciencia en el gobierno sobre el problema de la falta de
servicios de educación especial, fueron más de 3,500 personas las que
formaron parte de la "1ra Marcha de Alerta: Un paso Amigo por el Autismo".
La lluvia no fue obstáculo para que tanto padres como profesionales de la
salud, así como niños especiales, fueran los que caminaran en la marcha que
se llevó a cabo en la mañana de ayer. La actividad dio comienzo a eso de las
9:20 a.m. en el Departamento de Educación y culminó a las 10:00 a.m. cuando
las personas llegaron hasta las instalaciones del estadio Hiram Bithorn en
Hato Rey .
"A pesar de que llovió, la gente respondió al llamado que le hicimos para
que participaran de esta marcha. En principio le dijimos a los papás que
fueron ellos los que tomaran la decisión de si deseaban llevar a los niños a
la marcha y muchos los trajeron a sus niños para que participaran de esta
actividad que nos compete a todos los puertorriqueños", manifestó la
portavoz de la Alianza de Autismo de Puerto Rico, Aimée Cora, quien junto a
un grupo de padres fueron los responsables de la creación de este evento.
Una vez en el lugar las personas pudieron participar de clínicas de salud,
así como de grupos de apoyo y charlas de orientación todas en torno al
autismo. Asimismo, un grupo de artistas tales como Samuel Hernández , el
Grupo Amanecer con Julio César Sanabría, al igual que el grupo de bomba
Guateque, llevaron a cabo un espectáculo lleno de alegría a las personas que
asistieron a la actividad.
Por su parte, el alcalde de San Juan, Jorge Santini, entregó la proclama de
la actividad a Mylene Vázquez, quien pertenece a la organización de autismo
y además fue la persona que propuso la creación de esta actividad.
"Propuse esta actividad porque en Puerto Rico hay una gran necesidad de
servicios para los niños autistas. Teníamos que hacer algo para crear
conciencia de que somos muchas las personas que tenemos niños autistas y
necesitamos que el gobierno ofrezca los servicios que por ley tiene que
darnos", declaró Vázquez, que tiene un niño autista de cinco años.
_____________________________________________
"La adversidad vuelve sabio al
hombre." ( Lucio Anneo Séneca )
___________________________
¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯
Los documentos se pueden ver desde la sección de archivos:
http://espanol.groups.yahoo.com/group/ListaACA/files
---------------------------------
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Para visitar tu grupo en Internet, ve a:
http://espanol.groups.yahoo.com/group/ListaACA/
Para cancelar tu suscripción a este grupo, envía un mensaje a:
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[Non-text portions of this message have been removed]
Inflamación cerebral y autismo
Científicos no saben si esa asociación es benéfica o maligna
NUEVA YORK (HealthDay News).— Las personas autistas son propensas a
sufrir una inflamación del cerebro ocasionada por un mal
funcionamiento del sistema inmunológico, señalaron investigadores de
la Escuela de Medicina de la Universidad Johns Hopkins.
Los expertos encontraron evidencia que muestra que los mecanismos
del sistema inmunológico que suelen responder a una inflamación son
constantemente activados en las personas autistas.
Refuerzan teoría
"Estos resultados refuerzan la teoría de que la activación del
sistema inmunológico en el cerebro tiene que ver con el autismo,
aunque no está claro si es benéfico, perjudicial o ambas cosas, para
el desarrollo del cerebro", comentó el autor del estudio, doctor
Carlos A. Pardo Villamizar, en un comunicado de prensa.
El doctor Pardo y su equipo de especialistas examinaron el tejido
cerebral de 11 personas autistas, de 5 a 44 años de edad, que
murieron a causa de accidentes o lesiones. Los expertos encontraron
que, comparado con el cerebro de personas normales, el de los
autistas mostraba signos de una inflamación y de una constante
activación del sistema inmunológico.
"Este proceso inflamatorio estaba presente en áreas diferentes del
cerebro, y fue producido por células conocidas como microglia y
astroglia", explicó.
El estudio se publicó en el más reciente número en línea de los
Anales de Neurología.
"Estos resultados abren nuevas posibilidades para entender los
cambios dinámicos que ocurren en el cerebro de los autistas durante
la infancia y la etapa adulta", detalló el galeno.
"Aunque estos datos pueden llevarnos al desarrollo de nuevos
tratamientos médicos contra el autismo, se necesita una mayor
investigación para establecer la validez de este enfoque".
*-*-*-*-*-*-*-*-*-*-*-*-*-*-
El autismo puede tener una base autoinmunológica
El equipo de Simon Murch, del Centro de Gastroenterología Pediátrica
de la Universidad Royal Free, en Londres, sugiere en un estudio
publicado en la revista científica 'Molecular Psychiatry' que el
autismo puede tener bases inmunológicas.
El trabajo se ha llevado a cabo en niños con una forma de autismo
caracterizada por una regresión en el segundo año de vida, después de
un desarrollo aparentemente normal. Los primeros indicios sobre la
posible relación entre autismo y patología autoinmune se vieron en
este grupo de pacientes, ya que se observó que existía una regulación
anormal del sistema inmunitario. En diferentes estudios se constató
que el tejido más afectado era la mucosa del colon.
En el trabajo se ha empleado un amplio panel de anticuerpos
monoclonales y se han llevado a cabo comparaciones con otras
enfermedades, como la celiaca, la parálisis cerebral o el retraso
mental.
Murch ha indicado que los datos del trabajo sostienen la tesis de las
bases autoinmunes del autismo, sobre todo centradas en las anomalías
del intestino. No obstante, quedan muchas preguntas por responder,
como si estos hallazgos se pueden aplicar a todos los casos de
autismo.
Los investigadores creen que el citado estudio ayudará a cambiar las
pautas actuales de tratamiento y se emplearán nuevas terapias
destinadas a modular la respuesta inmunitaria en las primeras fases
del autismo.
*-*-*-*-*-*-*-*-*-*-*--*-*
¿Autismo una enfermedad autoinmune?
Fuente: Autism an Autoimmune Illness?
http://autism.about.com/library/weekly/aa092602a.htm
La investigación demuestra una posible unificación en teorías
Ensamble la discusión
"Le estoy pidiendo a cada uno de ustedes cariñosos padres de allí
fuera quiénes no lo han hecho ya... por favor, intentan por favor la
dieta libre de gluten , libre de caseína para su niño. Yo era muy
escéptico pero por favor tomese un minuto y lea."
¿Enfermedad? ¿El ayudar de la dieta? ¿Qué usted piensa?
Recursos Relacionados
• Autismo y desórdenes autoinmunes en aumento
• El Proyecto De la Autoinmunidad De Autismo
• qImplementando la dieta de GFCF
A otra parte en la Red
• El Proyecto De la Autoinmunidad Del Autismo
Recientemente ha habido enorme cantidad de especulación e
investigación en la posibilidad que el autismo sea una enfermedad
autoinmune. Visto siempre como una condición mental o una condición
que afecta el cerebro, viendo el autismo como una enfermedad real
pone una entera cara nueva en cómo se manejan y se tratan los
Desórdenes del Espectro Autista. Sería una cambio importante en el
pensamiento en los sistemas médicos y educativos por todo el mundo.
