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  • Category: Autism
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#27495 From: "jon singer" <singer@...>
Date: Wed Mar 2, 2011 8:18 am
Subject: What's your favorite local charity for kids?
jonathanlees...
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Want to help YOUR favorite local charity that help children with special needs? 

It's easy - just start a fundraiser for your favorite cause at www.Crowdrise.com/Advocacy4All

You can help make a major difference for your favorite organization and win terrific prizes in conjunction with our 2011 Advocacy 4 All Cross-Country Tour:

1) Donate at least $25 for a chance to win one of two iPod  Shuffles
2) Raise the most money from your donors and win an iPad

Anyone who donates at least $25 on your page can win too!  And all proceeds raised through your page go to your favorite cause.

Thanks for joining us in raising $1,000,000 to help make sure no children with special needs get left behind. Learn more at www.Drive4Rebecca.org 

Start your fundraiser for YOUR favorite kids charity today - this is like when someone is running a marathon for a charity, sets up a web page, and asks people to make donations.
www.Crowdrise.com/Advocacy4All

Thanks,

Jon Singer
Drive4Rebecca

#27496 From: "Nicole" <nikasmomma2001@...>
Date: Wed Mar 9, 2011 4:25 am
Subject: Autism Blog: "Why We Home School...A New Spin on Life"
nikasmomma2001
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I posted my latest blog, http://fetchitfido.com/waiwaihblog/?p=358 It is about
the choice to homeschool our daughter who has Autism. Featured is a picture that
she created, and some music/dance YouTube videos by various artists.  If you
have any favorite Autism/SpecialNeeds/Homeschool resources that you would like
to share, feel free to do so in the comment section of the blog...I'm currently
compiling resources for a page to help families through the Autism journey.
If you like my blog, please join the RSS feed to keep up to date on the latest
posts.
Feel free to share with others.
Peace be with you!---Nicole
http://www.WhoAmIWhyAmIHere.com/

#27497 From: "Neil" <n.clark@...>
Date: Mon Mar 14, 2011 2:29 am
Subject: FW: (NZASD) Does autism exist?
nclarknz
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What is Autism?
`Aut' means or suggests `Self' apparently.
Everyone is born with Autism. I see traits of it in everyone.
There's no-one better to see these traits than
someone that has the syndrome or dis-ease of Autism itself.

Autism: Genetic, environmental or developmental?
Different types of Autism with different unknown causes,
but with one uniting label.
They have some common symptoms characteristics
but as individuals are totally unique.
Genetics tells us we are all different apparently,
even identical twins have a different character.
Even a genetic code can be rotated;
parts switched on or off to give different results.
We are all affected by the environment external to us.
Also our internal environment is important
to our health, feeling and survival.
We don't know what Autism is. It's just a label of an unknown.

What is the cause of Autism?
It's very hard to say what the cause is,
if one doesn't also know what `Autism' is.

Let's go down the developmental route
that many sociologists and females use.
Autistics are at a disadvantage in social, emotional areas etc.
Let's ignore the physical and tiredness impairments for now
and assign them as just (secondary?) symptoms.

Emotions and sleep are very important in forming memories.
Development is dependent on a normal ability to create,
retrieve and imagine with memories.
Also memory is needed to create an image of `self'
(which seems different in Autistics).
There is one very important developmental step in a baby's life,
in which, as a prelude to learning from others,
he learns what self awareness is.
It basically is the very first step from the womb.
Awareness then learning is processing inputs and
creating or imagining from the infinite of possibilities
some sense or pattern.
Autistics will often create pattern or order
by lining up plastic animals.
They are still stuck at this early developmental stage.
Until they master it perhaps they can't move on,
it's like an essential building block.

This is probably worth talking about.
What is this `self'
and what has it got to do with how everyone forms memories?
What has emotion got to do with it all?
Also how can one ultimately learn how to be `normal',
an active involved part of society?
You may find an Autistic doesn't want to.

`Self' is something that the Autistic is working on.
Also you may find that `he' tries to control the environment,
or others; in some instances, to be left alone.
My son Sais `Bye'
(the only word he has retained, after speaking and regressing
back to this present Autistic stage of development).

An Autistic is self absorbed mostly
in a world of his own, doing his own thing.
Sometimes he will be on the fringe of a social group
interested in what is happening
(perhaps in case it affects him).
Self is important to know about
because it is a vital reference point to compare it with others.
I.e. No appreciation of others is possible without an awareness of `one self'.
You many say that all Autistics do is involved with their `self'.
So why haven't they moved on?
Their abilities to form (normal) memories (I reply myself)
How does one form (normal) memories?
They simply require combining an event with a suitable emotional tag.
If one is in pain all events are associated with pain.
Who wants to remember pain?
An Autistic doesn't want pain so he tries not to imagine it.
He feels attacked from whatever, perhaps environmentally; externally or even
internally.
If the perceived attack is internal
he will produce an autoimmune response to protect himself.

This is a cyclic chicken & the egg problem.
Which came first?
Was it the autoimmune problem or the memory problem or is it some other cause
that came first?

