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#27046

From: "Michael E. Robinson, Sr." <peace4kids@...>
Date: Sat Dec 20, 2008 3:23 am
Subject: Now what ??

peace4kids

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As concerned parents we have to do whatever we can do.  With the

numerous emails and postings regarding Time Out Rooms it opens the

door to all the other abuses that go on in schools that sometimes we

as parents do not know about.  The most important thing to me always

is awareness of what ASD's even are, not just the word Autism out

there, but what, why, and how's need to be looked at.  I contacted CNN

moments ago at the request of a parent(or 100's) that don't want

Illegal Time Out rooms, Restraint done unnecessary or by someone

untrained or not in compliance with an IEP's BIP, and other abuses.

This is the electronic response I received..If they do respond as I

think they will considering the nature of what I wrote to them about,

we as parents and other Advocates for our children in special ed must

speak up.  If we do not.. then a child just died for no reason and

without any real public outcry.. so lets cry out..we are the public:



From CNN

Thank you for contacting CNN. This email is to notify you that your

news tip has been received and will be reviewed in a timely manner.

You will be contacted if the news tip is valid and we need further

information and verification.



We appreciate your news tip and thank you for choosing CNN as your

breaking news source.



Sincerely,



CNN Viewer Communications Management

"CNN, The Most Trusted Name In News"



So lets move forward ...no need to look back other then to make sure

justice is served on this earth for all of our special children. Mine

is the like the light of my path (which in the Bible is a reference to

what God is).  We need to protect our kids, get the funding necessary

for all, stop the IEP fights with funds and mandates on insurance

companies so it's not placed so heavily on School districts and

especially parents like me and you.

Vote and change this, and give your input as to what else needs to be

added.  The subtitle " Relief for all that are in/have been in special

education "  ..this came from a parent and not me...much of what will

be in the final draft will be parental input.  As I've once stated..

this ACT is for all of us.

http://www.change.org/ideas/view/accept_and_sign_the_autism_reform_act_of_2009

Register at the bottom of the site and vote at the top.

Thank you,

Michael E. Robinson, Sr.

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#27047

From: Tom Smith <qim@...>
Date: Sat Dec 20, 2008 7:43 pm
Subject: Re: [Autismlist] Now what ??

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Mike,

I've been fighting for autism for 35 years, the past 15 of which has been in an intense, time consumming and volunteer way on the net. Has anyone listened to me? The government and media listen very well to the parents but the past ten years of that seems to be making things worse. In my county special ed is getting mucn worse yet we have lots of parents involved in this county and it used to have a reputation for being one of the best.

As I understand this autism act we are now in a phase where the pros are supposed to take a sober look at what needs to be done and how best to use the money. They seem to want to imporve services which is what they should do. They also seem to adhere to a more scientific approach to research instead of chasing ghosts of biomedicals which the parents seem to want to do.

You can shine on the past but remember there have been many good parents AND pros who worked together for decades and made some major improvements in the law. The job where I did my FC project used a state of the art program monitored by the feds called ICF (Intermediate Care Facility). The regulations of ICF were great but hard to satisfy in practice. That's were we should be concentrating. It may need a whole health care systems overhaul and with universal health care that might be coming down the pike soon. Us autism advocates could be a powerful part of that and it would not only be beneficial for us but for the whole health care system. I have worked in most areas of health care and I know autims is a critical part of the system that can strenghten the whole thing if approached and structured right. I have talked here in years past about this restructuring and how it could serve both autism and the larger system. Pros on a national level are aware of this need and have a plan but aren't aware of how autism may fit in.

Autism is the most difficult disability to care for and treat. I saw great improvements in my 35 years in the field and we did make it to the promise land by the early Ninieties and then lost it. I spent over ten years out here proving I knew what the promised land was and how to get back to it yet I'm treated and used as if I were a no nothing stranger.

At some point we need some leadership. In autism it's all a bunch of individuals who think they know best and don't listen to anyone else. Considering the conflicting theories and advice I guess that is understandable, but these advocacies of the parents that won the day the past 10-15 years have actually made things worse and have alienated the public. I told the very same parents who were leading this effort 12 years ago that this would happen and why. I'm not on board for another 12 years.

Tom

--- On Fri, 12/19/08, Michael E. Robinson, Sr. <peace4kids@...> wrote:

From: Michael E. Robinson, Sr. <peace4kids@...>
Subject: [Autismlist] Now what ??
To: autismlist@yahoogroups.com
Date: Friday, December 19, 2008, 7:23 PM

As concerned parents we have to do whatever we can do. With the
numerous emails and postings regarding Time Out Rooms it opens the
door to all the other abuses that go on in schools that sometimes we
as parents do not know about. The most important thing to me always
is awareness of what ASD's even are, not just the word Autism out
there, but what, why, and how's need to be looked at. I contacted CNN
moments ago at the request of a parent(or 100's) that don't want
Illegal Time Out rooms, Restraint done unnecessary or by someone
untrained or not in compliance with an IEP's BIP, and other abuses.
This is the electronic response I received..If they do respond as I
think they will considering the nature of what I wrote to them about,
we as parents and other Advocates for our children in special ed must
speak up. If we do not.. then a child just died for no reason and
without any real public outcry.. so lets cry out..we are the public:

From CNN
Thank you for contacting CNN. This email is to notify you that your
news tip has been received and will be reviewed in a timely manner.
You will be contacted if the news tip is valid and we need further
information and verification.

We appreciate your news tip and thank you for choosing CNN as your
breaking news source.

Sincerely,

CNN Viewer Communications Management
"CNN, The Most Trusted Name In News"

So lets move forward ...no need to look back other then to make sure
justice is served on this earth for all of our special children. Mine
is the like the light of my path (which in the Bible is a reference to
what God is). We need to protect our kids, get the funding necessary
for all, stop the IEP fights with funds and mandates on insurance
companies so it's not placed so heavily on School districts and
especially parents like me and you.
Vote and change this, and give your input as to what else needs to be
added. The subtitle " Relief for all that are in/have been in special
education " ..this came from a parent and not me...much of what will
be in the final draft will be parental input. As I've once stated..
this ACT is for all of us.
http://www.change. org/ideas/ view/accept_ and_sign_ the_autism_ reform_act_ of_2009
Register at the bottom of the site and vote at the top.
Thank you,
Michael E. Robinson, Sr.

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