¿Qué es una enfermedad autoinmune? El sistema inmune es uno de los
sistemas más vitales del cuerpo humano. Sirve para protegernos contra
enfermedades enviando las células blancas de la sangre a encontrar y
destruir los virus y las bacterias que pueden dañar el cuerpo
causando enfermedad. Es incluso posible que estas células ordenen a
un linfocito que destruya una célula que ha vuelto cancerosa.
Normalmente este sistema trabaja eficientemente y sin nuestro
conocimiento. Es como los soldados que están en patrulla; trabajando
constante y silenciosamente para estar seguro que se está haciendo el
trabajo.
Sin embargo, el sistema puede ir a veces mal y las mismas células que
estan allí para protegernos se ponen en nuestra contra y comienzan a
atacar las células propias, los tejidos finos y los órganos del
cuerpo. ¿El resultado? Enfermedad autoinmune. Las enfermedades
autoinmunes comunes son artritis reumatoide, lupus, y enfermedad de
tiroides junto con muchas enfermedades menos comunes tales como
Addison, enfermedad mezclada del tejido fino conectivo y muchos
otras. La causa es desconocida. Porqué el cuerpo se giraría contra sí
mismo es un misterio que los investigadores están intentando
continuamente solucionar.
La posibilidad que el autismo podría ser una enfermedad autoinmune es
una teoría que está siendo investigada por varios centros. La
investigación reciente de Aristo Vojdani, profesor auxiliar de la
investigación en neurobiología en UCLA y director de Immunosciences
Lab Inc. en Beverly Hills, California, ha producido un estudio que
reúne una teoría sobre porqué es posible que la infección produzca
los síntomas que se ven en niños de ASD.
El profesor Vojdani estudió la sangre de niños, con y sin autismo, y
descubrió que los niños autísticos tenían un anticuerpo que reaccionó
a las proteínas de la leche y al estreptococo y a los pneumoniae de
Chlamydia, dos infecciones comunes. El problema es que los
anticuerpos que están reaccionando a estas proteínas e infecciones
están dañando posiblemente la barrera del cerebro de la sangre.
Combine esto con el hecho que las toxinas, tales como mercurio o
thimerosal, pueden entonces cruzarse en el cerebro a través de la
barrera dañada del cerebro de la sangre, causando daño al tejido fino
del cerebro.
El instituto de investigación de Autismo en Yale está tomando un
acercamiento más conservador y está recomendando a los padres no
cambiar las dietas de sus niños hasta que la investigación puede ser
replegada. Sin embargo, Bradley Pearce, MD, el profesor auxiliar de
psiquiatría en la escuela de medicina de la universidad de Emory en
Atlanta comenta, "Yo pienso que hay validez substancial a la idea que
la autoinmunidad está ligada al autismo."
La teoría es fascinante. Los padres han divulgado repetidamente que
eliminando productos de la leche y del trigo, la dieta de GFCF, ha
ayudado a sus niños. Muchos padres también estan convencidos que las
vacunas, o mas bien el thimerosal que ha estado en la mayoría de las
vacunaciones infantiles, ha causado el autismo de sus niños. Esta
teoría ata todas los cabos sueltos. La genética incluso está
implicadas en esta teoría, pues las enfermedades autoinmunes tienden
a correr en familias. Recibo personalmente email en una base regular
sobre un padre, generalmente madre, con una enfermedad autoinmune que
tenga un niño con autismo.
El jurado está afuera en la investigación. Al igual que toda
investigación, toma tiempo descubrir qué papel juega la autoinmunidad
en el rompecabezas ASD pero parece que ésta es un área que será
excavada profundamente.
*-*-*-*-*-*-*-*-*-*-*
Autismo Dietas
http://groups.msn.com/AutismoDietas/algunosestudios.msnw
*-*-*-*-*-*-*-*-*-*-*-
Su Familia: The National Hispanic Family Health Helpline
National Hispanic Prenatal Helpline (NHPH)
National Hispanic Indoor Air Quality Helpline
---------------------------------------------------------------------
-----------
Su Familia: The National Hispanic Family Health Helpline
1-866-Su-Familia (1-866-783-2645)
Su Familia offers free reliable and confidential health information
in Spanish and English. Call toll free Monday through Friday 9 am to
6 pm Eastern Standard Time.
Our bilingual health information specialists will provide you with
basic health information on a wide range of health topics and can
refer you to a health care provider in your community.
Su Familia is a program of the National Alliance for Hispanic Health
and is made possible by support from the U.S. Department of Health
and Human Services, Health Resources and Services Administration
(HRSA), Office of Minority Health.
www.hispanichealth.org
Familias de niños con discapacidades en Texas es un grupo de apoyo
por los padres, abuelos, y otra familia de niños con discapacidades.
Padres, educadores, y otros profesionales están bienvenidos a
participar en discusión de temas que están relacionados con las
discapacidades en Texas como la educación, la terapia, la
medicación, las leyes educacionales, etc.
Si tiene interes en este grupo, vaya a
http://yahoogroups.com/group/DiscapacidadesEnTexas
para afiliarse
Sara Caldera
Estimados Amigos:
Este 27 y 28 de noviembre del 2004, impartiré el curso esta vez en
Aguascalientes, Ags.
Dicho curso ha sido organizado por nuestra amiga Leticia Domínguez
de LINCA.
Para mayores informes, escriban a lincaorg@... o accesen la
siguiente dirección:
http://www.linca.org/eventos.html
Saludos,
Javier Garza
Traductor
http://www.google.com.mx/language_tools?hl=es
Stresses on Families
http://www.patientcenters.com/autism/news/stress_family.html
----------------------------------------------------------------------
----------
The following excerpt is taken from Chapter 10 of Autistic Spectrum
Disorders: Understanding the Diagnosis and Getting Help by Mitzi
Waltz, copyright 2002 by O'Reilly & Associates, Inc. For book
orders/information, call (800) 998-9938. Permission is granted to
print and distribute this excerpt for noncommercial use as long as
the above source is included. The information in this article is
meant to educate and should not be used as an alternative for
professional medical care.
----------------------------------------------------------------------
----------
Withdrawal and overinvolvement
Burnout and respite
Resentment
Genetic blame
Parental neuropsychiatric problems
Siblings
Lack of family support
Community isolation
Financial problems
Family therapy
Separation and divorce
Single parents
Multigenerational living
Noncustodial parents
Adoption and foster care
Withdrawal and overinvolvement
In some families with a disabled child, one parent tends to stay as
remote from the situation as possible whereas another's involvement
borders on obsession. The withdrawn parent may be just as concerned,
but either doesn't have the coping skills or has delegated
responsibility to the more involved partner. Generally-but not always-
fathers tend to withdraw, and mothers tend to jump in with both feet.
My relationship with my husband is changed due to his (and most
males', I'm finding) lack of whatever it takes to deal with this
disability.