I don't remember.
Consciousness, fear and pain is something that is learned, it takes time.
Things that take time are labelled as developmental.
Regressive Autism takes time.
Paul developed normally until others noticed a difference
(I didn't initially until others told me).
Then he became less social, more afraid, lost this language,
ability to speak and understand.
I suppose if you don't use speech you lose the ability to speak also.
It is only recently that we have discovered he does understand some of the
spoken word.
He picks out a keyword that he translates into something that makes sense to
him.
I have always done that myself,
but was able to select three keywords and make sense of that.
It takes a lot of processing and is tiring,
hence the craving for certain sweet things (Coke) and food!
(MacDonalds, KFC, luncheon meat).
All those things that have additives (like msg), that can create hyperactivity
etc.

Those three words used to mean an infinite number of things,
hence very good for new ideas etc.
But now I'm old and tired, I time out quickly.
Basically my understanding is very literally based.
I have to work it out each time someone talks.
I don't have a good memory to recall what those three words mean.
I.e. I do such things manually compared to others automatic understanding of
conversation.

The memory is poor because my emotions are suppressed.
I felt nothing when my wife died, but I feel guilty for that.
Why are my emotions suppressed?
Because I don't want to remember my constant background pain,
that can be significant.
It's a bit like putting petrol on your leg and lighting it, if you can imagine.

My son and I may not be Autistic any more;
perhaps time has removed the cause, whatever that was.
But what remains are the residuals and symptoms.
In my case I've always been able to cope,
in my own way, in a `normal world'.

I think I probably have an advantage or an emergent ability
from my disability that supersedes the ability of others (et al).
But that is my self identity saying that.
Silly logic Sais: if one can imagine everyone else is inferior,
then logically, one can be considered superior.

That's binary logic: like saying things are either true or false.
True and false don't exist; one has to imagine they do.
In my world, everything is both true and false.
Everyone has his own unique beliefs and truth,
even though they may be opposite to others.
Aren't they after all valid and co-existing?

All my senses give me different and often conflicting perspectives.
They arrive with different timings, not simultaneously;
memory often delayed a year or more, recalled in a sleep perhaps.
Can't I accept them all as valid? Can you?
How could one truth or perspective exist, it doesn't make sense to me.

One thought nags me; perhaps Autism doesn't exist at all.
It was you who wanted to give it a label hence some existence or truth.
It was you, not me; as I'm a good boy, because my Mum said so.
She believes in me … sometimes. :)

Sounds like I've wandered off topic.
I don't even remember what it was, so remind me.
Well don't, I like to keep to myself.
All mad people like to talk to themselves.
Feedback would be a nice change though.
I love it when people disagree with me;
hopefully it means that they thought about it manually, by themselves,
without resorting to an automatic programmed response.

I realise challenging others beliefs can be dangerous.
(The `twin towers' are no more)
That's why I hide behind email as I'm afraid of people.
I am an echo station, I have said this all before.

Neil Clark :- http://3service.freeservers.com/autism.html
http://health.groups.yahoo.com/group/nzasd/ a support group

#27498 From: "earranga" <earranga@...>
Date: Tue Mar 15, 2011 3:13 am
Subject: AutismOne FREE
earranga
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#27499 From: "Neil" <n.clark@...>
Date: Wed Mar 16, 2011 2:33 am
Subject: Asp or Aspergers - fine, defined, refined - an echo
nclarknz
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The driving force in Asperger's is attempts to be social,
well perhaps in their attempts; overdoing it,
or not been accepted fully by others, trying. (very trying)

A trick my Asperger partner has is: to try and solve other peoples problems,
(but her own)

a) Social contact with others is made, etc repeatedly (perhaps looking for their
problems)

b) By not solving her own problems she can annoy family and any friends who want
to listen, to help. -.  Reinforcing the social bond of dependence.
By helping she takes away the independence of others IMO and makes them
dependent.
IMO helping others, so they are dependent, is not help at all.

Eventually people need to be able to help themselves.
(For me that is being Autistic, left alone so I can do my own thing, myself)

I am not criticising people in general for being social.
It is probably a good survival trait,
and makes females live longer with less stress etc.
The scientific studies confirm this.

c) The unconcious trick she has of solving a problem, is at the same time,
create two or more problems.

In this way the social network is expanded.
Now even more effort is required by others (socially and physically)
to solve the multiple problems that now exist.

d) What I'm trying to say is:
If she creates a PROBLEM she is unconciously,
generating social contact, which she craves.

Like a self generating avalanche.
(Like a nuclear power plant getting out of control)

e) Aspergers in attempts to be social, will even create a problem or two.

f) The only solution she has is:
To learn how to be Autistic herself.

I.e. To learn how to help herself, without others, (social contact)
To learn her own worth,
rather than getting others to repeatingly define it.
She sais: "Do you love me?"
I answer: "Do you love yourself?"

HORROR SHOCK REACTION (from all)
Well it makes sense to me.
Helping oneself is the necessary precursor to helping others,
One needs to enable the other, that is help.
That is what they don't understand.

f) Basically I am not social - I'm Autistic (no wish to be social)
I'm stuck in the developmental stage (precrawling)
of discovering myself and the environment.
My partner is stuck in the first hurdle after that
which is learning from others. IMO

One needs to be oneself not another.
What one sees, is just a reflection of oneself anyway IMO

An Asperger & two Autistics, a definition of chalk & cheese.
My son is also now non-vocal (regressed Autistic Syndrome)

Feedback in any direction: nclarknz@...
This post my appear in other groups,
sorry I'm an echo-station.

repeating things over & over again.
I exist on the fringe of society ( well on the email/internet :-),
no longer pretending to be normal, just being myself, and proud of it.

