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  • Category: Support
  • Founded: Jun 15, 2001
  • Language: English
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#42 From: "Frederick Noronha" <fred@...>
Date: Wed Jun 2, 2004 3:42 pm
Subject: An apology... and seeking help
fredericknor...
Send Email Send Email
 
I apologise to members of this group for allowing spam to go through
this list. I've plugged the hole, and hopefully, it won't happen
again.
BTW, I need some help in moderating this list. Maybe from someone
like Kennedy, who has been active in posting a number of useful
posts. We also need to expand this list to more potential
subscribers. Any help? Frederick Noronha (a mailing-list fan from Goa)

#43 From: "Frederick Noronha" <fred@...>
Date: Mon Jun 7, 2004 5:18 pm
Subject: Autism, India ... links
fredericknor...
Send Email Send Email
 
If you'd like to check out what others are discussing related to
*autims* and *India*, check out

http://groups.google.com/groups?q=autism+%2B+India&hl=en&lr=&ie=UTF-
8&scoring=d

Of course, like all things on the Internet, some of the posts are not
even remotely connected with the subject we're involved with here.
But many are. FN (frederick noronha)

#44 From: J Kennedy <kennedyn@...>
Date: Mon Jun 14, 2004 2:58 pm
Subject: AUTISM INDIA
kennedy_nj
Send Email Send Email
 
better late than never.

adhd and autism are related to an extent. please find below some contacts
who could help us in applying totally safe homeopadhic treatment



jawahar



INVITATION



Workshop On Treatment Of Autism Through

Homoeopathy



Guest of Honours:                  Mr. P. R. Mundewadi

                                                             Chairman - ASHA
Charitable Trust,

                                                             Group of
Institutions.



                                                             Dr. T. K. Deb

                                                             Ex - DHO Health
Project Director,

                                                             Karuna Trust.



                                                             Dr. B. N.
Prakash

                                                             Principal, Govt.
Homeopathic

                                                             Medical College,
Bangalore.



Venue: R. K. Hall, Dhruvadhama, Vidya Vardhaka Sangha,

Next to Balaji Electronics, Rajajinagar, 1st block, Bangalore - 560 010.



Date: 12 - June - 2004

Time: 10:00 a.m. to 12:30 p.m.



ALL ARE WELCOME





                                                             Mrs. Jayashree
Ramesh

                                                             Director

                         Academy For Severe Handicaps And Autism

Ph:- 23225279 / 23230357

&

Dr. Mahesh M.

Homeopathic Consultant,

RSVP - 23585757                                Academy For Severe Handicaps
And Autism




[This message contained attachments]

#45 From: "Frederick Noronha (FN)" <fred@...>
Date: Thu Jul 1, 2004 10:23 am
Subject: LPS: Working wonders (a schoolboy with dyslexia)
fredericknor...
Send Email Send Email
 
WORKING WONDERS  Deccan Herald

David Mansell provides
a brief profile of a
schoolboy with dyslexia,
who has designed a top
website to help young
people like himself.

A WEBSITE launched by a schoolboy with dyslexia to help other young
sufferers has been named as one of the best in the United Kingdom.
Teenager Barnaby Blackburn, who lives near London, decided to create his
own Internet forum after failing to find any suitable sites for young
people like him.

Lively and interesting as well as helpful, it has been selected by
Internet company Yahoo! as one of its best sites of the year after being
recommended by users. The site -- http://www.iamdyslexic.com -- attracts
about 150 hits a day from young people with dyslexia all over the world.

It includes spelling tips, hints on improving reading and writing skills,
links to organisations offering help for dyslexics, games and success
stories from children in the UK, the United States, Spain, Denmark,
Australia and other countries.

Barnby, aged 13, said: "I learned how to design web pages when I was 11
with the help of a teacher -- without him I wouldn't have been able to do
it. During the summer holidays, I searched for websites that were suitable
for children with dyslexia and didn't find any. So I decided to start my
own."

His site has recorded almost 100,000 hits since he launched it in October
2000. Many of the 100 e-mails a week he receives via the site are from
young people seeking help with their dyslexia, and he spends hours of his
spare time responding to them.

The site also offers mail-order software designed by Barnaby, who added:
"I wrote software for my own use and thought I would sell it so others
could benefit."

The software is aimed at teachers but includes simple sums, help with
developing computer mouse control skills, and help with spelling, days of
the weeks and months. He has already sold the software to schools in the
UK and now hopes to interest teachers abroad.

Barnaby's website has a moving account of his own struggle to do well at
school. He was diagnosed dyslexic when he was a six-year-old pupil at the
village school in Wedmore Somerset, south west England, where he also
first developed his interest in computers. He is now a student at
Charterhouse, an independent school in Surrey, where his father works.
(LPS)
--
------------------------------------------------------------------------
d88888b d8b   db   Frederick Noronha * Freelance Journalist * Goa India
88'     888o  88   f r e d @ b y t e s f o r a l l . o r g
88ooo   88V8o 88   http://www.bytesforall.org
88~~~   88 V8o88   Phone 0091.832.2409490 Mobile 09822 122436
88      88  V888   784 Nr Lourdes Convent, Sonarbhat Saligao Goa 403511
YP      VP   V8P   Writing ... with a difference, on issues that matter

#46 From: J Kennedy <kennedyn@...>
Date: Sun Aug 8, 2004 5:20 pm
Subject: FW: [AutismIndia] Digest Number 82
kennedy_nj
Send Email Send Email
 
very touching and interesting one..


Subject: Krishna's Story -in Rediff

http://in.rediff.com/news/2004/jul/21spec1.htm



When Krishna Narayanan was four years old, his mother showed him an apple
and repeated, "Apple... apple..." He knew not only the word 'apple', but
many, many other complicated words. He wanted to cry out to his mother that
he knew all of them, but no words came out of his mouth; just a garbled
sound.

Inside an elevator as a four year old, Krishna felt extremely tense. To
relieve the tension, he stretched out his right hand and watched his
fingers. This was a weird mannerism to the onlookers, and many thought he
was insane. The liftman ridiculed him with nasty jokes. It hurt Krishna, and
he badly wanted to tell his mom that he felt ridiculed and hurt, but he
lived in a silent world.

Once on the school playground a kid came and asked, 'How are you?' Krishna
answered in his mind, 'Fine, how are you?' But in reality, nothing came out
of his mouth.

He had to pass through 23 long years of mental torture, hurt, and agony, but
his mother's relentless spirit in educating him and Ayurvedic treatment at
the Kottakkal Arya Vaidya Sala and at the K A Samajam Hospital at Shoranur
helped Krishna write what went on within him.

He wrote: 'Who was I to the world? But really, who was I? The world and the
autistic are like the theatre audience and the actor. The world sees the
autistic as weird and insane... Kindled by tension, fear and insecurity, the
autistic behaves inappropriately. The weird behaviour of the autistic drives
the world up the wall. The state of the autistic is a sad one.'

BOSTON, December 1971. When Krishna was born, Jalaja Narayanan was in bliss.
At that moment itself she had so many dreams for him. "I wanted him to be a
great scientist. I wanted him to be a neurosurgeon. At times, I thought
both."