--Holly, mother of three-year-old Max (diagnosed PDD-NOS and apraxia
of speech)
This situation is not healthy for either parent, nor does it really
benefit the child. Parents need to keep the lines of communication
open, even when job responsibilities and schedule conflicts force one
partner to be more directly involved in activities like in-home ABA
training, attending school meetings, or talking with doctors.
Set up a time each week to talk about events and, perhaps more
importantly, feelings and frustrations. Try to find ways to keep the
parent who has a tendency to pull back actively involved. Perhaps
that parent can take part in some rambunctious play time while the
other fixes dinner, or can take on a special weekend activity, such
as Scouting, team sports, or a hobby. The trick is to actually
schedule these activities and make sure that they happen. It's a rare
pair of parents who are absolutely fifty-fifty in their involvement,
but for the sake of their partnership, the most-involved parent needs
to know that there will be regularly scheduled break times ahead.
Burnout and respite
What happens when break time doesn't happen? Burnout. No matter how
much you love your child, there will be a day when your batteries
just quit. Single parents, and couples who have a very unbalanced
system of sharing responsibility for their child with a PDD, are at
high risk.
Anyone who's ever had a horrible job knows the symptoms of impending
burnout. You start feeling hopeless, numb, resentful, and angry, all
at the same time. You may get physically ill, suffering from an
increase in headaches, stomachaches, bowel complaints, and fatigue.
You start fantasizing about running away.
Sadly, some parents really do run away--away from their share of
responsibilities, away from their marriage, even away from their
child.
His father simply saw him as flawed, and never became involved in
searching for an answer or diagnosis. He abandoned me, Kevin, and his
younger brother Jonah when the boys were seven and five,
respectively. After I fought through the courts for support, he
surfaced for occasional visits, but lives out of town. He never asks
what is wrong with his son, and isn't careful with him when they are
out in public. Jonah, who is thirteen now, "parents" his brother when
the three of them are together.
--Cindy, mother of fifteen-year-old Jeffrey (diagnosed verbal
dyspraxia with "autistic-like" features)
Don't let this happen to you or your partner. It's okay to say that
you're overwhelmed. Only then can you look for a way to remedy the
situation. If you have trouble doing it on your own, a good family
counselor can help you set up a schedule that gives you some time off
to clear your head, take a class, or just enjoy a quiet cup of tea or
a game of golf. Usually it doesn't take much to lift the burden of
your day-in, day-out duties--but you do have to ask.
Like Jeffrey's father, some parents deal with feelings of guilt,
embarrassment, and shame with denial. These feelings are anything but
easy to work out--particularly for men (or women) who have trouble
articulating their emotions. A little understanding can go a long way.
Single parents, and couples who want their time off to be time
together, should access respite-care services if they are available.
Respite providers are trained to care for disabled youth and adults
for the afternoon, overnight, or even during a family vacation.
Dhylan is very hard to manage at times, and therefore we don't go out
without him (kind of like the American Express card). We just applied
for respite care and are hoping we get it. A break is so important.
--Sally, mother of four-year-old Dhylan (diagnosed PDD-NOS with
autistic features)
Respite care may be available at no or low cost through community
agencies, public or private. A county caseworker or local disability
organization should be able to put you in touch with respite
resources in your area.
As an alternative, perhaps you can set up an informal respite
arrangement with one or more parents of children with disabilities in
your area. For young children, play-group co-ops can be a great idea,
and they're one that many parents are already familiar with. The same
concept can work with older kids and even adults cared for at home
too, and can be extended to cover overnight care and occasionally
longer visits.
If you have the financial resources, of course, you could hire
someone with appropriate training to provide respite services in your
home on occasion. If a nearby college has a special education degree
program, students may be able to earn extra credit and gain valuable
experience, as well as earning some money, by caring for your child.
Summer day-camp programs, overnight camps, "parents' night out"
programs, and other options are also available for giving yourself
some much-needed time off. It's not a selfish thing to do at all; in
fact, avoiding burnout is an essential part of being a good parent
for a child with PDDs. The sanity you save may be your own!
Resentment
Resentment is an ever-present emotion in families affected by
disabilities. Unfortunately, it usually festers away in private, only
surfacing when an argument crosses the line of civility. It's hard
not to feel resentment when this diagnosis can take so much away from
your life: free time, undisturbed sleep, quiet mealtimes, the ability
to go places with your old friends and their "normal" children,
community approval, financial security ... the list goes on.
My husband has had to put off finishing school and finding a career
in order to stay with my son during the day. He feels some resentment
towards that, but now we have the common goal of our son to keep us
warm.
--Shayna, mother of three-year-old Max (diagnosed multisystem
developmental disorder)
Resentment is the result of feeling like you're not getting a fair
shake, so it's important that any suffering that's being done for the
child's sake is validated by other family members. No one should feel
like a silent martyr (and with any luck, no one will act like one
either).
Siblings may harbor more resentment toward their disabled sister or
brother than they're willing to admit. We'll discuss this in
the "Siblings" section later in this article.
Genetic blame
Family problems are often compounded by the red herring of "genetic
blame": whose crummy genes caused this PDD problem, anyway? You would
be surprised at how often this unspoken issue underlies arguments
that only appear to be about disciplinary methods or parenting style.
When it finally comes out into the open, watch out!
Parents and relatives all need to know that PDDs are neither rare nor
exclusively found in your respective families. You could not have
predicted that your child would have this diagnosis, not even if you
had discussed every unusual relative in your respective family trees
before procreating. Nor could a professional genetic counselor have
been of much use.
It may also be useful to remind each other about what's good in your
genetic heritage or your partner's. The same side that passed on the
genes for PDDs probably also passed on many wonderful
characteristics, which hopefully your child will also share.
Also, make an agreement with your partner early on that if your
parents or other family members try to start a genetic blame
conversation, you will nip it in the bud immediately.
Parental neuropsychiatric problems
Some real parenting issues do stem from genetic heritage. Autistic
spectrum disorders are, at least in part, inherited disorders. It is
not uncommon for one or both parents to have neurological
difficulties of their own, and these may make it even harder to raise
a child with an ASD.
Some professionals have said that a few of Bruno Bettelheim's "cold
and distant" mothers of autistic children may have actually been
suffering from mild forms of autism themselves. Certainly, parents of
children with PDDs have a slightly higher incidence of depression and
other mental disorders, as well as a higher incidence of health
problems in general, perhaps related to an underlying immune-system
dysfunction. Some of this may be genetically based, although some may
derive from being in a difficult situation.
It's best to be open about these problems with your medical provider.
Medical care and counseling for your own neuropsychiatric problems
can help you feel better, and that alone will make you a better
parent. You will be more available to your child, more patient, and
less easily stressed.
Unfortunately, it isn't always to your advantage to let state or
school authorities know if you are experiencing mental or physical
problems. There are many people in social services and education who
have negative attitudes about parents with psychiatric or
neurological diagnoses. They may not take you seriously when you
discuss your child's needs, and in some cases you may even be in
danger of losing your children.