Regards: Neil Clark;
http://health.groups.yahoo.com/group/nzasd/
http://3service.freeservers.com
http://3service.freeservers.com/autism.html

#27500 From: "Neil" <n.clark@...>
Date: Wed Mar 16, 2011 2:59 am
Subject: Re: Home School...- Learning -> Self learning? v Important IMO in ASD
nclarknz
Send Email Send Email
 
--- In autismlist@yahoogroups.com, "Nicole" wrote:
>
> Blog, http://fetchitfido.com/waiwaihblog/?p=358 It is about the choice to
homeschool our daughter who has Autism.

There is a developmental step B4 crawling,
The most important one includeing being in the womb.

It happens when the child discovers this environment & kicks, crys for
attention.
There is a word that defines self learning, beings with auto..p...s

Its normally applied to learners, leading from their mother initially.
Who learn from their Mom and others etc.

This is true self learning, the stuff that Mother has long forgotten.
i.e. how to be a baby.
The baby learns quickly how to scream and demand attention etc.
From infinite possibilities of meaning from anything in the environment.

As adults we perceive only a few possibilities per event.
Babies are so far ahead of us they quickly learn language etc.
Try learning a new language that has no relation to any previous
experience and see how you get on.
Like learning after a damaged spine to walk again.

Babies are learning from their parents etc.
they are delearning as they grow older of infinite possibilities.

It is valuable to unlearn all we know in order to learn what we can never do
now, eg: talk, understand, walk etc.
The Autistics are already there.
They stopped their development at the precise time of the road block.

They are telling us what we need to do.
They are doing what they need to to survive.

Oopps off topic.

Home school is where the parent learns from the child.
That is the future of education.
They know those infinite possibilities,
but we don't.

Neil Clark
nclarknz@...
http://health.groups.yahoo.com/group/nzasd/

#27501 From: "Neil" <nclarknz@...>
Date: Wed Mar 16, 2011 10:30 pm
Subject: Safe, infectious, Autism, bowel, brown gravey?
nclarknz
Send Email Send Email
 
http://www.itsnotautism.blogspot.com/

----------------------------------------

With faecas & smear events,
no-one is safe :-(
Including parents, visitors, carer relief etc.

Facebook, Twitter: nclarknz54
http://3service.freeservers.com
Neil :-)

#27502 From: "jon singer" <singer@...>
Date: Sun Mar 20, 2011 11:45 am
Subject: Please say hi when we visit your area - our x-country event schedule is online
jonathanlees...
Send Email Send Email
 
On April 15th, we are embarking on our 2011 Advocacy4All Cross-Country Tour.

Our schedule of events is now online and if we are coming to your area, thanks for stopping by and saying hi.

We will be giving away hats, t-shirts, Apple Store gift cards and copies of my recently published Special Needs Parent Handbook.

Even if we are not coming to your area, if you set up a fundraising page for YOUR favorite local cause for kids with special needs you can win an iPad and other great prizes.

We hope to see you during our trip.

Jon
Drive4Rebecca

#27503 From: "Neil S Clark" <nclarknz@...>
Date: Sun Mar 20, 2011 10:41 pm
Subject: Protein, brain, link, Autism story - link below at bottom
nclarknz
Send Email Send Email
 
Protein, brain, link, Autism story -  link below at bottom


BBC NEWS | Health | Girls' autism 'under-diagnosed'
Girls with autism may not be identified because they do not show traditional
signs of the ... and cookies policy. News sources. About the BBC. Contact us ...

news.bbc.co.uk/2/hi/health/4630705.stm
BBC NEWS | Health | Autism gene breakthrough hailed
Scientists are praised for finding new autism genes by scanning families with
the condition. ... Autism Speaks. The BBC is not responsible for the content of
...
http://news.bbc.co.uk/2/hi/health/6369347.stm

BBC News - Study identifies 'many more' autism genes
The largest genetic study into autism identifies many more new genes involved in
the disorder. ... autism genes. By Pallab Ghosh Science correspondent, BBC ...
http://www.bbc.co.uk/news/10275332

BBC News - New brain scan to diagnose autism
A brain scan that detects autism in adults could mean much more straightforward
diagnosis of the ... autism. By Jane Hughes Health correspondent, BBC News ...
http://www.bbc.co.uk/news/health-10929032

Bbc News - UK Autism News
Interested in bbc news? At http://ukautismnews.blog.co.uk/ you find posts and
information relevant to bbc news. ... on the BBC News website in connection with
...
http://ukautismnews.blog.co.uk/tags/bbc news

http://www.autism.net.au/Autism_news.htm - 159k
Talk:Autism/Archive 6 - Wikipedia, the free encyclopedia
Vandalism|Dodgy Edits|Am i autistic?|I find this...Don't mean to be rude but I
am putting this at the top for everyone to help keep an eye on vandalism
en.wikipedia.org/wiki/Talk:Autism/​Archive_6

--------------------------------------------------

Protein, brain, link, Autism story -  link below

http://www.theautismnews.com/2010/08/24/new-study-protein-malfunctions-linked-to\
\-autism/