But soon the young mother found her dreams crumbling. Even as a one year
old, her son didn't walk, didn't utter a word, didn't show any interest in
toys, and didn't like to be held or cuddled. By two, he was displaying
bizarre behaviour like looking at his hands, flapping them, rocking, hitting
his head against the wall, tapping his chin, screaming, throwing tantrums
and showing extreme fear in front of strangers. Krishna wanted to be far
away from people all the time, in the isolation of his room; he even refused
to come to the living room.

"He was that withdrawn and lonely," remembers Jalaja. "I had another child
Malini [now chief of neurosurgery at Harvard Medical Hospital in Boston] two
years elder to him. So I knew there was something wrong with this child. But
those were the Seventies, and there was nothing available on autism. The
doctors didn't know how to diagnose autism, even in the US."

So, when she took the year-and-a-half-old Krishna to the doctor, he was
diagnosed to be deaf. The doctor also told her that Krishna would never be
able to hear any sound. "That was the first diagnosis," says Jalaja, "but I
didn't believe her because I had noticed him turning when the telephone
rang, but not when we called him."

At four, at the Children's Hospital in Boston, Krishna was diagnosed as
severely autistic. The doctor also told her that he would never understand
the human voice.

Thus began the young mother's long drawn war on autism.

"I was all alone with the diagnosis, and I didn't know what it was," she
recounts. "When the doctors said my child would never understand human
speech, I told them, no, I will make him understand. They asked, how? I
said, I have 24 hours a day. They said, you cannot overbake a cake. I said,
don't say that about my child, my child is a living being. He's not a cake."

Krishna writes, 'Riding on my horse -- my young and innocent mom -- I fought
a relentless, tireless, epochal war. The kid in me was handcuffed and life
was hideous. I was a total prisoner of autism.'

Krishna heard every word that was uttered; he also understood what was
happening around him. 'To my parents, I was not dumb. In reality, I was
never dumb. I knew the alphabet, I knew many words, and I knew how to
fashion sentences. The tragedy of autism is being unable to communicate in
words. An autistic's mind is normal, even brilliant, but complete absence of
verbal expression makes his behaviour totally misunderstood. To the world, I
was weird and insane, given to funny movements with no speech. To me, I was
normal in intelligence, feelings and emotions, but afflicted with a
debilitating disease that robbed me of speech and coordination, and endowed
me with enormous tension and fear,' Krishna wrote at age 24.

He describes his life as a human drama, a Greek tragedy that is seemingly
sad and hopeless. He also likes to call his story a 'positive story of
struggle, survival and success against all odds'.

ON JUNE 24, P S Ramamohan Rao, governor of Tamil Nadu, inaugurated The
Autism Centre started by Jalaja Narayanan in Chennai. The idea of starting
such a centre came up when parents bombarded Jalaja for advice on how to
bring up an autistic child. "I have been spending all my free time
counselling parents, one at a time, which was taking a toll on me. So, I
decided to start a centre from where I can counsel many parents because
parents need motivation. This is not a one-day fight; it is a life-long
war."

She also has plans to start an Indian society for autism so that all parents
of autistic children, all professionals working on autism, and all schools
with autistic children are integrated.

On the same day, the governor released a book jointly written by the mother
and son, titled, Quest, Search for Quality Life. It comes after two books
written separately by Jalaja and Krishna. Jalaja Narayanan wrote From A
Mother's Heart; A journal of survival, challenge and hope in which she
described her traumatic life bringing up an autistic child and also the
various techniques used to overcome autism. The techniques are scattered
through the book.

Krishna's first book, Wasted Talent; Musings of an Autistic, was an account
of how he got over all the hurdles to finally open his mind to his parents.
Soon, he was writing his autobiography and learning complicated mathematics
and physics.

When many parents of autistic children constantly asked for advice on the
various techniques and therapies used by them, the mother and son decided to
write a book jointly.

It starts with the chapter, 'Dream a Quality Life' for an autistic child.
Krishna says the parents should ask every day, 'How can I improve my child
today?'

What helped Krishna come out of the tension-filled days in the early years
of his life was music. His mother, a Carnatic singer herself, sensed her
child's ear for music. With music in the background, Krishna who rocked and
whined all night started sleeping soundly. Music also calmed him a lot more.

The second chapter talks about the 'Power of Intuition'. Jalaja was so
convinced that the child had the ability to understand and learn that she
kept teaching him and reading out Charles Dickens, Tolstoy, Dostoevsky, Jane
Austen, etc though there was absolutely no response from him. She continued
to read out to him and make him listen to audio tapes of great world
literature because she saw a 'sparkle' in his eyes.

Krishna wrote in his book, 'She felt sparkling eyes cannot come from a dull
mind. This was a bold hypothesis when there was precious little output from
me. In a similar vein, parents must probe and think where the strength of
the child lies. Where does it show interest or aptitude? What activity calms
him or what activity he does not mind doing? Earlier this talent is
detected, larger will be the benefits.'

Education is a necessity, Jalaja felt strongly, though to educate an
autistic is extremely tough. Krishna admits, 'No challenge is greater than
the challenge to educate the autistic because they are restless and their
rigidity and rituals interfere with learning. They can neither write nor
talk.'

But what gave Krishna's life a breakthrough was ayurveda. 'We stumbled upon
Ayurvedam and it totally turned my life around. Without it, I will not be
where I am today. I cannot emphasize enough the wonderful role Ayurvedic
treatment had in my life.'

Once the treatment calmed his body and mind, his body became less rigid,
fingers became supple, and he slowly started writing. By then, years had
passed, and he was 23.

His father, Dr S Narayanan, took a break from his job as director of Lucent
Technologies, Bell Laboratories, USA, and started teaching Krishna
simultaneous equations in algebra. Krishna picked it up quickly. His father
then taught him calculus, which also Krishna grasped rapidly. Dr Narayanan
then moved to differential equations and Newtonian physics. Krishna loved
quantum physics and relativity.

'What did I get from education?' he wrote. 'Primarily, it provided me with
self-confidence. Even though an autistic, I am as intelligent as the normal
person, if not better, and can understand subtle and tough concepts in
mathematics and physics.'

As he acquired the ability to write, his parents asked him to tell them
about himself so that they could know him. Words slowly came out onto paper,
and there he was at the age of 23 telling his parents who he was, what he
felt at age four, how he felt humiliated and ridiculed because the world
looked at him as weird and insane when he had an intelligent mind. His
mother was so impressed with his writing that she wanted him to write a book
on himself.

'This is more easily said than done; thus started an odyssey of six long
years. Everyday, slowly, ever so slowly, I wrote a couple of paragraphs and
the book began to take shape.'

When Krishna titled the book Wasted Talent, his mother objected. 'The title
reflects ultimately my belief that the talent of an autistic is wasted away
if it is not nurtured.' An adamant Krishna refused to change the title.

The book was published in July 2003, to rave reviews. Now, Krishna is in the
process of writing a novel.

He ends the book with, 'What is my future? I really don't know, but I can
dream.' He dreams of learning more mathematics and teaching young students.
'That may happen because of the advances in the Internet. I could teach
without speech.'