Siblings
When a child is in crisis, the everyday problems of her brothers and
sisters seem to recede into the background. Reactions differ.
Siblings may become superachievers to get their share of the
attention--or they may seek negative pursuits, for the same reason.
Resentment is also a natural reaction when another child in the
family takes more attention and more financial resources than you do.
Our child's siblings are wonderful with him, however, they do
sometimes feel that he gets away with more. But so far we have been
able to talk this out with them.
--Julie, mother of four-year-old Sean (diagnosed PDD-NOS)
Problems faced by the siblings of disabled children are beginning to
get more attention. Books are available that discuss typical
reactions. One of the best is Views from Our Shoes: Growing up with a
Brother or Sister with Special Needs (Meyer, Woodbine House, 1997).
It's an excellent guide to sibling issues, and it's written from the
children's point of view.
Chat groups and workshops can also help. You may be able to get your
other children involved in SibShops, which are part of a Seattle-
based sibling-support project. SibShops and similar workshops give
siblings a chance to meet other kids their age who share their
situation. With a little help from adult facilitators, these
workshops can help siblings talk about their feelings and fears.
Friendships are frequently a nice side effect.
You can find an international directory of sibling support groups,
including SibShops, at
www.chmc.org/departmt/sibsupp/sibshopdirectory_map.htm. This site
also has links to a variety of online and offline resources for
siblings.
The behaviors of people with ASD can be difficult for siblings to
deal with. If your child has behaviors that are aggressive or
assaultive, dealing with these is the first order of business. It's
not fair for your other children to be at risk for actual harm. If
you need this kind of help, call a behavioral professional
immediately.
You may need to take special steps to safeguard the personal property
of your other children, and to ensure that they have a quiet place to
get away from your disabled child's tantrums, loud noises, or
intrusive behaviors. Some of the solutions are not things that most
parents would normally want to do. Possibilities include putting a
keyed lock on a child's door, situating children's bedrooms as far
apart in your home as possible, and providing niceties like a
telephone, television, computer, or stereo in the child's room (or in
a lockable family room) to permit their uninterrupted use. You'll
have to set rules for the use of these devices that prevents the
sibling from withdrawing into couch-potato land, of course.
It goes without saying that a fair share of your time is far more
important than possessions, space, or even privacy. It's essential to
make some special time for your other children. Some parents have a
meal out, go to a movie, or enjoy an activity with their other
children each week, and swear by the results. Ensure that your other
children can find time to talk with you about school, friends, ideas,
and concerns, without interruptions from your child with a PDD. You
may need to be flexible about bedtimes one night each week, allowing
another child to stay up just a bit later than usual to enjoy some
one-on-one time with you. Another way to carve out time is to wake
one child up a bit early once a week for a cup of cocoa and some
quiet talk.
Your extended family may be able to help by taking up some of the
slack. Grandparents, aunts and uncles, or older cousins may be
available to take on some minor duties, such as transporting another
child to soccer practice twice a week. Some grandparents may even be
willing to fund enrichment activities or excursions together. Many
families have special friends or neighbors who might be willing to
get more involved, if you ask--this system can work out very well if
you can recruit the parents of a sibling's friends. Family friends,
and other trusted adults in the community, can act as mentors and
advisors, and help your other children pursue personal interests.
Most siblings do have worries and questions about ASDs, and they may
be afraid to talk to you about their fears. Children are exquisitely
sensitive to family stress, and they don't want to burden you with
more. It's essential for their well-being that these issues be put on
the table, though. Common fears include wondering if their sibling is
going to die from his illness, worries about possibly dangerous
medication, feeling different from other children who don't have a
disabled sibling, being teased because of their sibling's odd
behaviors, and fear that their parents are unconcerned with their
needs because of the other child's demands.
Quality information is the key. There are some films available that
can help you start the conversation. What's Eating Gilbert Grape?,
starring Johnny Depp and Leonardo DiCaprio, is a particularly good
one, as is the Dustin Hoffman-Tom Cruise film Rain Man, although both
portray individuals with more severe forms of autism. Short videos
for siblings may be available through disability advocacy
organizations as well.
There are quite a few children's books on autism. For siblings of
severely affected children, these can be great. For those with
brothers and sisters who have milder forms of autism, these can be
more frightening than reassuring. They may fear that their sibling
will become "worse," like the child in the story, or they may not
identify their sibling with the more severely autistic child at all.
Teens often find books by high-functioning autistic writers like
Donna Williams or Temple Grandin interesting and informative.
Adolescent and adult siblings may resent the very real impact on
their future of having a brother or sister with a disability. As
Joe's quote in the section "Financial problems," later in this
article, illustrates, siblings may lose out on a lot, including
opportunities for higher education, participation in community sports
leagues, music and dance lessons, having a car, or (as explored to
tragi-comic effect in Rain Man) receiving an inheritance.
They may also fear that as their parents age, they will be expected
to take on increasing responsibilities for their sibling--and this is
not an unreasonable worry. You may indeed need to pass on
guardianship at some point. Your expectations should be discussed as
early as possible.
As siblings approach the teen years, where family conflicts can get
especially difficult, parents will need to ensure that each child has
activities that give him a chance to shine on his own. School
activities, religious youth groups, and volunteer organizations can
be good choices if money is tight due to medical bills.
Lack of family support
If it takes a village to raise a child, some extended families of
autistic-spectrum children don't see themselves as part of that
village.
As far as the extended family, most of them act like Doug doesn't
even exist. That's mainly on Doug's father side of the family. On my
side, Doug is just kind of "there," nobody really does much with him.
I don't have much help or support from them.
--Debbie, mother of eleven-year-old Doug (diagnosed PDD, fragile X
syndrome, and sensory integration disorder)
You ought to be able to turn to your own parents and other relatives
for support and encouragement, but it isn't always possible. Many
families of people with PDDs find that their child is passed over for
family activities, such as invitations to grandmother's house for
Christmas or trips to the mall with siblings. Some family members
even neglect to send birthday cards.
Sometimes the problem is simply a deep-seated prejudice against
disabled people, and you can't do much about that. Often it's related
to a lack of adequate information about the child.
It has been a source of tension in the family because, with my son at
least, diagnosis is not clear-cut. He is not classically autistic and
is, in fact, very affectionate and related to his family, both
immediate and extended. There are those in the family who think
nothing is wrong and say we are stigmatizing him by seeking help.
There are others who think he is just poorly disciplined and out of
control.
--Jennifer, mother of three-year-old Joseph (diagnosed atypical PDD)
It might make you feel uncomfortable to do so, but you can share
evaluations from your child's school or doctor with the family member
(s) who seem to question the disability's existence. Some parents
have even brought a grandparent along for a psychiatrist or doctor
visit, with hopes that hearing the diagnosis from an expert in a
white coat will help it be accepted at last. You might want to
discuss this possibility with one of your most accessible
professionals, perhaps asking that they deliver some suggestions for
helping your child along with information about the disability.
Community isolation
All it takes is one embarrassing episode in the checkout line or at
the public park to make the average parent want to crawl under a
rock. Every time the worst happens, the impulse to withdraw from
public life is amplified.