Regards, Neil
http://3service.freeservers.com/autism.html

#27504 From: "Robert" <rhartsoe@...>
Date: Fri Mar 25, 2011 4:37 pm
Subject: Our stem cell experience
roberthartsoe
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I have received so many personal emails I cannot answer them all so I will be
sharing our stem cell experience on the StemCellDR yahoo group since it is
impossible to post it on every group and answer each email.  I know so many of
you as parents from our operation of Miracle Mountain which we have closed to
retire but I belong to so many groups I may miss your questions.  Judy and I
both received our stem cells yesterday. Also, I do not wish to impose myself
upon this group as some think I am trying to promote something.  Dr. Anthony set
up the stem cell project in the Dominican Republic so that children and adults
in the USA would have a safe place to get stem cell.  He did stem cell with his
autistic daughter, Julia, who also came to Miracle Mountain for HBOT and this is
how we became involved.  Julia is now 19 and began talking for the first time
after stem cell. I am only an occasional advisor to Dr. Anthony because of my
experience at Miracle Mountain which was non-profit and his desire to do same
for others with stem cell. So please join the StemCellDR @yahoogroups.com to
learn more.  When my original investigation into stem cell began for my
grandson, Garrett, who has cp, it was much too expensive and too many unanswered
questions.  Dr. Anthony has changed all that.  It is now less than $5,000 which
includes the hotel. And it is very safe with professional MD's and is done in a
hospital, not a clinic.  Dr. McCandless brought her grandaughter here and is
leaving today. Both Dr. McCandless and her grandaughter had stem cell here 2
days before Judy and I.   She is also on the stemcellDR group.

Thanks for letting me post and I have no ownership in this project so my only
intent is to share information to those who cannot afford stem cell that is
presently being offered at other places.

Robert Hartsoe,
founder of the former Miracle Mountain center in NC which provided over 22,000
HBOT treatments over a 10 year period.

#27506 From: "charles_w_2000" <charles_w_2000@...>
Date: Thu Mar 31, 2011 4:36 pm
Subject: Interested in the true story (1981) about food colorings and ADHD?
charles_w_2000
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Interested in the true story (1981) about food colorings and ADHD?

Caffeine is more important than food colorings since caffeine helps a few with
ADHD (not a cure).

Can a few food additives impact cognition in a few children and adults?

Yes.

The following How To book (1981) about Hyperactivity (aka ADHD - ADD) is the
original account.

It is the true, documented, extremely rare, original story about completely
hidden food additives written by C. Thomas Wild with an introduction by Anita
Uhl Brothers, M.D., of Berkeley, California, his doctor.

Accept no substitutes. Only this How To book (1981) is the real deal.

http://health.groups.yahoo.com/group/C_Thomas_Wild_and_ADHD/

This How To book (1981) about ADHD calls for full disclosure ingredient labeling
for drugs and foods which contain food additives.

---

Food coloring »

FDA Panel Digests Data Linking Food Coloring, Hyperactivity
ABC News - Emily P. Walker - 1 hour ago
SILVER SPRING, Md. -- Judging from the data and the discussion during the first
day of an FDA panel meeting on food dyes, it appears likely that juices,
candies, cereals, yogurts, and hundreds ...
Video: ADHD and food dyes KXAN.com
FDA examines whether Sensient food dyes are color safe Reuters
New York Times - CTV.ca - WebMD - Los Angeles Times
all 726 news articles »

(Google)

---

2011 - 1981 = 30 years

---

http://health.groups.yahoo.com/group/ADHD_Bulletin_Board/

#27507 From: "Nicole" <nikasmomma2001@...>
Date: Fri Apr 1, 2011 4:17 pm
Subject: Autism Awareness: Show Your Colors & Share Your Events!
nikasmomma2001
Send Email Send Email
 
My blog has a colorful new look for Autism Awareness Month, and a growing list
of Autism events.  If you know if an event that is not listed, please share it
in the comment section of my blog.  Please share this.
...and remember to wear your Autism colors...life is a rainbow if you look for
it.
---Nicole
http://www.WhoAmIWhyAmIHere.com/
Navigating Through Life, Parenthood, Autism, Passion, Philosophy & Creative
Expression

#27508 From: "Neil S Clark" <nclarknz@...>
Date: Sun Apr 3, 2011 12:09 am
Subject: An updated old web-site on CHANGE
nclarknz
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An updated old web-site on CHANGE

as both a future and a past by NS Clark

http://3service.freeservers.com/change.html


The one on stress needs updating also

http://3service.freeservers.com/stress.html

Will do shortly

Neil: nclarknz @ yahoo.co.nz

#27509 From: "Nicole" <nikasmomma2001@...>
Date: Tue Apr 5, 2011 8:13 pm
Subject: Action Alert: Go to Facebook Now to Help Service Dogs
nikasmomma2001
Send Email Send Email
 
Please go right away to my blog for the details:
http://fetchitfido.com/waiwaihblog/?p=453 There is a short video in the blog
that shows the UDS Service Dogs training. UDS trains dogs for various
conditions, including Autism.  UDS is who is helping us train our Belgian, Ella.
Please share!
Thanks!---Nicole
http://www.WhoAmIWhyAmIHere.com/
Navigating Through Life, Parenthood, Autism, Passion, Philosophy & Creative
Expression

#27510 From: "Neil S Clark" <nclarknz@...>
Date: Tue Apr 5, 2011 9:49 pm
Subject: NIDS = Neuro Immune Deficit Syndrome - What is it?
nclarknz
Send Email Send Email
 
NIDS = Neuro Immune Deficit Syndrome -
For ASD, ADHD, Autism, Chronic fatigue syndrome

From: Brian and Karen Freeman on NIDS@yahoogroups.com
Question: Does anyone know the list of SSRIs that 'allowed' under Dr. Goldberg's
NIDS protocol?