He also dreams of the US Congress allocating enough funds to research both
Eastern and Western treatments for autism. His third dream is that the world
will not abandon him to an institution when his parents move on.

His final dream is, 'An angel would descend from heaven to marry me and give
me happiness and a family.'

As he asks, what is life without dreams?



__

#47 From: J Kennedy <kennedyn@...>
Date: Tue Aug 24, 2004 3:39 pm
Subject: FW: [AutismIndia] Digest Number 91
kennedy_nj
Send Email Send Email
 
forwarded from autism india group ...

-
Message: 1
    Date: Mon, 23 Aug 2004 18:04:02 +0300
    From: "Saji. M. Idicula" <sajimi@...>
Subject: A message from Krishna


----- Original Message -----
From: vitech narayanan
To: Saji. M. Idicula
Sent: Monday, August 23, 2004 2:41 PM
Subject: Jalaja Narayanan - mother of Krishna Narayanan


Dear Mr. Saji M.Idicula:

Further to your email dt: august 11th, 2004, we would like to inform you
that we are alerady members of this email group and we are grateful that
you had sent us an email regarding my son  Krishna.

Further to this , I would like to say that Krishna has been addressing a
number of autism centres, where in, his prepared speech has been well
received
by the parents and professionals of the autistic community. I am sending you
one of
his speeches that he has prepared,which was subsequently read out at a
function
held at "ASHA", in Bangalore, where he was felicitated. I am sure this
speech would
benefit  other parents/professionals, who belong to the email group of
AUTISM INDIA.
If you are interested we could send you the remaing speeches made by Krishna
on
different occassions. We feel this would go a long way in helping other
autistic parents/
professionals in giving them hope and help them cope with the day to day
probless faced
by their autisticchildren.The Speech by Krishna is given below.
Thanking you.
Yours Sincerely
Jalaja Narayanan

                                                 SPEECH BY KRISHNA NARAYANAN
AT BANGALORE
"Outstanding" is my heartfelt feeling about this event organized by you.  I
am deeply touched by your gesture.  I thank you on behalf of all the
autistic children.



Ours is an unique world.  Most of you may have a vague notion about our
life.  But living it is poignantly tough.  For example, today I love to talk
to you; but I cannot.  Words will not come out.  So, I had to write my
thoughts down a day before.



Let me give you another example.  I want to meet and mingle with you.  But,
my tyrant companion, TENSION, would wreck that wish.  I am not sure how that
tension would manifest today.



But I have learnt to deal with these issues.  For example, I have prewritten
this speech; my dad will read it.  For tension, I take ayurvedic treatment.
The western medications help a bit.  The more I interact, faster the tension
subsides.  On the other hand, the outside world does not understand; often,
they don't even want to understand.



Your group can work to increase the AWARENESS about the autistic children
and their challenges.  The more the world accepts autism, the easier will be
the lives of your autistic children; easier will be parent's lives also.
You can give talks on Television, Radio or write articles in the newspaper.
One of my motivations for writing the book was to inform the world about how
the autistic feel, think and act.  I wanted to dispel the mystery of autism.
Please read my book and buy a copy for relatives and friends.  They need to
understand your child; this is a particularly important point.



Let me now dwell on a key issue of autism.  The issue is how to discover,
understand and nourish the potential talent of your child.  A pertinent
question is " Why focus on talent"?  The answer is simple.



The talent development increases confidence in your child.  Unless you are
confident, your motivation will erode quickly.  The lack of motivation will
affect your ability to develop your child.



To discover the talent in an autistic is indeed enormously tough.  How can
you find talent in a child that is running around, has no speech and has no
writing ability?  That takes outstanding patience, perseverance and
intuition.  My mom felt that I was intelligent though I had zero
communication skills either verbal or written.  She looked into my eyes and
intuitively felt a sparkle in my eyes.  That was enough to get her going.
We embarked on an intense journey into education for the next twenty or more
years.  Education was given emphasis even though I had my problems.



There were many hurdles to overcome.  For example, Mom would read to me but
she also was not sure whether I grasped anything.  I could not even say
correctly mommy or daddy when "Mommy" or "Daddy" cards were shown.  One day,
she showed both "Mommy" and  "Daddy" cards and asked me to point to the
"Mommy" card.  I did.  When she said "Daddy", I pointed to the "Daddy " card
correctly.  Any permutation worked. Even though no words would come out
correctly, I seemed to read.  Mom jumped with joy and no words could
describe her happiness. Her son was not dumb anymore.  Dr.Delocato, our
consultant, confirmed that I was reading.



Thus, my education started and I was tested by questions with multiple
answers and I pointed out the right answer.  This way, my English reached a
high level though I had no speech nor could I write.



There were detractors though.  They said "why this much emphasis on
education when there are so many problems such as tension, lack of speech
and very poor eye-hand co-ordination, etc."  But my parents kept pushing
education while not neglecting my disabilities.  Reducing my tension was
given high priority and also speech.  But, instead of waiting endlessly for
weak areas to become normal, education was given emphasis.



  During my adolescent years, even my parents faltered when they tried a
residential school hoping for improvement in behavior and eye-hand
co-ordination.  It failed miserably.



When I came back home, they tried Ayurvedic treatment.  I calmed down a bit
and education became paramount again.  Due to the Ayurvedic treatment, I
started to write slowly and that gave a tremendous impetus to learning.



The first lesson was in algebra.  The simultaneous equations were
interesting.  An example is one apple and two oranges cost ten dollars.  Two
apples and two oranges cost fifteen.  How much does the apple cost?  More
complicated problems use linear algebra, which I learned later.



Calculus came next.  The concept was stimulating.  Putting it in layman's
terms, the car goes sixty miles in one hour; the "average speed" we say "is
sixty miles per hour."  We divide distance by time.  As we keep reducing the
time interval, we get the instantaneous speed at a particular time.  The
concept is the derivative.  That is fundamental to calculus.  The derivative
of speed is acceleration.   A car with a powerful engine will accelerate
faster.  We reach high speed faster.



Once I understood calculus, my Dad started teaching me physics.  Newtonian
physics was fascinating; the acceleration is directly proportional to force.
The higher the force, the faster the car will accelerate.  The lonely
autistic is now connected to the world of Newton.  The concepts fill the
mind.  The concepts of work, action, reaction, and mass capture the mind.
There is no time to feel depressed.  Life is not that dismal.



The concepts of heat, electrostatics, optics, and electromagnetic waves
fascinated me.  The autistic can learn and think.  The thinking part of the
brain is not damaged.  The outsiders cannot understand.  The output is not
there.



The concept of differential equation came right after calculus.  This
concept begins with the derivative.  The combination of derivative and
natural laws resulted in a differential equation.  For example, suppose a
mass is attached to a spring that is fixed to a wall.  If one pulls the mass
and leaves it, the system oscillates.  This oscillation can be analyzed by
setting up a differential equation.  The forces are analyzed.  The force on
mass is acceleration times mass.  Newton came up with that great law.
Acceleration, as discussed, is the derivative of speed.  The combination of
derivative and natural laws results in a differential equation whose
solution can be found.