We cannot do anything with him, except go for car rides (this calms
him), walk with him (he needs the motion), and bring him to the
playground. He prevents people from talking to each other with his
noise and disruptions. He is not communicative, he is hyperactive,
and he makes weird noises. We cannot even bring him out to eat. We
try to shop in the early morning when the stores are empty.
--Joe, father of seven-year-old Kyle (diagnosed PDD with autistic
features)
One of the most difficult areas for family members of people with PDD-
NOS or atypical PDD is dealing with rude or clueless remarks from
strangers. Children with PDDs are rarely beneficiaries of the
sympathy factor. There's no wheelchair or leg brace to signal "this
is a disabled child," so onlookers may assume that they're witnessing
willful misbehavior. Some are quite vocal about letting parents know
it, which can do a number on your self-esteem.
Some people carry cards explaining the problem that they can give to
busybodies. Others have a canned speech for these situations, such
as "My daughter has a neurological problem that can cause [insert the
unusual behavior of the moment here]. I'm sure you understand."
You may be tempted to add, "In other words, she's disabled. What's
your excuse?" although it's probably not a good idea. You may also be
tempted to avoid the problem altogether by disappearing from public
view. But isolation is a breeding ground for depression, and it does
a child with social deficits no favors, either. But what about
parents?
It's sadly true that the friends you had before your child's problems
became evident may fall away. You'll have to be the judge of whether
the cause is fear, prejudice, dislike of your child, or simply the
fact that you have less free time to spend with friends than you used
to. Disability support groups are frequently a source for new, and
potentially rewarding, friendships. On the other hand, you may
struggle mightily to hold onto friendships that have no relationship
to PDDs, just to avoid having your child's disability permeate every
aspect of your life.
As for being included in community activities, such as attending
civic events or religious services, you will probably have to turn
educator to make a place for your family. Some religious bodies do
have formal programs for including people with disabilities in
services and religious life. Check at the national, regional, or
diocese level to find out what's available. Religious life is one
area that many parents interviewed for this book cited as an island
of acceptance in the larger community.
Other interest groups, from car clubs to the Grange to volunteer
organizations, may also be able to find room for you, either with
your entire family or as an individual participant. Be direct: ask
how your child (or your hectic schedule) can be accommodated.
In the US, the Americans with Disabilities Act (ADA) was passed
specifically to ensure that people with disabilities have equal
access to community life and facilities. If your child's condition is
causing discrimination against your entire family, the ADA covers
you, too. The European Community charter and some European countries
have similar regulations--and legality aside, full inclusion is
certainly the ideal that people everywhere should aspire to. Don't be
afraid to assert the natural right that you, your child, and your
family have to participate in everyday life whenever possible.
Financial problems
PDDs can be a financial drain, and that's a family strain. Parents do
cite money woes as a major source of family stress.
We've spent about $11,000 out-of-pocket in four years! We had to
recently use our home-equity line of credit to pay for this, and
haven't been able to save money for our older son's college (we have
four kids, ages seventeen through seven). We rarely can afford nice
vacations, music lessons for the other children, etc. I drive a car
with 200,000 miles on it because we cannot afford a replacement.
--Joe, father of Kyle
As this father's words indicate, money problems are about more than a
low bank account balance. Other family members may miss out on
important opportunities or do without some material things. Unless
the situation is thoroughly and regularly discussed with them, they
may not understand why the person with PDD's needs are costing so
much, and why they are a family priority.
Social services programs are both a source of assistance and a source
of financial difficulty for many families. Job choices and saving
money for future needs may be jeopardized by these programs' earning
and property rules. Parents who want to take advantage of these
services and still meet their responsibilities to their other
children (not to mention to themselves) may need specialized
financial planning
Family therapy
Finding professional help for family problems isn't always easy when
a person with a PDD is part of the equation, because few family
therapists know much about neurological disorders. The wrong
therapist can cause irreparable harm by once again blaming the
parents for the disorder, looking around for nonexistent sexual
abuse, or inflaming feelings of guilt or resentment in one partner.
The last thing we needed was for the therapist to goad us into a
fight during the session. We are dealing with an incredible amount of
stress. At the end of the hour, he got to leave. We got to go home
steaming, our problems still unresolved. When we hadn't gotten around
to talking about making any positive changes after three sessions, we
decided to call it quits.
Parents interviewed for this book cited many negative experiences
with traditional models of family therapy, particularly when sessions
were conducted by inexperienced or "old-school" personnel. Parents of
autistic-spectrum adults interviewed for this book had particularly
heinous tales to tell from the "bad old days." But in the hands of a
competent, experienced professional, family therapy can be a positive
growth experience for people dealing with PDDs.
My main sources of strength are the autism newslist on the Net and
the other parents at therapy.
--Dorthy, mother of five-year-old Jesse (diagnosed PDD-NOS with
autistic tendencies)
According to parents who have tried family therapy, there are two
models that seem to get the best results: "whole family" approaches
that may include working separately with parents, siblings, and the
patient, then bringing everyone together on a regular basis to hash
out interpersonal issues; and group therapy sessions that involve
several parents. The latter can provide families who are new to the
diagnosis with a built-in support system, and participants in well-
run groups report a growing sense of confidence as they, too, are
able to pass knowledge on to others.
The focus of either approach should be less on "fixing" dysfunctional
family systems than on empowering family members with new coping
skills and providing a safe place to work out conflicts. Some
therapeutic groups for parents operate more like parenting classes,
with speakers invited in to discuss various topics of concern to the
group.
Separation and divorce
Marriages suffer when a child is disabled. The legal aspects are
beyond the scope of this book, but it is important that parents of a
child with PDD-NOS or atypical PDD who do choose to end their
relationship take the child's special needs into account.
Issues may include:
Custody arrangements that allow both parents access to the child and
respite. These arrangements may constrain the parents from living too
distant from each other, which can be a difficult situation.
Financial settlements that take into account the added expenditures
needed to care for a disabled child, possibly including extended
alimony for a stay-at-home parent.
Financial arrangements to ensure that both parents will be
responsible for the child's needs after the age of eighteen (most
divorce decrees only cover support until the age of legal majority).
Written agreements about which parent will pay for medical bills,
tuition, therapy, and other expenses related to the disability, and
to ensure that health-insurance coverage is maintained.
Special agreements may be needed if the divorce is due to abuse,
neglect, or substance abuse by one parent, in order to protect the
child.
There's very little good that can be said about families splitting
up, unless it's for reasons of safety. Parents should simply do their
best to ensure that each partner's relationship with the child(ren)
is maintained. Professional help, either in the form of social-worker
aid or family counseling, is strongly advised.
Single parents
Couple problems are plenty of trouble, but it's trouble that those
going it alone sometimes wish they had. No matter how ineffectual one
half of a couple is, your partner is still an adult sounding board
and a shoulder to cry on.
Single parents also face increased financial pressure, and have a
terrible time getting meetings with school districts, doctors, and
other helpers to fit into their schedule. Voicemail, pagers, email,
and fax machines can be the single parent's best friends. You may
also try to fit several appointments (school, psychiatrist, and
pediatrician, for example) into one day off work. If your child has a
low tolerance level, however, the results may not be great.