Answer: The ones I can remember:"  Paxil, Zoloft, Prozoc, Celexa, Wellbutrin
(SNRI I think - in conjunction with an SSRI).
I can't remember if he uses Effexor along with SSRIs or not,
but that's what my kids are on."
There's at least one more...
Then there's also Tenex (a vasodilator) he often adds to SSRIs
to help with ADHD, ocd or anxiety, especially if they increase from SSRIs. -
Cynthia (said)

-------------------------------- Neil replies 2U ----------

These syndromes mentioned above are viral and autoimmune in nature.
The males (being the weaker species) carry the viral infection on to the next
generation. Itr is not genetic. There is no Autism gene or intelligence gene,
but there is the environment chemicals, pollution, new foods, additives, things
that man has not evolved for yet.
The stelth virus attacks the male child pre-crawling about the same time as
vaccination injections.
Because the female is more developed at this age (socially already)
they end up with Asperger syndrome.

The ADHD ones at the top of functionality happen in the males who are
not so devistated by the viral attack, these are the ones who are likely to be
intelligent. Only because they sense a threat and
need to think about how to address it. IMO

---------------------------------------------

Basically what the brain does to his viral threat is
to try and defend itself. It literally attacks itself (the brain)
Hence the autoimmune disorder that NIDS is trying to manage.
Does that make sense?
The development stops in its tracks.
The child male Autistic stays at the level of development
because he can go no further under threat or stress.
This is the stage of lining up plastic animals,
This is the stage at which he is discovering "himself"
before he learns off his mother and others.

Does that explain things more?

Neil Clark - http://3service.freeservers.com
Posted on:
nzasd@yahoogroups.com - anyone can join,
just search for nzasd on yahoogroups

mean_ing@yahoogroups.com - perhaps this is a private list?
Invitations can be sent out to those who may be interested?
nclarknz @ yahoo . co .nz

#27511 From: "JOHN" <black_manta@...>
Date: Tue Apr 5, 2011 10:48 pm
Subject: Dental Surgery
black_manta...
Send Email Send Email
 
My son is 9. His adult teeth are criss-crossed so bad they aren't decending. So
now it looks like he will need surgery to correct this. Has anyone had to deal
with anything like this?

#27512 From: "Nancy O'Mara" <nancy1omara@...>
Date: Wed Apr 6, 2011 12:26 am
Subject: Re: [Autismlist] Dental Surgery
nancy1omara
Send Email Send Email
 
John and group,
    My son has had dental work done under general anesthesia three times.  It was no problem.
Nancy,Colin P's mom

On Tue, Apr 5, 2011 at 5:48 PM, JOHN <black_manta@...> wrote:
 

My son is 9. His adult teeth are criss-crossed so bad they aren't decending. So now it looks like he will need surgery to correct this. Has anyone had to deal with anything like this?



#27513 From: lfd0985
Date: Wed Apr 6, 2011 1:23 pm
Subject: Autism and Transitions
lfd0985
 
Hello!  My name is Laura Dengler and I am a Ph.D. student in the Department of
Communication Sciences and Disorders at Penn State University.  I work with Dr.
Kathryn Drager and Dr. Erinn Finke.

We hope that you can help us with some exciting research. We would like to learn
about the experience of being a parent of a child with autism spectrum disorder
(ASD). We recognize that parents have many different experiences, and we are
interested in learning about how having a child on the autism spectrum affects
how you parent your child.

We are inviting parents of children with an ASD to join an online discussion
group (focus group) over a period of approximately 4-6 weeks. We want to learn
about the experiences of those parents and how they compare to parents in
similar situations. We would like to learn about the issues that parents feel
are unique and specific to having a child with an ASD. We plan to share what we
learn with each participant and other parents of children with an ASD.

If you are a parent who has a child with an ASD, please consider participating
in this important study.  For more information about this research, please
contact me at lfd116@... or via phone at (814) 867-3375.

Thanks!
Laura

#27514 From: "Robert" <rhartsoe@...>
Date: Mon Apr 11, 2011 7:04 pm
Subject: stem cell
roberthartsoe
Send Email Send Email
 
I have had several emails telling me they were unable to find the stemcellDR@
yahoogroups.com
The group can be found at http://health.groups.yahoo.com/group/StemCellDR/

Although it has only been a short time since I had stem cell in the Dominican
Republic, my sugar is below 150 in the morning for the first time in 2 years.
I have noticed very little improvement for my arthritis but I have had Chronic
Fatique syndrome for over 20 years and I am noticing a nice improvement in my
fatique levels.

Is it from the Stem Cell? Too early to say yet. I do believe that stem cell
is the therapy of the future with over 100 different problems being recognized
as treatable with stem cell. Especially now that it is affordable in the
Dominican Republic.

To join the group, go to
http://health.groups.yahoo.com/group/StemCellDR/
My apologies if I gave inaccurate information on joining before

Robert

#27515 From: "gwautismstudy" <autismstudy@...>
Date: Thu Apr 21, 2011 4:59 pm
Subject: Recruiting for a new study on Medications used for ASD
gwautismstudy
Send Email Send Email
 
How effective is your medication for controlling symptoms of autism spectrum
disorders?

