http://www.jewishjournal.com/high_holy_days/article/opening_the_gates_20081001/

This lecture by a severe autistic Jacob Artson using FC (Facilitated
Communication) should be a primer for anyone interested in or dealing with
autism. I will be forwarding a few more of Jason's speeches.

Tom

Quote:

"So here is a final thought I would like to leave you with:

The best peers and aides I have had didn't have any special background. It
doesn't actually take any training to be a leader who models inclusion. It just
takes an attitude that all people are made in God's image and it is our job to
find the part of God hidden in each person.

I used to get very upset and offended at the idea of being someone's mitzvah
project or community service project. But now I see that I also have a role to
play in helping create the messianic future. It is easy in our affluent society
to become too dazzled by the material opportunities and the privileges that we
have been born with. But I have had to struggle from the day I was born to do
many things that other people take for granted. Because of that, I have
experienced God's love in a way most children have not. So maybe we are each
other's mitzvah project because I can help them see the glories of the world
that they have never noticed, and they can teach me how to look like other kids.
All in all, who is getting a greater benefit? In the end, together we bring
God's glory to all of humanity."


By Jacob Artson

Jacob Artson, 16, gave the following speech last May at a conference in Los
Angeles titled "Opening the Gates: Building Inclusive Congregations and
Communities for Jews with Special Needs," where he shared the keynote address
with his father, Rabbi Bradley Artson, dean of the Ziegler School of Rabbinic
Studies at American Jewish University. The conference was co-sponsored by The
Jewish Federation, HaMercaz, The Board of Rabbis, the Bureau of Jewish Education
and the Kalsman Institute on Judaism and Health.


Hi. My name is Jacob Artson and I am a person just like you.

I am part of a wonderful Jewish family, I go to our local public high school,
where I am in mostly regular classes, I play sports, I love to travel, and I
enjoy hanging out with my friends and girlfriend.

The only difference between you and me is that I have lots of labels attached to
me, like nonverbal, severely autistic and developmentally disabled.

It is true that I have some challenges, but there are lots of myths and
misconceptions about autism out there. Many purported experts claim that
individuals with autism are not interested in socializing. This is totally
ridiculous. I love people, but my movement disorder constantly interferes with
my efforts to interact. I cannot start and stop and switch my thinking or
emotions or actions at the right time. This can make being in a big group very
lonely and that is the worst thing about autism. So next time you see someone
like me at your synagogue or at your event, remember that they probably feel
really lonely and you could be the person to make their day by smiling at them
and letting them know that they exist.

Another myth is that the majority of kids with autism are mentally retarded. In
fact, our bodies are totally disorganized but our cognitive skills are intact
and our minds are hungry for knowledge.

Every person alive is encumbered by challenges and blessed with gifts. I used to
think that my ratio of challenges to gifts was higher than most, but now I
realize that my challenges are just more obvious. I have learned that there are
actually many positive aspects of autism. For example, I get a VIP pass at
Disneyland and I get to kiss all the beautiful counselors at camp and pretend I
don't know any better. On a serious note, not being able to speak means that you
spend lots of time listening.

In fact, much of what I know I've learned from listening to conversations that
other people didn't think I could hear, or listening through the wall to what
the teacher in the next classroom was saying. People often ask me how I became
such a good writer. The answer is that my inability to speak gives me lots of
time to contemplate and imagine and also forces me to hear everyone's
perspective and think about it because I cannot interrupt or monopolize the
conversation like people who have oral speech.

In the autism world we say that not being able to speak doesn't mean that you
don't have anything to say. In my experience, the converse is also true —just
because you can speak doesn't mean that you have anything worth saying.

Since this is a conference on including people with disabilities in the Jewish
community, I want to share with you the ways in which autism has affected my
participation in Jewish life. I have found great support in God, Torah, and the
Jewish community. The greatest single day of my life was my bar mitzvah because
everyone there accepted and celebrated me for exactly who I am. At the end of
the service, everyone came up on the bima for Adon Olam. I will carry in my mind
and heart forever the picture of everyone there smiling at me. I had wonderful
experiences when I was in a Jewish preschool and later kindergarten, even though
my teachers had never had a child with autism in their class. What made those
experiences successful was the way the teachers modeled inclusion for the other
kids. They treated me as a person made in God's image and not as different in
any way. In kindergarten, I had amazing peers. They were mostly Persian and
inclusiveness is
engrained in their culture. They tried all year to get me to interact with them
even though I was usually too excited to focus. I've also had wonderful buddies
from The Friendship Circle, attended several Jewish camps, participated in a
Jewish musical theater program called The Miracle Project, and prayed at
Koleinu, a service at Temple Beth Am for kids with special needs.

But there have been obstacles as well. I have never attended religious school
because I was bored in the special ed Hebrew school and the typical classes did
not allow a place for me to engage either. When I was younger, I went to
synagogue every Shabbat but the other kids ignored me. As a teenager, I have had
some wonderful Jewish experiences at camp and elsewhere, but the first reaction
is that I am too disabled to attend, or that I don't participate once I'm there.
So whether I'm invited seems to depend on the particular director that year. I
have noticed that when I attend Jewish youth group events, the volunteers seem
to pay attention primarily to the verbal kids, so I am lonely. I suspect that
this stems from lack of exposure, but their youth leaders could do a better job
of modeling inclusion too.

The public schools and secular programs I have attended have been much more
welcoming. The public schools are overwhelmingly black and Hispanic, and they,
too, seem to have a culture of inclusion. The kids at school treat me like
family and pull me into everything they do. I go to a secular camp for autistic
kids in Aspen every summer and everyone is welcome there. We do cool things like
go tubing and white water rafting and I am able to participate in everything
because I know they will work with me where I'm at.

In my secular inclusive sports program, Team Prime Time, the director has taken
the time to allow for sharing on several levels, so the kids all respect me for
my intelligence and understand how hard I'm working to make a basket or kick the
ball. I have also been part of their new volunteer training and have spoken
about autism at school, but I have never been invited to participate in
volunteer training for any Jewish program I have attended.

So here is a final thought I would like to leave you with:

The best peers and aides I have had didn't have any special background. It
doesn't actually take any training to be a leader who models inclusion. It just
takes an attitude that all people are made in God's image and it is our job to
find the part of God hidden in each person.

I used to get very upset and offended at the idea of being someone's mitzvah
project or community service project. But now I see that I also have a role to
play in helping create the messianic future. It is easy in our affluent society
to become too dazzled by the material opportunities and the privileges that we
have been born with. But I have had to struggle from the day I was born to do
many things that other people take for granted. Because of that, I have
experienced God's love in a way most children have not. So maybe we are each
other's mitzvah project because I can help them see the glories of the world
that they have never noticed, and they can teach me how to look like other kids.
All in all, who is getting a greater benefit? In the end, together we bring
God's glory to all of humanity.