Some therapists do offer evening and weekend hours, and school
districts can often be convinced to hold early-morning meetings. You
may need to work with an advocate who can represent you at meetings.
A friend, relative, sitter, or professional hired specifically for
the purpose may be able to take your child to medical appointments.
And don't forget to take some time out for you--if you can find it!
There's nothing like a child with a PDD to stop any semblance of a
post-breakup love life. The time commitment alone may take you away
from the dating world for years, and explaining what your home life
is like could turn off a potential mate.
Theron's behavior problems keep me from finding a partner to share my
life with, as his father left six years ago. His two younger brothers
have many of the same problems, though not the same diagnoses, so my
attention is divided fairly equally amongst them, none for me!
--Ann, mother of eight-year-old Theron (diagnosed PDD-NOS, psychotic
disorder, borderline intellectual functioning)
Single parents have more reason than any others to seek allies in
their extended family or community. Respite care and quality after-
school care are absolute necessities. Foster grandparents programs,
Big Brothers, Scouting, religious institutions, and parent groups can
all be part of your web of support.
Multigenerational living
If you're part of the "sandwich generation"--caring for children and
aging parents at once--your family also faces extra stress.
Older relatives in the home can be a wonderful addition to your life,
but if they have many medical needs of their own or can't handle the
behaviors of your child with a PDD, the situation will eventually
explode.
An extra pair of hands is a must in these situations. In the US,
Canada, Britain, Australia, and most parts of Europe, home health
aides are available for frail or disabled elderly people, even when
they are cared for by their children. Private social-service agencies
and religious institutions may also be able to provide assistance.
Housekeeping help may give you more time for the important stuff, if
you can afford it. Again, volunteer help or public assistance may be
available in this area. Contact your government department for
services to the elderly for more information, and be sure to explain
that you have the extra burden of caring for a disabled child.
As with siblings, you may need to take special care to ensure that
older relatives are safe from aggressive or assaultive behaviors, and
that they can secure their possessions and peace of mind. Locks,
latches, intercoms, and soundproofing can help in some situations.
Noncustodial parents
In some countries, and in some US states, parents are told that they
must give up legal custody of their child to the state if he needs
publicly funded residential services. Disability advocacy
organizations can help you sort through various options.
Giving up custody need not mean having no input. However, some
programs are so unused to parental involvement that they aren't sure
how to include family members in the lives of their institutionalized
clients. Set up a meeting to discuss the ways you can help your
child, activities you want to continue to share and, if applicable,
issues related to financial management and personal safety.
Although full independence is every parent's goal, some adults with
PDDs do continue to need help and oversight long after the age of 18
or 21--and retaining a close relationship with one's parents is
valuable in and of itself. Custody issues can get in the way here,
however. Once your child has reached the age of majority, you don't
have the right to determine her medical care or to control any other
aspect of her personal life. You may find yourself shut out of
important decisions about housing, food, medical care, education, and
vocational choices. If your child is able to handle these choices
alone, that's great, even if you don't always agree with her
decisions. For many families, the problems occur when the adult
child's friends, therapists, or professionals with various programs
start calling the plays. You may not be sure that your adult child is
in agreement with these decisions, and sometimes these individuals
will deliberately try to prevent you from having access to the
decision-making process. Your input can help ensure your child's
safety and keep his personal needs met. You may need to take legal
steps to make sure that you stay in the picture.
Divorce can also prevent parents from retaining full custody. Both
parents' level of personal and financial involvement should be
written into the divorce settlement. If the settlement is
unsatisfactory, or you are being prevented from involvement in your
child's life, you will need legal help to assert your custodial
rights.
Medical care is a frequent sticking point. If parents disagree about
the right medical approach (for example, if one is totally opposed to
using medications and the other is not, or if one prefers a
traditional approach while the other is into alternative therapies),
they may need to use the services of a counselor or arbitrator to
work things out. Alternatively, parents may be able to agree on a
practitioner or program, and simply agree that both will abide by the
recommendations of this third party.
Worst of all is the situation of having your children forcibly taken
from you. This has happened to parents of children with neurological
disorders when uninformed social workers thought the child's behavior
resulted from abuse, especially when the disorder had not been
diagnosed before the action took place. Parental neuropsychiatric
problems are often a complicating factor in such cases. Of course,
families of people with PDDs are not immune to abuse, neglect, or
parental substance-abuse problems, either.
If you feel that you are at risk of losing custody of your child to
the state or to an ex-spouse, do not delay in seeking legal (and
medical) support. Disability advocacy organizations may be able to
provide you with advice and, in some cases, legal assistance.
Adoption and foster care
Although hard numbers are not available due to confidentiality laws,
it's well known that childhood disability is a major factor in
adoption and foster care placements by natural parents. Some simply
don't have the knowledge or resources to take care of a child with a
potentially lifelong disability. Tragically, these children are among
the hardest to place. Parents who step up for this duty deserve a
medal and may need special support.
Stevie was originally diagnosed as deaf, which is why I got him, as I
sign. He was three and a half years old when first diagnosed with
autism. I'm in the process of adopting him. His deprivation was so
severe we aren't sure just how much is the autism and how much is the
deprivation.
Unfortunately, Early Intervention wasn't an option in his case. All
diagnosis, progress, services, schooling, etc., started 21 months
ago, when he came to live with me.
Finding community resources has been the biggest thorn in my side. We
are hooked up with a regional center that tends to pass the buck to
the foster agency or school district until the adoption is final. Our
FFA [foster family agency] has not been helpful in any way. No
backup, no help finding babysitting services, it all falls on me. I'm
not complaining, honest, I wouldn't trade my life now with Stevie for
anything!
As I am raising Stevie as a single mother, I can tell you that I have
depleted most of my savings and live hand-to-mouth many months. Even
though I receive a monthly stipend for him, it hardly covers the cost
of shoes! It's a great struggle, but I have great faith and trust in
a Higher Power ... if I didn't, I couldn't survive.
--Roni, foster parent, and soon to be adoptive mother, of five-year-
old Stevie (diagnosed atypical autism)
Some foster-care and adoption agencies that work with special-needs
children have more to offer than Roni's. Private agencies for the
disabled could help those that do not, but communication between the
public and private sectors is apparently difficult. Parent support
groups and disability advocacy groups can sometimes provide a bridge
between the two.
Some parents of children with PDDs may have to place their children
in a therapeutic foster home, either temporarily or permanently. This
type of foster-care arrangement is set up to provide specially
trained round-the-clock caregivers for medically fragile or disabled
children who cannot be cared for at home. Typical reasons for
placement may include assaultive or aggressive behavior that
endangers parents or siblings; a parent's disability, incarceration,
or death; or difficult medical issues, such as tube feeding.
With temporary foster-care placements, the goal is usually to wait
out or find a solution for the situation that led to placement.