A team of investigators, headed by Dr. Valerie Hu, at The George Washington
University would like to know some information related to your/your child's
medications to treat ASD.

Please visit our website at http://www.surveymonkey.com/GWautismstudy to obtain
more information about this study. **Participant compensation upon full
completion!**

Introduction: Many different medications are prescribed to individuals with
autism spectrum disorders (ASD) without knowing what actually causes ASD.
Because many medications are prescribed based on "trial-and-error," some people
don't experience any benefits at all which others experience a major
improvement(often referred to as a "Wow! effect" by parents of children with
ASD).

The study: Through participant/parent/guardian and medical doctor surveys, we
are studying the effectiveness of various medications that are prescribed to
improve the symptoms of ASD by analyzing the information provided on the
surveys. We hope that the results of this study will be used to better design
studies with subgroups of individuals with ASD based on their response to
specific medications. We hope that this study will also aid in identifying genes
that associate with how well the medication works to improve specific symptoms
of ASD. The long-range goal of these studies is to identify genetic profiles
that would help clinicians to prescribe medications more accurately based on
their patients' unique biology.

Getting involved: We are asking participants with ASD or the parents/guardians
of minors with ASD to complete a survey of the medication(s) they are taking and
their opinion as to how effective the medication(s) has been in controlling
symptoms of ASD.

We also are requesting that participants and/or parents/guardians of minors ask
their medical doctor to fill out a brief survey to obtain a clinical perspective
on the effects of the medication(s).

Finally, we are asking the person affected by ASD to complete a simple drawing
task with materials supplied by us to provide information about the person's
strengths, abilities and current performance level.

Participant compensation: A $20 Gift card from Amazon.com will be sent to the
participant upon completion of the participant's survey and receipt of the
drawings. Compensation is not dependent on receipt of the clinician's survey.

For more information: Please visit our website at
http://www.surveymonkey.com/GWautismstudy to obtain more information about this
study as well as to access the surveys for patients/parents/guardians and
http://www.surveymonkey.com/GWautismstudy-clinician for clinicians. You may also
contact the Study Coordinator at autismstudy@... or at telephone
number(202) 994-5042 if you have any additional questions.

#27516 From: "Neil S Clark" <nclarknz@...>
Date: Sun Apr 24, 2011 11:53 pm
Subject: Re: Recruiting for a new study on Medications used for ASD
nclarknz
Send Email Send Email
 
--- In autismlist@yahoogroups.com, "gwautismstudy" <autismstudy@...> wrote:
>
> How effective is your medication for controlling symptoms of autism spectrum
disorders?

Ask Luke Tsai, he's the man
I have his DVD
perhaps I can upload it to the internet.
Neil

#27517 From: "Neil S Clark" <nclarknz@...>
Date: Mon Apr 25, 2011 12:04 am
Subject: Re: stem cell - can be generated by simple thoughts and actions ( brain - body )
nclarknz
Send Email Send Email
 
--- In autismlist@yahoogroups.com, "Robert" <rhartsoe@...> wrote:
>
> I have had several emails telling me they were unable to find the stemcellDR@
> yahoogroups.com
>
> Although it has only been a short time since I had stem cell in the Dominican
> Republic, my sugar is below 150 in the morning for the first time in 2 years.
> I have noticed very little improvement for my arthritis but I have had Chronic
> Fatique syndrome for over 20 years and I am noticing a nice improvement in my
> fatique levels.


Importnnt to eat small meals throughout the day,
if you don't feed the brain continuously,
you will feel pain, because the brain is unable to suppress it.
Drink lots of water too to hydrate with a drop of cider vinegar to control the
viral attack.
Requires small drinks throughout the day to control (like aids)
Works 4 me.
I(m serious.
It's quite simple, and inexpensive.
Problem solved.

Neil: nclarknz @ yahoo. co. nz
Skype: neil.clark54
http://3service.freeservers.com

#27518 From: "gwautismstudy" <autismstudy@...>
Date: Wed Apr 27, 2011 6:15 pm
Subject: Re: Recruiting for a new study on Medications used for ASD
gwautismstudy
Send Email Send Email
 
Hi Neil,

I'm not quite sure what you meant by your reply.  This post is regarding a
survey being conducted on medication responsiveness in persons with Autism
Spectrum Disorders (ASD).  Please visit this link to access the survey: 
www.surveymonkey.com/GWautismstudy.

We hope that you will participate, as the long-range goal of these studies is to
identify genetic profiles that would help clinicians to prescribe medications
more accurately based on their patients' unique biology.

If you have any questions, feel free to email me at autismstudy@....

Best,
Brian Kelly; Research Coordinator

--- In autismlist@yahoogroups.com, "Neil S Clark" <nclarknz@...> wrote:
>
>
> --- In autismlist@yahoogroups.com, "gwautismstudy" <autismstudy@> wrote:
> >
> > How effective is your medication for controlling symptoms of autism spectrum
disorders?
>
> Ask Luke Tsai, he's the man
> I have his DVD
> perhaps I can upload it to the internet.
> Neil
>

#27519 From: Tom Smith <qim@...>
Date: Wed Apr 27, 2011 8:25 pm
Subject: Must See FC Video's...Jenna Lumbard
qim
Send Email Send Email
 
Dear list,

There's getting to be more and more video's of independent typers that can't be
ignored.  They clearly demonstrate that severe autism is not a condition of
mental retardation but of an uncanny intelligence and creativity.  It's my view
that not all auties will be able to type independently, but most can type with
support.  Those questioning the authorship of supportive typing should but that
doesn't mean that it is not valid in some ways.  The most important way it is
valid is making it clear that they like the independent typers are indeed
intelligent.