The differential equation is fascinating because it is intellectual and full
of applications.  In physics, differential equations abound.  In
electromagnetic field theory, space-time Maxwell equations are partial
differential equations.  In quantum physics, Schroedinger's equation is
derived through the Conservation of Energy law.  In acoustics, the wave
equation describes the sound waves.



The next topic that I want to discuss is acoustics.  The subject was
introduced to me by Ms.Lorin Wilde, my sister's friend.  The teaching was
done at the MIT room in the Acoustics Department.  The teaching was combined
with lab demos, which I enjoyed very much.  The most interesting demo was
the music changed by a differential equation.  Diana explained it well.  The
dynamics of Lorenz equation was fascinating.  The change in music is ever so
slight so it makes a wonderful variation.



Diana showed me the Lorenz equation and asked me whether that is linear or
nonlinear.

x '= a(y - x)

y' = rx - y - xz

z' = xy - bz



The answer was rather obvious to me and I wrote "nonlinear."  She asked,
"Why?"  I said "xy."  She was happy.  She was also surprised!  She said most
of her third-year students miss it because there is no square or cube.  I
felt great!



Here I am, a lonely autistic, learning alone and I am learning better then
normal college students!  That illustrates my theme in this essay.  Autistic
children can learn, and their intellect is normal.  The only major problem
is tension that causes behavior problems.  The other challenge is output.
These two, tension and lack of output, are the principal problems of autism.
But society, in its ignorance, confounded by autistic bizarre behaviors and
autistic deafening silence, compound the problem by denying the autistic
access to higher education.  All I learned at School "X" for seven years was
"one plus one is two."  The same lesson, repeated for seven years!  I was
sick to my stomach.  I had to endure the unendurable!



The theme repeats itself again and again.  There is no hope for the autistic
unless the vicious cycle of no education, inordinate boredom, depressing
thoughts, anger at everyone and at everything is shattered.  The anger
manifests as tantrums and attacks.  That makes society shun the autistic and
put them in institutions where, sadly, they die.



The education has a soothing effect because the mind is absorbed in
something other than the scary future or the depressing past.  This is true
even for normal people.  When we think of the past, we have regrets; guilt;
even a pleasant memory can turn into regrets.  Similarly, a rosy future
turns into anxiety and worry.



Let me illustrate with an example.  Take quantum physics; the first
postulate is Einstein's equation E = hv.  This says energy (E) equals
Plank's constant (h) times frequency (v).  The frequency increases with
energy.  The question is, "why is this true?"  The mind starts wondering; no
time to worry about autism.  The mind is fascinated with experimental
evidence.  One shines light on to a metal; electrons come out at a
particular speed, that is, at a particular kinetic energy.  When the
frequency of light is increased, the electrons come out faster, at a higher
energy.  Frequency and energy are related.



Another example is Bohr's famous and bold hypothesis that electrons occupy
discrete orbit levels and not continuous arbitrary levels.  Why?  What is
the reason?  One has to go deep into quantum physics to find answers.  One
has to understand the Schroedinger equation and its solutions.  Even deeper
must one fathom why an orbiting, accelerating electron does not radiate
electromagnetic waves as per classical physics.



The mysteries of the atom are incredibly fascinating.  The book by Professor
French of MIT (An Introduction to Quantum Physics) is outstanding.  The book
was so good and exciting that I read it six times.  Each time, it was more
fascinating; it revealed more and more of nature's mysteries.  After reading
the book a couple of times, Dad took me to meet Professor French.  I was
thrilled.  He clarified a few doubts and recommended two books on
electromagnetic field theory.  The book by Purcell was excellent.  The book
by Griffith was deep and comprehensive.  After reading these books, the
subject of quantum physics was all the more interesting.



What did I get out of this education?  Primarily, it provided me "Self
Confidence".  Even though an autistic, I am as intelligent as the normal
person, if not better, and can understand subtle and tough concepts in
Mathematics and Physics.  Moreover, it provided me structure throughout the
day and occupied my mind fully.



Another benefit was broadening my mind.  I read a lot of Classics such as
books by Dickens, Jane Austin, Tolstoy, Victor Hugo, Dostoyevsky and others.
I listened to a number of audio cassettes on literature, history, eastern
and western philosophy and so on.  This broadening unexpectedly showed its
effect in a very important area.



At age twenty three, I had just developed the ability to write, my parents
asked me to explain about myself so that they can know me.  I still had very
little speech.  I started writing for them, slowly.  My mom was so impressed
with my written material that she expressed a wish that I create a book.
This is easily said than done; this started an odyssey of six long years.
Everyday, slowly, ever slowly, I wrote a couple of paragraphs and the book
began to take shape.



Finally, the book was published in July of this year (2003).  The title
"Wasted Talent" reflects ultimately my belief that the talent of an autistic
is wasted away if it is not nurtured.  The thrilling moment came when I saw
on September 30, 2003 the review of my book in the prestigious "The Hindu"
paper.  From what I understand, "The Hindu" paper receives over 5000 books a
year for review and they choose only around 400 to review.  The autistic is
now doing better than normal - what a turn of events!  The review was very
positive and laudatory; the first sentence is given below:



"On reading the book under review, the single word that came to my mind on
completing it was fantastic" (underlining mine).



The purpose of this speech is to encourage parents and professionals of
autistic children to focus and nurture the potential talent of the child.
The disabilities should not be neglected and effort must be expended to
remedy them.  But, the emphasis should be on talent development.  The child
may show aptitude in music, painting, gymnastics or education.  Wherever it
is, that ability should be nourished lovingly with dedication.  The payoff
may take time but the child's life will be enriched and fulfilling.



Once again thanking you,



Krishna Narayanan


[This message contained attachments]



________________________________________________________________________

#48 From: J Kennedy <kennedyn@...>
Date: Sat Sep 18, 2004 4:47 pm
Subject: ADHD INSTITUTIONS IN INDIA
kennedy_nj
Send Email Send Email
 
From the net..

Chennai
AIKYA - Centre to Integrate the Different

is a Special School for Children with special needs. AIKYA specializes in
Early Intervention Programme; runs a school for children with Autism, Down's
Syndrome, Learning disability: brings out publications; conducts awareness
programmes, workshops and seminars and short term courses. Actively supports
parents and young children

AIKYA,
1/1,Bhagirathi Ammal Street,
R.A.Puram,
Chennai 600 028.

Tel: 91-44-493 8443 / 91-44-499 3892

Email: aikyaschool@... or parvathyv@...





With best wishes,

  Jyoti




[Non-text portions of this message have been removed]

#49 From: "earranga" <earranga@...>
Date: Sat Mar 19, 2005 9:38 am
Subject: Autism One 2005 Conference
earranga
Send Email Send Email
 
Dear Autism India Member -

Autism One 2005 Conference
May 26 – 29
Chicago Marriott O'Hare Hotel
http://AutismOne.org

The most comprehensive conference on autism ever assembled now offers
greater focus to help you address specific needs, shorten your
learning curve, and bring you quickly up to speed.

Most Comprehensive
Questions and answers do not stop at the boundary of a discipline.
Multivariate in presentation and cure autism bows to the collective
weight of doctors working with therapists working with educators
working with parents working to recover their children.