Natural parents must stay as involved as possible--it's very
important to attend all meetings and therapy sessions when your child
is in foster care, even if the placement was voluntary. Lack of
participation can lead to the termination of parental rights in some
cases.
Natural parents also need to maintain oversight of the child's
medical, educational, and personal needs during the foster-care
placement. Foster-care arrangements vary in quality, ranging from
homes you wish you had grown up in to the worst of abusive
environments. Most therapeutic foster parents are quite good, however.
If the foster placement is in another city, you may need to secure
assistance to make regular visits, or send an advocate to make visits
for you. Regular communication by mail, email, and/or telephone with
your child should be assured when distance is an issue.
It's sad that in the US, foster-care placement is sometimes chosen as
a way to ensure the delivery of essential services to children.
Foster parents merit a stipend to pay for the cost of the child's
care, and the child receives publicly funded healthcare and mental
health services. In a better world, natural parents could receive the
special training provided to therapeutic foster parents, as well as
the subsidies and services they need to care for their difficult
children. In all of the nations of Europe, and in many other parts of
the world, parents of disabled children are guaranteed financial
assistance, healthcare for their child, and other services.
*-*-*-*-*-*-*-*-*-*-*-
Bonito día
http://mx.geocities.com/la_casita_del_autismo/alma.html
Infórmece sobre AGENTES TOXICOS a los que está expuesto(a)
diariamente en su hogar y cómo afectan su salud.
Esta charla de salud se llevará a cabo este próximo jueves, 16 de
septiembre a las 7:00 p.m. en la Avenida Andalucía, Puerto Nuevo
(Puerto Rico). Entrada GRATIS.
Para reservaciones, favor de llamar al (787) 292-9708.
Gracias.
Les recuerdo que este fin de semana es el curso en México, D.F. y el
cupo está casi lleno. Pueden encontrar mayores informes en la
página de LINCA.
http://linca.org
--- In autismo2@yahoogroups.com, Lic. Fco. Javier Garza Fernández
<javier_garza_fdz@y...> wrote:
> LIGA DE INTERVENCIÓN NUTRICIONAL CONTRA AUTISMO E HIPERACTIVIDAD
> Lo invitan a participar en:
>
> CURSO TALLER DE AUTISMO Y ABA
> dirigido a padres y maestros
>
> Temario:
> · Definición y características
> · Comprensión y su manejo
> · Paternidad: Calidad de Vida
> · Modificación de Conducta (ABA, Lovaas)
> · Terapias y Programación
>
> Lugar:
> Instalaciones de LINCA
> México, D.F.
>
> Fecha: Sábado 11 y domingo 12 de septiembre del 2004
> Horario: 9:00 a.m. a 6:00 p.m.
>
> Expositor:
> Fco. Javier Garza Fernández
> Autor del Manual para Padres de Niños Autistas
> papá de Javiercito, autismo severo de 9 años
>
> Coordinadora:
> Dra. Leticia Domínguez
>
> CUPO LIMITADO
>
> Mayores informes: GPLMEX@a...
> http://www.linca.org
Esto me llegó de nuestra amiga Edna García para su difusión:
Estimados amigos, el martes 7 de septiembre A las 10:30 saldrá en
Televisa México (el canal de las estrellas) durante el noticiero de
Joaquín López Dóriga un reportaje de AUTISMO.
Les agradecería lo vieran y si es posible apoyen con llamadas y
algún mail para que se le de la importancia al tema por el bien de
los autistas y sus familias.
Entre más retroalimentación reciban los medios informativos, mayor
importancia le darán a este asunto.
Gracias y me pongo a sus órdenes para lo que convenga en cuanto a
los fines que perseguimos.
EDNA GARCÍA DE MARTÍNEZ
PRESIDENTA DE LA FEDERACIÓN LATINOAMERICANA DE AUTISMO, A.C
AutismConnect <autismconnect@...> wrote:
From AutismConnect Mon Aug 23 11:31:06 2004
A: alma_rosa_99@...
De: AutismConnect
Asunto: Latest news and [autismjobs] new vacancies 034
Fecha: Mon, 23 Aug 2004 11:31:06 -0700
Hello,
Contents:
1. Latest news items
2. Autism Cymru's latest training programme
3. AutismJobs
Key addresses:
1. www.autismconnect.org
2. www.autismjobs.org
3. www.autismcymru.org
1. It would be a serious mistake to believe that only the English-
speaking world is producing exciting autism research. I have access
to the latest information in nine languages, and whenever a study –
or a human-interest news story - strikes me as worthy of mention in
these other languages, I try to bring it to you on AutismConnect.
A case in point is the thrilling French study which emerged last
week, carried out by a team led by one of France's leading autism
experts, Dr Monica Zilbovicius. This study could well shed vital
light on the major communication problems suffered by individuals
with autism. The researchers detected irregularities in the way
autistic adults recognise the human voice, in the superior temporal
sulcus region of the brain. The researchers say this discovery could
support the hypothesis that the immense problems facing people with
autism might be linked to a number of deficits in perception of
social stimuli: voice, intonation, facial gestures, etc. The
researchers used brain scans to study how the brains of autistic
adults perceived the human voice in relation to other sounds. Five
people with autism and eight non-autistic volunteers were exposed to
sequences of sounds, alternating the human voice (words, but also
shouts and laughter) with other sounds (bells, cars, musical
instruments, animal cries). Their brain activity was recorded at the
same time. The researchers detected very clear differences between
the two groups. In the autistic individuals, the specific brain
region responsible for voice perception was not activated at all,
unlike in the control group.
Those interested in the intensive work going on around the globe to
pinpointing at least one of the many genes implicated in autism will
be encouraged by the news a California company, Perlegen Sciences
Inc. has been awarded a grant from the National Institute of Mental
Health in the United States for the first phase of what may be the
first high-density genome-wide study to determine the genetics of
autism. Perlegen will use DNA samples collected by the Autism Genetic
Resource Exchange (AGRE) - the world's largest publicly available
gene bank for autism research. Founded in 1997 by Cure Autism Now,
AGRE has collected important genetic material from over 500 families
with two or more children with autism. The Perlegen study will allow
scientists to analyse DNA with sufficient resolution to identify the
genetic variations which could play a role in autism, is one we could
have only dreamed about just a few years ago. Essentially, it is the
first high-density genome-wide association study that will be
performed in autism," he says. By assaying single nucleotide
polymorphisms from Perlegen's collection of over 1.5 million
validated markers, the research team aims to identify multiple
genetic variants that, together, contribute to the heritability of
autism. These SNP variants could then be developed into diagnostic
tools for clinicians and as potential targets for new therapeutics.
Some of you may remember the dreadful case of the eight-year-old
autistic boy, Terrance Cottrell, who suffocated during a
socalled "exorcism" a year ago in Milwaukee. Last week, the minister
who performed the ritual, Ray Anthony Hemphill, was jailed for 30
months' imprisonment. Now, I've talked to quite a few American
parents of children with autism over the past few days, and most of
them feel this sentence was ridiculously lenient. Hemphill was a
former maintenance worker with no religious schooling Apparently, it
was maximum term Hemphill could receive after a jury had convicted
him of child abuse - recklessly causing great bodily harm. Hemphill
was also ordered to pay US$1,224.75 in restitution. The District
Attorney E. Michael McCann said his office had decided against
homicide charges because the state would have been required to show
that Hemphill realised his actions presented a "great likelihood" of
causing great bodily harm or death to the boy.