Here's a video of an autistic gal Jenna Lumbard who types and writes books
independently...

http://www.autismsupportnetwork.com/news/video-jenna-lumbard-non-verbal-autistic\
-author-98273633

Tom

#27520 From: "Neil S Clark" <nclarknz@...>
Date: Fri Apr 29, 2011 9:13 am
Subject: Re: Genetic Recruiting for a new study on Medications used for ASD
nclarknz
Send Email Send Email
 
Autism is passed by the male carrier virally to the next generation etc.
there are only indirect genetic markers, IMO
that is why no-one has found them for the majority of ASD Autism syndromes.

Let me know if you are interested in what happens and why.
Neil nclarknz@ yahoo. co. nz

--- In autismlist@yahoogroups.com, "gwautismstudy" <autismstudy@...> wrote:
>
>
>
>
>
> Hi Neil,
>
> I'm not quite sure what you meant by your reply.  This post is regarding a
survey being conducted on medication responsiveness in persons with Autism
Spectrum Disorders (ASD).  Please visit this link to access the survey: 
www.surveymonkey.com/GWautismstudy.
>
> We hope that you will participate, as the long-range goal of these studies is
to identify genetic profiles that would help clinicians to prescribe medications
more accurately based on their patients' unique biology.
>
> If you have any questions, feel free to email me at autismstudy@...
>
> Best,
> Brian Kelly; Research Coordinator
>
> --- In autismlist@yahoogroups.com, "Neil S Clark" <nclarknz@> wrote:
> >
> >
> > --- In autismlist@yahoogroups.com, "gwautismstudy" <autismstudy@> wrote:
> > >
> > > How effective is your medication for controlling symptoms of autism
spectrum disorders?
> >
> > Ask Luke Tsai, he's the man
> > I have his DVD
> > perhaps I can upload it to the internet.
> > Neil
> >
>

#27521 From: "Neil S Clark" <nclarknz@...>
Date: Sat Apr 30, 2011 11:46 pm
Subject: Re: Recruiting for a new study on Medications used for ASD
nclarknz
Send Email Send Email
 
Cidar vinegar is a common cure for this at least 4 times a day, IMO
give an Autistic a choice of 5 different chippies salted and he will pick salt
and vinegar every time.
after all the client Autistic individual knows best.

All Autistic behaviour is a natural reaction to the requirements of survival.
The only remedies are those that the brain knows about and can create.
Drugs are only used by society as a symptom reliever,
i.e. they are afraid of the unknown

The unknown is the Autistic individual doing the best he can.
The trouble with a mirror cure for Autism is everything is inside out.
Look in the mirror you see the left is right. The right is left.
To treat an Autistic do wahtever you think is bad for him,
that will help him the most.
Either to react against or to provoke reaction or change.
Change or development is what most are after.
In Autism it will never happen,
just look at me - developmentally ubder 12 months old.
But a 12 month olsd sure knows a lot of interesting stuff that adults have long
long forgotten

Your best bet for a cure (which drugs are never designed for)
is to look up Sunrise?? institute - Kuffman - sorry spelling wrong.
They charge heaps tpo say mirror the child, become autistic yourself and you may
understand.
But remember an Autistic doesn't understand also.
He is just processing information at 100x the rate of a normal person.
If you knew what he knew, you would be able to cure anything.
Evolution of 200,000 years sure knows a lot of stuff.
Modern science is only a drop of sand on the beach.
Hadly worth considering relatively, IMo.


I haven't learnt how to read about others or or understand others yet.
Heence you won't understand what I'm talking about.
At the moment I can't evEn see, but I can type.
There is no original thought here,
only an echo-station of 56 years of trying to understand the environme3nt.


--- In autismlist@yahoogroups.com, "gwautismstudy" <autismstudy@...> wrote:

> Hi Neil,
>
> I'm not quite sure what you meant by your reply.  This post is regarding a
survey being conducted on medication responsiveness in persons with Autism
Spectrum Disorders (ASD).  Please visit this link to access the survey: 
www.surveymonkey.com/GWautismstudy.
>
> We hope that you will participate, as the long-range goal of these studies is
to identify genetic profiles that would help clinicians to prescribe medications
more accurately based on their patients' unique biology.
>
> If you have any questions, feel free to email me at autismstudy@...
>
> Best,
> Brian Kelly; Research Coordinator
>
> --- In autismlist@yahoogroups.com, "Neil S Clark" <nclarknz@> wrote:
> >
> >
> > --- In autismlist@yahoogroups.com, "gwautismstudy" <autismstudy@> wrote:
> > >
> > > How effective is your medication for controlling symptoms of autism
spectrum disorders?
> >
> > Ask Luke Tsai, he's the man
> > I have his DVD
> > perhaps I can upload it to the internet.
> > Neil
> >
>

#27522 From: "Neil S Clark" <nclarknz@...>
Date: Sat Apr 30, 2011 11:58 pm
Subject: Re: Help your favorite cause for kids with ............................
nclarknz
Send Email Send Email
 
The best way to help people is to not help them.
If you help them it is taking away the capablity of the individual to help
himself.
If things are urgent and dire enough,
they will find a way.
Any way is correct,
any response is correct,
IMO.
A response is the most important part of anything, even in education.
For without the response, output is not possible,
if output is not possible,
then you are dead.
One has to to be NOT afraid of getting it wrong.
Gettinbg it wrong may be the best thing one can do, IMO
Hopefully it then becomes a learning experience.