Our children benefit from an inter-disciplinary approach. Autism One
2005 is proud to feature over 100 of the leading experts presenting
in four tracks to help you make the best decisions:
1. Biomedical Treatments
2. Behavior / Communication / Education Therapies
3. Complementary and Alternative Medicine
4. Government / Legal / Personal Issues

We are pleased David Kirby, author of Evidence of Harm, will deliver
the keynote address. David has written a fascinating book chronicling
much of our community's recent history, including the big picture
power plays, while detailing the struggle and obstacles each of us as
parents face.

Greater Focus
This year we are introducing a number of important changes to provide
what we are calling a "lived experience." Conferences have a
tendency to talk at you. That's not good enough. Real learning
occurs at a deeper level; a level that combines the abstract with the
practical.

Initiatives include:
1. The Mentor Program:  You may request a mentor. Mentors are fellow-
parents with recovered children or children well on their way to
recovery.
2. Three Mini-Tracks: 1. Parents New to the diagnosis; 2. Puberty,
Adolescence and Adulthood and; 3. Environmental Medicine/Issues are
available.
3. Pre-Conference Day, GFCF and SCD - Culinary Delight:  The Pre-
Conference day is devoted to hands-on cooking to take the mystery out
of gluten- casein-free and specific carbohydrate diets.
4. Gluten/Casein free items on breakfast, lunch, and dinner menus:
Menu options will include gluten- and casein-free for breakfast,
lunch, and dinner. Have a taste, it's good.

A partial list of topics, by track, include:
1. Track - Biomedical Treatments
Autoimmune factors / treatments
Biochemistry of autism
Casein- gluten-free diet
Chelation - many forms of
Dental care
Diagnosis
Enzymes
Essential fatty acids
Food / nutrition / diet / vitamins / minerals / organic foods
Environmental medicine / toxins
IVIG, transfer factors, IV glutathione
Neurological testing, findings, treatments
Phenol sulfur transferase deficiency
Ongoing research
Vaccinations

2. Track - Behavior / Communication / Education Therapies
Applied Behavior Analysis (ABA)
Auditory Integration
Computers as learning tools
Greenspan / Floor time
Home schooling
Music therapy
Occupational Therapy
Picture Exchange Communication System (PECS)
Pivotal Response Training (PVT)
Psychological counseling, testing
Puberty and beyond
Relationship Development Intervention (RDI)
Supra-Modal Integrative Learning Experience (SMILE)
Sensory Integration
Verbal Behavior
Vision Integration

3. Track - Complementary and Alternative Medicine
Ayurveda Medicine
Chiropractic
Detoxification
Environmental medicine
Homeopathy
Naturopathic Medicine
Hyperbaric oxygen treatment
Mother's milk
Neurofeedback
Neural organization technique
Orthomolecular Medicine
Raw milk
Specific Carbohydrate Diet (SCD)
Traditional Chinese Medicine (TCM)

4. Track - Government / Legal / Personal Issues
Adolescence
Adult services
Autism the law and you
Counseling - coping and communication for parents
Dealing with insurance companies
Estate Planning
How to be your own best advocate
Individual Evaluation Plans (IEPs)
Legislative action
Obtaining government services
Puberty
School systems
Vaccines the law and you

A partial list of speakers include:
Lisa Ackerman
James B. Adams, PhD
Christina Adams, MFA
Tapan Audhya, PhD
David Ayoub, MD
Sallie Bernard
Mark Blaxill
Judith Bluestone
Mary Bolles
Jeff Bradstreet, MD
Mary Helen Brauninger
Barbara Brewitt, PhD
Kathy Brunner
Julie Burk
Rashid Buttar, DO
Natasha Campbell-McBride, MD
Jeff Cantor, DDS
Lujene Clark
Laura Cellini
Gayle Christensen
Peta Cohen, MS, RD
James Croxton
John DeHoney
Richard Deth, PhD
G. Alexander Doman
Mary Anne Ehlert
Barbara Loe Fisher
Andrew and Carolyn Gammicchia
Donna Gates
Kim Garvey-Hoehne
David and Mark Geier, MD, PhD
Jody Goddard
Temple Grandin, PhD
Doreen Granpeesheh, PhD
John Green, MD
Boyd Haley, PhD
J.B. Handley
Martha Herbert, MD
Betsy Hicks
John Hicks, MD
Mady Hornig, MD
Devin Houston, PhD
Vicki Isler, PhD
Jill James, PhD
Karta Purkh Singh Khalsa, DN-C, RH
David Kirby
Lori Knowles
Vale Krenik
Jean Kulczyk
Michael Lang
Patty Lemer
Allen Lewis, MD
Carolyn Lewis
Joy Lunt, RN
Tamara Mariea, CHMM, CCN
Terri McCreedy
Mary Megson, MD
John Melnychuk, RSHom(NA) CCH
Lewis Mehl-Madrona, MD, PhD
James Neubrander, MD
Jerry Newport
Seth Pearl, DC
Cindy Peters
Mary Beth Palo
Mary Romaniec
Lenny Schafer
Mark Schauss
Jeff Sell, Esq.
Chantal Sicile-Kira
Stephen Shore
Karen Slimak
Teri Small
Andrea Sovern
KP Stoller, MD
Debra Swain, PhD
Lisa Sykes
Denise Tarasuk, ND
Robert Ullman, ND, and Judyth Reichenberg-Ullman, ND
Anju Usman, MD
Andrew Wakefield, MD
William Walsh, PhD
Deborah Zelinsky, OD

Autism One is a 501(3)(c), non-profit, charity organization, started
by a small group of parents of children with autism. Parents are and
must remain the driving force of our community, the stakes are too
high and the issues too scared to delegate to outside interests.

If you have any questions please don't hesitate to contact me.
Thank you and we'll see you in May.

My Best,
Edmund Arranga
714.680.0792
http://AutismOne.org
earranga@...

#50 From: "amitabha_bhaumik" <amitabha_bhaumik@...>
Date: Thu Aug 25, 2005 5:47 pm
Subject: Looking for schools/services in india.
amitabha_bha...
Send Email Send Email
 
Hi,
I am a parent whose child has autism.I am looking for services and
schools available for our children in India.Please reply if anyone has
any info.
Thanks.
Sarmistha.

#51 From: "Balas" <balas@...>
Date: Fri Aug 26, 2005 6:03 am
Subject: Re: Looking for schools/services in india.
sweetbalas
Send Email Send Email
 
Dear Sarmishta,
Pl. check the website http://in.groups.yahoo.com/group/AutismIndia/.
It is the largest India-specific Autism related e-group, exchanging a lot of
informatory e-mails regularly. If anyone wish to subscribe to this group, please
send a blank email to:
AutismIndia-subscribe@...
After becoming a member, you can download the resource lists from its file
section.
Regards,

Bala Sreenivas, Bangalore

----- Original Message -----
From: amitabha_bhaumik
To: autism-india@yahoogroups.com
Sent: Thursday, August 25, 2005 8:47 PM
Subject: [autism-india] Looking for schools/services in india.