Finally, please take a moment or two to dip into the extraordinarily
heart-warming story of Britanny Maier. Brittany was born four months
premature and weighed just 1 pound, 5 ounces. The doctors gave her a
5 to 10 per cent chance of surviving. At 15 today, she is blind,
autistic and mentally retarded. But she is also what Dr Andrew
Adesman - an autism specialist at the Schneider Children's Hospital
at New Hyde Park in New York State - calls a prodigious savant. That
is the highest level of savant, someone who has an extraordinary
talent despite developmental disabilities. (There are believed to be
fewer than 50 prodigious savants in the whole world.) Britanny has
been able to play a song on the piano after just hearing it since she
was five. She's been composing music since she was 10. She has a
repertoire of more than 15,000 songs she can play from memory, and
has released her own CD.
2. Autism Cymru has announced its new Education and Training
Programme for 2004-2005. Topics covered include: Autism and
employment issues; Developing Communication Strategies/Sensory
Issues; Positive Behavioural Support and Autistic Spectrum Disorders;
Understanding and Working with ASD; Supporting Children with ASD in
Mainstream Education, Asperger's syndrome, and a TEACCH 5-Day
Intensive Programme.
Among the speakers are: Professor Simon Baron Cohen, Dr Glenys Jones,
Tanya
Bream, Professor David Allen (Wales), Prof. Michael Fitzgerald
(Ireland), Matthew Hesmondhalgh, Karen Guldberg, Dr Steve Hinder, Dr
Jack Wall; John Clement, Bryan Craig, Erica Gould and Val Cumine.
For the full programme, go to: www.autismcymru.org or: www.awares.org
Book early to avoid disappointment!
3. We are delighted to announce the following vacancies on
autismjobs.
Positions in this issue are:
* Support Worker
* Carers
To find out more about these jobs:
* Read this newsletter and click on the links within each advert.
To enquire about placing an advert:
* Send an e-mail with your contact details to support@...
* We would also appreciate it if you would forward this e-mail to any
employers who you know are recruiting.
Adam Feinstein, Editor, AutismConnect
PS - unsubscribe details are at the bottom of this newsletter
=====================================================================
Employer : Prior's Court School
Job title : Support Worker, Residential Department
Region : South East England
Salary : from £14,222
Closing Date : 31/8/2004
Job Ref. :
Full/Part : Full
Job Function : Support
Follow this link to learn more about this employer -
http://autismconnect.c.topica.com/maaczPzaa9oVua5kHr9b/
Job Description:
We are looking for people who are caring, committed, full of energy
and flexible, who want to become part of an enthusiastic and
supportive team. We currently have vacancies in the role of Support
Worker in the Residential Department, to provide support to pupils
with autism, learning difficulties and challenging behaviour.
Excellent Induction training and ongoing personal development package.
Rota system: average 36 hours per week of early and late shifts
Holidays: 12 weeks (paid)
Follow this link to learn more about this employer -
http://autismconnect.c.topica.com/maaczPzaa9oVua5kHr9b/
=================================================================
Employer : Relative (brother)
Job title : Carers
Region : South East England
Salary : £10 - £12 p.hr / £45 pn sleep in
Closing Date : 3/9/2004
Job Ref. : AJ/1
Full/Part : Part
Job Function : Support / Sleep in worker
Follow this link to learn more about this employer -
http://autismconnect.c.topica.com/maaczPzaa9oVva5kHr9b/
Job Description:
I am looking for people who are caring, committed, full of energy and
flexible, who want to be part of an enthusiastic and supportive
family.
To provide support for my two younger brothers who have autism and
learning difficulties and challenging behaviour.
Experience of direct work with clients with autistic spectrum
disorder and range of behavioural is essential.
This would be highly rewarding work and would suit people with
creative, friendly and flexible attitude that would relish the
challenge to support my brothers achieving their goals in
independence living skills.
L & M are two young men who are use to structured routine, and really
enjoy being out in the community, going for long walks etc.
Please contact Margaret Farrell on 0207 642 0038
Follow this link to learn more about this employer -
http://autismconnect.c.topica.com/maaczPzaa9oVva5kHr9b/
To view all of these jobs and more: visit www.autismjobs.org
To go straight to AutismConnect: visit www.autismconnect.org
To visit Autism Cymru: www.autismcymru.org
LIGA DE INTERVENCIÓN NUTRICIONAL CONTRA AUTISMO E HIPERACTIVIDAD
Lo invitan a participar en:
CURSO TALLER DE AUTISMO Y ABA
dirigido a padres y maestros
Temario:
· Definición y características
· Comprensión y su manejo
· Paternidad: Calidad de Vida
· Modificación de Conducta (ABA, Lovaas)
· Terapias y Programación
Lugar:
Instalaciones de LINCA
México, D.F.
Fecha: Sábado 11 y domingo 12 de septiembre del 2004
Horario: 9:00 a.m. a 6:00 p.m.
Expositor:
Fco. Javier Garza Fernández
Autor del Manual para Padres de Niños Autistas
papá de Javiercito, autismo severo de 9 años
Coordinadora:
Dra. Leticia Domínguez
CUPO LIMITADO
Mayores informes: GPLMEX@...http://www.linca.org
Estimados amigos:
Debido a los correos que llegan a mi buzón, he creado un nuevo grupo
en MSN llamado "Autismo y ABA", en donde el tema central es la
Modificación de Conducta y la educación, pero se aceptan mensajes de
apoyo, sugerencias, etc.
La idea es tratar ABA desde el punto de vista de aplicación en
nuestros niños en un lenguaje accesible para nosotros los padres.
También está abierto para educadores y profesionales que deseen
compartir con nosotros sus experiencias. Tan solo agradeceré
recuerden que la lista es para padres y por lo mismo, sus mensajes
deberán ser comprensibles a aquellos que recién empiezan a
comprender esta técnica.
Dicho grupo lo baso en la "ListaACA" y "La casita del Autismo". No
está restringida ni moderada y aunque la tendencia estará enfocada a
ABA y su aplicación, se permiten tocar otros tópicos siempre y
cuando se mantenga la educación y respeto debidos.
La dirección del grupo es:
http://groups.msn.com/AutismoyABA
Javier Garza
--- In Autism-Software@yahoogroups.com, "mcmurray866"
<McMurrayARTS@c...> wrote:
The National Children's Special Education Voucher Petition
http://www.PetitionOnline.com/spectrum/petition.html
Are you tired of non-effective IEPs?
Are you tired of the administrative shuffle?
Are you tired of delayed or no services for our developmentally
disabled children?
Are you just plain feed-up with all the bureaucracy in special
education?
WE ARE!
http://www.specialedvoucher.com
--- End forwarded message ---