But for me I forget ,
when you do that you commit the same mistakes over and over again.
It is funny don't you think?
Or is it don't you think.
Thinking is good,
it gives you output, mistakes, repetition over anmd over again,
this is almost like creating memory?
Or is it emotion that is memory, y4es.
Signed confused and lost within myself, but loving it.
Neil from Levin, New-Zealand, Southern hemisphere.

Thast means for greater blood flow to the brain i use no pillow,
hence the higher functioning as an irritant.
IMO

PS: I talk from RHS to LHS of brain sometimes,
One side ... .... another story on
http://3service. freeservers. com/autism. html

this is NOT an advert but sometimes I am very wrong,
it is a learning experience.

--- In autismlist@yahoogroups.com, "jon singer" <singer@...> wrote:
>
> Please join us in our effort to raise $1,000,000 for charities that help
> children with special needs in conjunction with our 2011 Advocacy 4 All
> Cross-Country Tour
> <http://www.drive4rebecca.org/2011CrossCountryTour.htm>  .
>
> Just start a fundraiser for your favorite cause at:
> www.Crowdrise.com/Advocacy4All <http://www.crowdrise.com/Advocacy4All>
>
> You can help make a major difference for your favorite organization and
> win terrific prizes.
>
> 1) Donate at least $25 for a chance to win one of two iPod  Shuffles
> 2) Raise the most money from your donors and win an iPad.
>
> Thanks for joining us in raising $1,000,000 to help make sure no
> children with special needs get left behind. Learn more at
> www.Drive4Rebecca.org <http://www.drive4rebecca.org/>
>
> And start your fundraiser for your favorite kids charity today:
> www.Crowdrise.com/Advocacy4All <http://www.crowdrise.com/Advocacy4All>
>
> Thanks,
>
> Jon Singer
> Drive4Rebecca
>

#27523 From: "Neil S Clark" <nclarknz@...>
Date: Thu May 12, 2011 1:48 am
Subject: Re: Must See FC Video's...reply
nclarknz
Send Email Send Email
 
FW: Must See FC Video's...reply

If I was evaluating I would have 3 cameras,
count and look for initial glances, frequency of blinking,
blindfolding the facilitator would require practice perhaps?

I would provide distractions for the Autistic
near the keyboard to access peripherial vision etc.
How often he was looking etc,
the list goes on.

There will always be believers and non-B
That sounds religious but true, perhaps. IMO

--- In autismlist@yahoogroups.com, Tom Smith <> wrote:
>
> Dear ASD list,
>
> There's getting to be more and more video's of independent typers that can't
be ignored.  They clearly demonstrate that severe autism is not a condition of
mental retardation but of an uncanny intelligence and creativity.  It's my view
that not all auties will be able to type independently, but most can type with
support.  Those questioning the authorship of supportive typing should but that
doesn't mean that it is not valid in some ways.  The most important way it is
valid is making it clear that they like the independent typers are indeed
intelligent.

>
http://www.autismsupportnetwork.com/news/video-jenna-lumbard-non-verbal-autistic\
-author-98273633
>
> Tom
the FC of AL extraordinary communication from the top, NC :-)

#27524 From: lfd0985
Date: Sun May 15, 2011 12:56 pm
Subject: Autism and Adults Research
lfd0985
 
Hi!  My name is Laura Dengler. I am a Ph.D. student in the Department of
Communication Sciences and Disorders at Penn State University.  I work with Dr.
Kathryn Drager.

We hope that you can help us with some exciting research. We would like to learn
about the experience of being a parent of an adult with autism spectrum disorder
(ASD).  We recognize that parents have many different experiences, and we are
interested in learning about the perspectives of parents of individuals with
Autism across the lifespan.

We are inviting parents of individuals with an ASD to join an online discussion
group.  We want to learn about the experiences of those parents and how they
compare to parents in similar situations. We would like to learn about the
issues that parents feel are unique and specific to having a child with an ASD.
We would also like to learn about issues unique to have adult children with ASD.
We plan to share what we learn with each participant and other parents of
children with an ASD.

We are currently looking for parents of adults with ASD to participate in a
discussion group that will begin in the next few weeks.

If you are a parent of an adult with ASD, please consider participating in this
important study.  For more information, please e-mail me using my Penn State
email address at lfd116@....

Thanks,
Laura

#27525 From: "transitionsuccess" <transitionsuccess@...>
Date: Mon May 16, 2011 1:49 am
Subject: Do you live in the Philly vicinity and have a teen with LD/ADHD?
transitionsu...
Send Email Send Email
 
If so, I am teaching two courses this summer at Gwynedd Mercy College that are
CRITICAL to post secondary success for students with LD/ADHD.

SEE:

COLLEGE STUDY SKILLS:
http://www.conquercollegewithld.com/pdf/collegestudyskills11.pdf

AND

COLLEGE, OR NO?
http://www.conquercollegewithld.com/pdf/collegeorno11.pdf


If you know someone in Philadelphia who could benefit from these courses, PLEASE
SPREAD THE WORD!

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