Hi,
I am a parent whose child has autism.I am looking for services and
schools available for our children in India.Please reply if anyone has
any info.
Thanks.
Sarmistha.








Yahoo! Groups Links







[Non-text portions of this message have been removed]

#52 From: "amitabha_bhaumik" <amitabha_bhaumik@...>
Date: Fri Aug 26, 2005 1:43 pm
Subject: Re-thanks Bala.
amitabha_bha...
Send Email Send Email
 
Hi Bala,
Thank you.
Sarmistha.

#53 From: parul gupta <p3r27@...>
Date: Fri Aug 26, 2005 1:46 pm
Subject: Re: Looking for schools/services in india.
p3r27
Send Email Send Email
 
Dear SarmishtA,

There are mnay specialist services avaialble for
children with autism both in terms of special
education as well as sensory integration  /
occupational therapy.

Do let us know where in India do you reside so we can
tell u of services in that area.

Best
Parul Gupta

--- Balas <balas@...> wrote:

>
> Dear Sarmishta,
> Pl. check the website
> http://in.groups.yahoo.com/group/AutismIndia/.
> It is the largest India-specific Autism related
> e-group, exchanging a lot of informatory e-mails
> regularly. If anyone wish to subscribe to this
> group, please send a blank email to:
> AutismIndia-subscribe@...
> After becoming a member, you can download the
> resource lists from its file section.
> Regards,
>
> Bala Sreenivas, Bangalore
>
> ----- Original Message -----
> From: amitabha_bhaumik
> To: autism-india@yahoogroups.com
> Sent: Thursday, August 25, 2005 8:47 PM
> Subject: [autism-india] Looking for schools/services
> in india.
>
>
> Hi,
> I am a parent whose child has autism.I am looking
> for services and
> schools available for our children in India.Please
> reply if anyone has
> any info.
> Thanks.
> Sarmistha.
>
>
>
>
>
>
>
>
> Yahoo! Groups Links
>
>
>
>
>
>
>
> [Non-text portions of this message have been
> removed]
>
>
>
>
>


__________________________________________________
Do You Yahoo!?
Tired of spam?  Yahoo! Mail has the best spam protection around
http://mail.yahoo.com

#54 From: "spatni2000" <spatni2000@...>
Date: Sat Aug 27, 2005 5:00 pm
Subject: Re: Looking for schools/services in india.
spatni2000
Send Email Send Email
 
Dear Parul,

We are also looking for  autism related services in India (Bangalore)
for our 3.5 year old son. Looking to relocate to India from USA, but
have concerns regarding the availability of facilities there.


regards,
Sandeep

--- In autism-india@yahoogroups.com, parul gupta <p3r27@y...> wrote:
> Dear SarmishtA,
>
> There are mnay specialist services avaialble for
> children with autism both in terms of special
> education as well as sensory integration  /
> occupational therapy.

#55 From: parul gupta <p3r27@...>
Date: Sun Aug 28, 2005 11:09 am
Subject: Re: Re: Looking for schools/services in india.
p3r27
Send Email Send Email
 
Dear Sandeep,

I shall try to arrange a list of services avaialble in
Banglore.

I am currentlty running a centre for intensive special
education and sensory integration therapy in Delhi,
for children with autism.

I am also aware of competent services in Mumbai.

Good Luck,

Shall keep u informed of any services avaialbe in
Banglore.

Best
Parul

--- spatni2000 <spatni2000@...> wrote:

> Dear Parul,
>
> We are also looking for  autism related services in
> India (Bangalore)
> for our 3.5 year old son. Looking to relocate to
> India from USA, but
> have concerns regarding the availability of
> facilities there.
>
>
> regards,
> Sandeep
>
> --- In autism-india@yahoogroups.com, parul gupta
> <p3r27@y...> wrote:
> > Dear SarmishtA,
> >
> > There are mnay specialist services avaialble for
> > children with autism both in terms of special
> > education as well as sensory integration  /
> > occupational therapy.
>
>
>




____________________________________________________
Start your day with Yahoo! - make it your home page
http://www.yahoo.com/r/hs

#56 From: "amitabha_bhaumik" <amitabha_bhaumik@...>
Date: Sun Aug 28, 2005 7:01 pm
Subject: Re-Looking for schools /services in India -for Parul and others.
amitabha_bha...
Send Email Send Email
 
Dear Parul,
We are currently located in the U.S but are planning to move back to
India.I am also concerned about the services available in our country
specially the type of schools,therpists and above all inclusion.I shall
most probably relocate to Kolkata so if you could please send me the
links for kolkata and also any other main cities like
Bangalore/Delhi/Mumbai it would be very helpful.I am looking for the
best possible placement and oppurtunities for my child so I am willing
to move anywhere in India.
Thanks.
Sarmistha.

#57 From: "nidhimishras" <nidhimishras@...>
Date: Mon Sep 19, 2005 7:05 pm
Subject: need advice
nidhimishras
Send Email Send Email
 
Hi everyone,
I have a 6 yrs old autistic daughter,we are currently in US,thinking
about going back to India,if anyone has some info abou autism schools
and related services in Banglore,please provide some information.I
will appreciate any help.
Thanks

#58 From: "nidhimishras" <nidhimishras@...>
Date: Mon Sep 19, 2005 8:40 pm
Subject: schools in Banglore
nidhimishras
Send Email Send Email
 
I am a mother of 6 yrs old autistic daughter currently residing in
US,but wants to get back to India,looking for schools and related
services in Banglore,I will greatly appreciate any help.

#59 From: "vijirajmohan" <vijirajmohan@...>
Date: Fri Sep 23, 2005 7:46 am
Subject: hi
vijirajmohan
Send Email Send Email
 
hi,
                       I am glad to have joined this group.I am the
mother of a 5 yr old autistic boy.We have been trying to keep our son
on a GFC diet .We have been successful to an extent primarily because
we are south indians and most preparations are rice based.Sabudana
vada is a good suggestion.I would appreciate more suggestions on the
diet issue.
                        As a new member I would like to wish all
members the very best in this battle against autism
viji

#60 From: "nidhimishras" <nidhimishras@...>
Date: Thu Sep 29, 2005 12:43 pm
Subject: Services in Delhi
nidhimishras
Send Email Send Email
 
Hi everyone!
I am looking for some special schools and services(OT/Speech,ABA)in
Delhi area.If anyone have any information it will be very helpful.
Thankyou to all of you who provided information on Banglore facilities.
Thanks
Nidhi

#61 From: viji rajmohan <vijirajmohan@...>
Date: Tue Oct 4, 2005 4:11 am
Subject: typing
vijirajmohan
Send Email Send Email
 
hi,

                      Has anybody tried typing for
their child. If so please tell me how do u go about
it?
Regards
viji

#62 From: parul gupta <p3r27@...>
Date: Thu Oct 6, 2005 12:26 pm
Subject: Re: typing
p3r27
Send Email Send Email
 
Dear Viji,

I help children learn computers as per their ability
as a part of the activities on the centre.

Do let me know a bit more about your child before i
can recommend you an appropriate way. However the
things to keep in mind are:

DOes your child understand phonics (i.e. lower case)
or uppercase? Does he have the link between the two?
You may need to revise your keyboard accordingly
incase he does not have the link between upper and
lower case or teach him typoing with caps lock on if
he has learnt stuff till now in uppercase.

How id the muscle tone in the arms? does he need
support to move fingers and arm to desired point?

how is the visual scanning? can he scan and find the
desired key admist so many on a keyboard?

Do let me know and we can discuss this further.

Best
Parul

--- viji rajmohan <vijirajmohan@...> wrote:

> hi,
>
>                      Has anybody tried typing for
> their child. If so please tell me how do u go about
> it?
> Regards
> viji
>
>
>




__________________________________
Yahoo! Mail - PC Magazine Editors' Choice 2005
http://mail.yahoo.com

#63 From: viji rajmohan <vijirajmohan@...>
Date: Wed Oct 19, 2005 5:05 am
Subject: Is it repetition
vijirajmohan
Send Email Send Email
 
hi,
                 My son who is 5 yrs old has started
this
habit of holding his fingers close to his mouth and
shouting.The frequency of this behaviour increasing.
It is quite disturbing.Is it stimming. We keep telling
him that he will try not to shout.he quitens down and
again he starts doing it.
regards
viji



__________________________________________________________
Yahoo! India Matrimony: Find your partner now. Go to http://yahoo.shaadi.com

#64 From: anuj jajodia <anuj_sup@...>
Date: Fri Nov 11, 2005 5:55 pm
Subject: Query about Dr Hirani (DAN doctor) visiting India
anuj_sup
Send Email Send Email
 
Hi-I am Anuj from Mumbai-India I would like to know about Dr.Hirani -(The DAN
doctor )visit from US to India as my nephew is suffering from Autism.
   Please help me out with the procedure for registering him on her check up
list.
   I heard the doctor is there from 30-12-2005 to 1-1-2006 in Mumbai.

   Thanks,
   Anuj

#65 From: "Balas" <sweetbalas@...>
Date: Sat Nov 19, 2005 1:20 am
Subject: Re: Dr Hirani (DAN doctor) visiting India
sweetbalas
Send Email Send Email
 
Dear Anuj,
It seems you wanted to send the mail to AutismIndia@.... So, I am
copying here under the relevant message as appeared in Autism India Network
Group. You may please join the following two groups for more information and
regularly being in touch with the Autism community of India.


http://in.groups.yahoo.com/group/AutismIndia/
The largest India-specific Autism related e-mail group -AutismIndia Network,
with more than a thousand parent and professional members, who are concerned
about Autism in India.

http://groups.yahoo.com/group/DAN-India
DAN-India Network is formed to unite the parents and medical professionals of
India, interested in following DAN Protocol (Defeat Autism Now), with the help
of doctors in India and USA. Parents and professionals, experienced in following
DAN Protocols, including chemical chelation for Mercury detoxification for
Autism, (let me call them 'DAN-Angels') are here to advice and help the members.
We look forward to discuss the experiences about diets, supplementation,
enzymes, chelation and other Bio-Medical Interventions.

Regards,
Bala S., Bangalore.

Dear fellow parents,
I hope, you have seen my earlier mails in the group, regarding the visit of a US
DAN doctor to Bangalore. After spending a lot of time and efforts, I could get
one DAN -doctor interested in coming to India. More over, some how I could
convince her to do a non-profit work in India, as a service to the humanity.
Believe it or not, she has agreed to do it free here in Bangalore. Her normal
charges of consultation in her clinic is Los Angelus is $ 300 per hour.

The doctor, who has agreed to conduct the workshop on Bio-Medical Intervention
for Autism in Bangalore is Dr. Karima Hirani, MD MPH -US Board certified in
Family Medicine and Integrative Medicine and a Nutritionist from Los Angeles 
(http://www.drhirani.com/)

Dr. Hirani has been practicing medicine since 1993. She received her MD from USC
Medical School and is Board Certified in Family Practice. She completed her
Family Practice Residency from Long Beach Memorial Hospital in Long Beach,
California. She also has a Master's degree in Nutrition from the UCLA School of
Public Health. Dr. Hirani is a member of the American Academy of Family
Physicians (AAFP), the California Academy of Family Physicians (CAFP), the
American College for the Advancement in Medicine (ACAM), the American Holistic
Medical Association (AHMA), and member of American Academy for Environmental
Medicine (AAEM).

Click here to access her interview as broadcast on US TV stations recently.
http://www.drhirani.com/weblog2/stories/2005/09/15/infoForKnbc4AndKcal9SegmentOn\
AutismChelation.html

The confirmed program for Bangalore is as follows:

Sunday, 18th Dec. A full day workshop on Bio-medical intervention  for Autism
treatment. -DAN protocol, GFCF diet, Vitamin B 12, Melatonin, Digestive enzymes,
Supplementation, Food allergies, Intestinal dysbiosis and finally the chemical
chelation for Mercury detoxification.
(The workshop is intended for parents and Indian doctors interested in following
DAN protocol)

Monday, 19th Dec. Training sessions for the doctors

Tuesday, 20th Dec. Individual consultations for the children by the visiting DAN
doctor in the presence of Indian doctors.

The Mumbai program (Individual consultancies only) is planned for 29th Dec. -one
day only.

Once more information is available, we will get in touch with you.

Reagards,
Saji. M. Idicula, Autism India Network.

----- Original Message -----
From: anuj jajodia
To: autism-india@yahoogroups.com
Sent: Friday, November 11, 2005 8:55 PM
Subject: [autism-india] Query about Dr Hirani (DAN doctor) visiting India


Hi-I am Anuj from Mumbai-India I would like to know about Dr.Hirani -(The DAN
doctor )visit from US to India as my nephew is suffering from Autism.
   Please help me out with the procedure for registering him on her check up
list.
   I heard the doctor is there from 30-12-2005 to 1-1-2006 in Mumbai.

   Thanks,
   Anuj




[Non-text portions of this message have been removed]

#66 From: anuj jajodia <anuj_sup@...>
Date: Sun Nov 20, 2005 12:23 pm
Subject: Dr.Hirani's visit
anuj_sup
Send Email Send Email
 
Dear Moderator,

Please let me know about Dr.Hirani s visit to India-Mumbai as i would like to
show her my nephew who is suffering from Autism.

We are based in Mumbai and it would be great if my nephew would be diagnosed and
the future actions be well structured under the instructions of Dr.Hirani.

Thanks,
Anuj


---------------------------------
  Enjoy this Diwali with Y! India Click here

[Non-text portions of this message have been removed]

#67 From: anuj jajodia <anuj_sup@...>
Date: Sun Nov 20, 2005 12:37 pm
Subject: last date...
anuj_sup
Send Email Send Email
 
Dear Members,

As the last date to enroll for Dr.Hiranis check up list on her visit to
Mumbai-India is 30th November and as I have still not enrolled my nephew who is
suffering from autism i am quite worried, so please help me in enrolling him on
her check up list before the due date.

   Thanks,
   Anuj


---------------------------------
  Enjoy this Diwali with Y! India Click here

[Non-text portions of this message have been removed]

#68 From: "Balas" <sweetbalas@...>
Date: Fri Nov 25, 2005 8:04 am
Subject: Re: Dr.Hirani's visit
sweetbalas
Send Email Send Email
 
Dear Anuj,
If you need your questions to be answered or if you want to really communicate
with the Autism community of India, please join Autism India Network
http://in.groups.yahoo.com/group/AutismIndia/
The largest India-specific Autism related e-mail group -AutismIndia Network,
with more than a thousand parent and professional members, who are concerned
about Autism in India.
Also check out www.AutismIndia.net
By the way, Dr. Karima Hirani is conducting a workshop on DAN-Protocol
-Biomedical interventions in Autism, at Bangalore on 18th Dec. and visiting
Mumbai on 29th Dec.
Regards,
Bala. S, Bangalore.

----- Original Message -----
From: anuj jajodia
To: autism-india@yahoogroups.com
Sent: Sunday, November 20, 2005 3:23 PM
Subject: [autism-india] Dr.Hirani's visit


Dear Moderator,

Please let me know about Dr.Hirani s visit to India-Mumbai on 29th Dec. as i
would like to show her my nephew who is suffering from Autism.

We are based in Mumbai and it would be great if my nephew would be diagnosed and
the future actions be well structured under the instructions of Dr.Hirani.

Thanks,
Anuj



[Non-text portions of this message have been removed]

#69 From: "cbbalsam" <cbbalsam@...>
Date: Sun Dec 18, 2005 8:56 am
Subject: Girl's disabilities spur mom's creative side - Nettiesays
cbbalsam
Send Email Send Email
 
Girl's disabilities spur mom's creative side

Friday, December 9, 2005

By DEENA YELLIN
STAFF WRITER



TEANECK

Other mothers might have immersed themselves in sorrow, but Cindy
Balsam turned her heartbreak into hope.


After her daughter was born with an array of disabilities and
medical complications, Balsam used her experience to help others in
similar circumstances.

"As a parent, you can empower yourself in the hardest situation,"
said Balsam, a wife and mother of four. "It empowers your child."

The 33-year-old computer technologist was driven by a single
desperate goal - to help her daughter Nettie overcome her
challenges.

From the start, Balsam has surrounded 3-year-old Nettie, whom she
calls her "wondergirl," with love. She has also transformed the
family's garage into a therapy room and packed Nettie's calendar
with occupational, physical, vision, auditory, feeding, electro-
stimulation and speech therapy. The family's cozy colonial is filled
with toys, children's books and therapeutic devices.

"No matter what we're going through, we're always focused on her
developmental progress," said Balsam. "We're very aggressive with
her therapies and follow-throughs."

With Balsam's computer expertise, it was only natural for her to
integrate technology into her therapy. Several months

ago, she created a DVD to promote Nettie's communication development
and enhance her visual tracking skills.

The DVD displays various shapes, animals and familiar objects,
designed to teach new words and phrases. A mix of subtle background
music keeps it entertaining.

"I always felt guilty if I wasn't doing therapeutic activity with
her 24/7. This gives me a break while doing something helpful for
her," she said. While Nettie watches the DVD, Balsam can tidy the
house and spend time with her other children.

The therapeutic DVD was such a hit with Nettie, Balsam wanted to
share it. She recently launched a Web site -nettiesays.com - to sell
the DVD and reach out to other parents of disabled children.

"This is my feel-good hobby. We have a slew of customers, from as
far away as Sweden and India, who love this," she beams.

Nettie Says:


---------------------------------------------------------------------
-----------

Cindy Balsam, Nettie's mother and creator of the Nettie Says DVD and
Web site, advises parents of children with physical or emotional
problems to live day by day and not to drown in despair.

"Going through this journey, I've learned that, as a parent, you can
empower yourself to help your child. The most important elements you
have to remember are patience, perseverance and, above all, love."
nettiesays.com

So far, Balsam has sold 500 copies of the DVD and has elicited fan
mail and questions from parents who want to learn more about what
worked with Nettie.

One New Jersey mother, who declined to give her name, praised the
DVD for teaching her children new phrases and the seasons of the
year. "My kids love the Nettie Says DVD. It's not just entertaining,
it's educational."

"She's an incredible person," said Suzanne Tepler, a Teaneck
homemaker, about Balsam. "She's always challenging Nettie in a warm
and nurturing way. 'Nettie Says' is a testament to the knowledge and
know-how that Cindy has gained by being so completely involved in
Nettie's therapies. Cindy wants to share with others what worked for
Nettie."

On a recent day, Balsam grinned into Nettie's blue eyes, partially
hidden behind her thick glasses, and watched her daughter's face
stretch into an infectious smile. She sang her songs until she
giggled. Then she rolled Nettie onto her stomach and cheered wildly
when she pushed her body up with her arms.

"She's worked so hard and she's accomplished so much, it's amazing,"
boasted Balsam.

Nettie's come a long way from her birth, when doctors took one look
at her and whisked her to the neonatal intensive care unit.

The infant had bilateral choanal atresia, a blocked passageway from
her nose to her throat, requiring immediate surgery to allow proper
breathing.

But that was just the start of Nettie's medical problems. Her long
list of abnormalities included a webbed neck, impaired hearing,
deformed vocal chords, an extra finger, low muscle tone and ocular
photosensitivity, which left her legally blind. Since she had
difficulty sucking and swallowing, Nettie was unable to eat without
the aid of a tube inserted into her stomach.

Other parents might have become paralyzed with grief.

Balsam didn't want to waste the time. She started working the
phones, contacting agencies, therapists and physicians for help.

She secured oxygen for the house and found medical and therapeutic
devices. She hired therapists and arranged for Nettie to have
cochlear implant surgery to improve her hearing.

"I treated each of her issues as if it was her only one," said
Balsam. "I didn't want to miss out on any of the aggressive
therapies. Some people thought I pushed her too hard, but now
everyone sees how Nettie's life has improved because of it. She can
bear weight on her feet and can make sounds now. That's miraculous."

There are other positive signs. In the past, Nettie seemed oblivious
to her surroundings, but now she interacts. She smiles at voices and
faces. She cries when she needs something. She giggles when her
brothers or sister walk into the room.

"I've seen 1,000 percent progress," said Balsam.

Balsam still has to carry her 23-pound daughter around the house
because her legs are not strong enough to walk. Nettie must still
use a stomach tube because she cannot suck or swallow.

Whatever challenges Nettie faces next, Balsam will remain fixed on
the brief moments of wonder that Nettie has brought to her and her
family.

"Whenever she smiles at me," said Balsam beaming, "that's my best
moment."

#70 From: "Michael" <mdochniak@...>
Date: Thu Dec 22, 2005 12:45 am
Subject: New Theory on ASD (Exogenous Protein Insult)
mdochniak
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#71 From: "confident_mother" <confident_mother@...>
Date: Wed Jan 25, 2006 7:09 pm
Subject: autism
confident_mo...
Send Email Send Email
 
I live in US and here is a good site

autismweb.com/forum

The good news is Dr Neubrander(MB-12 shot protocol) and his team some
time reply to ur queries.

Visit Dr NEubrander site to see the videos if u have not heard about him .


http://www.drneubrander.com/page1.html

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